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Sluff
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« Reply #75 on: May 04, 2008, 05:16:51 AM » |
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Guess Boxman and OB will be dancing in Chicago instead of me and OB. Why does this always happen to me?  Boxman I'm only two hours from you if you need anything please call. Take care Buddy.  |
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Ambo
Newbie
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Gender: 
Posts: 19
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« Reply #76 on: May 04, 2008, 11:12:44 AM » |
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I thought about what I would decide if I had to make this decision, Boxman. I too, have poor circulation and have dealt with a few infections on my feet before. As a result of the nerve damage, I have no feeling below my knees. I know it is only a matter of time that I may have to deal with amputation. I would most likely want to have a prosthetic if this were my decision.
I shall be praying for you in this time of healing... It sucks the big fat one that this is happening. I feel devastated for you. You are a strong man, and this big bump in your journey will make you much more stronger! Stay cool cooly cat.
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"To live with a chronic illness is not a limitation, but a special invitation to those of us who are willing to accept the challenge.'” -Shad Ireland
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KT0930
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« Reply #77 on: May 04, 2008, 05:47:28 PM » |
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Boxman, I am so sorry you have to deal with this. You'll be in my thoughts and prayers until you let us know how things have gone, and after that as you recover, of course!  |
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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skyedogrocks
Sr. Member
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Gender:
Posts: 904
Rob showing off his pot of gold!
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« Reply #78 on: May 04, 2008, 08:14:29 PM » |
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Boxman, I'm so sorry you are having to deal with this, it definitely isn't fair. Please know you my thoughts and I wish you strength, hope, love and courage with this difficult process you are going through. Know that we are all here rooting for you.  |
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.
11/17/09 After 4 years on dialysis, Rob received a kidney from our George. Kidney is working great! YEAH!!!!
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KR Cincy
Sr. Member
Offline
Gender: 
Posts: 930
Home hemodialysis since May 07
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« Reply #79 on: May 05, 2008, 12:18:03 PM » |
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Boxman...you're in my thoughts today. It's unfair that we are so often presented two equally lousy choices, but know you aren't alone though this. Stay positive and stay strong and know we're all with you.
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Not giving up...thanks to Susan.
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rose1999
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« Reply #80 on: May 05, 2008, 12:22:17 PM » |
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I'm thinking of you Boxman, although you are probably not reading this today as it is the day of your decision. You will get through this, we are all here for you and saying prayers for you. The people on here are such a caring group, you know we will do what we can to help carry you through, sometimes that is only possible through thought and prayer as we are so widespread. Sending love your way. |
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monrein
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« Reply #81 on: May 05, 2008, 01:44:05 PM » |
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I thought it was today also for the decision. Thinking of you Boxman.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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willieandwinnie
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« Reply #82 on: May 05, 2008, 02:20:10 PM » |
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Boxman, I thought about you most of the day. We'll continue praying. We miss you. |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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boxman55
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« Reply #83 on: May 05, 2008, 04:26:56 PM » |
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Well I called 4 times today with no call back. It really sucks to make a call to have your leg amputated and get no return call. The last time I called at 5:30 I was told to call back tomorrow. What a bunch of shit...Boxman
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 "Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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twirl
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« Reply #84 on: May 05, 2008, 05:01:34 PM » |
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Boxman it is a bunch of shit and you deserve better, much better they ever heard of compassion
sorry, people can really suck
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Sluff
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« Reply #85 on: May 05, 2008, 05:08:38 PM » |
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Well I called 4 times today with no call back. It really sucks to make a call to have your leg amputated and get no return call. The last time I called at 5:30 I was told to call back tomorrow. What a bunch of shit...Boxman
Total BullSh*# Boxman. |
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twirl
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« Reply #86 on: May 05, 2008, 05:14:35 PM » |
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I'm on my computer in tears, Boxman, this is an outrage.... life is hard enough without F'ers like that
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monrein
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« Reply #87 on: May 05, 2008, 05:30:34 PM » |
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All I have to say is WTF.   |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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PMP
Jr. Member
Offline
Posts: 59
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« Reply #88 on: May 05, 2008, 05:50:22 PM » |
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Oh, Boxman, I'm a little late learning about what you're going through now. Good grief. I can't tell you how sorry I am that you're having to deal with this. Wish I had some magical words of wisdom. I don't. As everybody else has said, though, you're in my thoughts and prayers. I hope that helps a little.
Pat
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Bajanne
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« Reply #89 on: May 05, 2008, 06:06:12 PM » |
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We are still with you all the way. You continue to be in our caring thoughts and prayers. |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
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lola
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« Reply #90 on: May 05, 2008, 06:21:00 PM » |
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Boxman have been thinking of you all day and now you have to wait another day. Maybe we need to come there and for ya xoxox |
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mikey07840
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« Reply #91 on: May 05, 2008, 06:33:23 PM » |
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Boxman, I've been think of you and praying for you... hang in there Mikey |
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma
• Don't Knock on Death's door; Ring the bell and run away. Death hates that.
• I'm not a complete Idiot -- some parts are missing.
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paris
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« Reply #92 on: May 05, 2008, 07:07:39 PM » |
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Sorry Boxman, this has been a horrible day for you. There is no excuse for putting you through this. |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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Ohio Buckeye
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« Reply #93 on: May 05, 2008, 07:22:25 PM » |
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How strange.
I wish I knew what to say. I'm sorry. That would be hard to deal with.
Goofynina would say God's timing is best.
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If I must do this to live, I must strive to live
while I am doing this.
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rose1999
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« Reply #94 on: May 05, 2008, 11:02:06 PM » |
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What a disgrace, as if life isn't hard enough for you at the moment. Wish we could help |
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okarol
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« Reply #95 on: May 05, 2008, 11:24:30 PM » |
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 Someone effed up. Hope tomorrow is better Box!
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spacezombie
Full Member
Offline
Gender:
Posts: 219
Melissa: ESRD since 1992, transplant June 10, 2008
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« Reply #96 on: May 06, 2008, 01:50:57 AM » |
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Well I called 4 times today with no call back. It really sucks to make a call to have your leg amputated and get no return call. The last time I called at 5:30 I was told to call back tomorrow. What a bunch of shit...Boxman
UGH. That is so horrible. Doctors make me so angry sometimes. WE ARE PEOPLE. These are our lives. I'm so sorry you had to deal with this crap today. My thoughts are with you.  |
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
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Sluff
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« Reply #97 on: May 06, 2008, 04:36:53 AM » |
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I feel for you Boxman and just sitting by the damn phone waiting really sucks. (unless she is 5'3" red hair blue eyes 110# and wants you)   did I type that out loud? |
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boxman55
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« Reply #98 on: May 06, 2008, 08:55:24 AM » |
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Well I decided to call the first surgeon I dealt with who did my toe amps along with the new one down at St Lukes where I had the hyperbaric treatment (he was the one with no call back yesterday). Well they both called this morning and I have an appt at 2:30 today with my toe surgeon and the other guys nurse is suppose to call me back with their schedule. It sounds confusing, but the hospital that my toe surgeon works out of is closer to home then the other. Which would help my family and friends so I am leaning to switch and go back to my original surgeon. I will have schedules later today I think...Boxman Hope this makes sense
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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thegrammalady
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« Reply #99 on: May 06, 2008, 09:03:49 AM » |
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glad to hear you at least got to talk to someone. maybe things will start to move forward. although i'm sure it still isn't easy. personally i think i'd go with the doctor you had previous experience with. the hospital being closer to home can't hurt. just remember we're all pulling for you, you are very important to all of us. |
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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I Hate Dialysis Message Board
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