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Author Topic: Boxman  (Read 55102 times)
twirl
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« Reply #50 on: May 02, 2008, 05:19:20 PM »

:yahoo;  you are back for a little while :yahoo;  I am so glad to hear from you again.......
I am having surgery next week also so now you need to give me words of encouragement
I know you will make the right decision about your leg.
I will keep you in my thoughts
Boxman, it's got to be hard, wish I knew something magic to say but all I can say is I care and my thoughts are with you
I am saving a difficult trivia question to spring on you when we are both back and feel better
you will never find the answer         :rofl; :rofl;
please be alright
Cheryl


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Sluff
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« Reply #51 on: May 02, 2008, 05:42:40 PM »

Great to see you Boxman, I'm sorry you are faced with such a tough decision.  I agree with your reasoning. If you need anything please call me.  :grouphug;
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paris
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« Reply #52 on: May 02, 2008, 06:21:46 PM »

Boxman, I am sorry.  You have fought so hard.  I hate that you have to make the decision. I will say lots of prayers this weekend for you to have strength to face what is ahead.  You are strong and can get through this too.  We are all here for you and will do anything we can.   :grouphug;
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« Reply #53 on: May 02, 2008, 07:13:34 PM »

I'm so sorry to hear that news and the awful decision you have to make.  All my best healing thoughts are with you and we want you back here full-time.
Gail
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
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« Reply #54 on: May 02, 2008, 07:34:19 PM »

Boxman so sorry you are going thru this.  :grouphug; :grouphug;
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annabanana
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« Reply #55 on: May 02, 2008, 07:39:18 PM »

So good that they let you come home for the weekend! The decision--you will make the right one. So sorry to hear that you have to make that decision, though. My good thoughts are with you.
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caregiver to Randy:
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xtrememoosetrax
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« Reply #56 on: May 02, 2008, 07:59:00 PM »

So sorry to hear this, Boxman. This sounds awfully hard. I'll be thinking about you and pulling for you.
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rose1999
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« Reply #57 on: May 02, 2008, 11:30:50 PM »

What a choice to have to make, but I think you know what is best for you.  None of us can help but we can all send prayers, good wishes, positive thoughts or whatever - I'll be sending all of those and a lot of love and hugs  :cuddle;.  Like everyone, I wish I could make it better for you.  All I can say is look at Ohio Buckeye, she is doing really well with her new leg, I hope that will give you some small comfort.  xx
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kimcanada
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« Reply #58 on: May 03, 2008, 02:54:29 AM »

Boxman... I am thinking of you

Kim
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #59 on: May 03, 2008, 05:36:01 AM »

 :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;

Heaps of hugs for ya Boxman

Be thinkin about you on Monday

Tamara xxxx oooo  :waving;  :cuddle;  :waving;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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« Reply #60 on: May 03, 2008, 05:47:49 AM »

I was so happy to see that you had posted.  Then sorry to hear about the decision you had to make.  But i feel the strength of your spirit and I know you will get through this. We are survivors!!  My caring thoughts and prayers are with you.  :cuddle;
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« Reply #61 on: May 03, 2008, 08:16:13 AM »

If it isn't one thing it is another with us.  Boxman I hope you have a quick recovery from whichever you decide to do.   :grouphug;
If you need some encouragement or someone to talk to after the amputation, Victor and I are here.  He has had the below the knee amputation. He has personal experience with the recovery and learning to walk again.

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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #62 on: May 03, 2008, 08:25:31 AM »

So sorry Boxman - you've been through so much to heal that foot - this must be very difficult.
Take care - we miss ya - hope all goes ok.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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Adam_W
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« Reply #63 on: May 03, 2008, 09:05:15 AM »

Hang in there, Boxman. Sorry you have to go through such a difficult time. You're in my thoughts and prayers.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Ohio Buckeye
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« Reply #64 on: May 03, 2008, 09:40:46 AM »

Boxman
I can't say in words how sorry I am that you are going through this.
Words just seem inadequate.
It is hard to be faced with such a decision.
I struggled with my foot for 18 mos. and I had bone infection so did not have much choice.
The struggle and the pain wears one down and I just wanted to be able to get on with life again.
It has been a long road and I still have a long way to go yet.
I just got my temporary prosthesis.  I start therapy next week.
It is good to have 2 shoes and 2 socks on again.
There is a national limb loss organization, phone - 1-888-267-5669, I called them and they sent me out a packet
of very helpful infor. on prosthesis, support groups, etc. They have amputees available to visit new amputees to answer questions, etc. if one wishes.
They send out the In Motion magazines which are good to read.
I did not learn about them til about 3 mos. after my amputation. 
I wish I had known about them while I was in the hospital.
I will be praying for you as you make your decision.  I am glad you got home for the weekend anyway.
God will grant you strength I know.



 
 
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jbeany
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« Reply #65 on: May 03, 2008, 10:39:58 AM »

 :grouphug;

Sending some good thoughts your way, boxman.
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boxman55
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« Reply #66 on: May 03, 2008, 01:38:57 PM »

OB, thank you for the phone number. I don't really have a choice but I just can't get it past my head. It is hard...Boxman
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« Reply #67 on: May 03, 2008, 03:24:35 PM »

I wish you well,     :grouphug;   :cuddle; :cuddle; :grouphug;  sorry you have to go through this pain.
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Jack A Adams July 2, 1957--Feb. 28, 2009
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Sunny
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Sunny

« Reply #68 on: May 03, 2008, 04:07:04 PM »

I'm so sorry to hear about this difficult decision you have to make.
If it means you can walk again, I think your idea about amputation below the knee makes sense.
I sure wish you didn't have to make this decision, but since you do, it sounds like your medical care providers are doing a very good job for you.
Get better soon. I will be sending good thoughts your way.
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Sunny, 49 year old female
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Ohio Buckeye
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« Reply #69 on: May 03, 2008, 05:36:51 PM »

It is so hard Boxman.
A part of our body.  I still look at my leg with unbelief sometimes. can't believe it happened.
When I thought it was going to be my toes I had a love affair with my toes.
Then it became a below the knee amp. 
The docs say it is a real advantage to have your own knee.
Whatever amp you do they keeo you comfortable.
They gave me a little button to push with pain med in it.
Sometimes that wasn't enough and I asked for more and got a shot.
To get through it  mentally you have to look ahead and see and think of the things you want to do again, walk, etc.
Think about what you will be able to do, not what you can't do temporarily.
When I got my amp my sister was in tears and I was dry eyed thinking about what I wanted to do again.
I told the prothesist I wanted to walk, drive, do steps and walk on uneven outside ground to play with my grandson.
He said that was possible.  It will be for you too and more if you want.
You will find people with prosthesists running in marathons, dancing and all kinds of activities.
My prosthesist told me that prosthesisis have come along way because of the war.  There have
been many improvements in them. 
I'm sure if you call that phone number and ask for the packet of info. you will find something there helpful.
I was surprised at how large of a packet it is. 
I wish I lived close to you.  You are so much in my thoughts and prayers.
Oho Buckeye


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« Reply #70 on: May 03, 2008, 06:15:26 PM »

Boxman, we are so sorry that you have not been able to heal your foot. Our thoughts and prayers are with you.

Rolando too has had to make that choice (in his case his leg or his life). As horrible a thing as it is to lose a limb, there is a bright spot. Since he was no longer fighting infection, he found that physically he felt much better post amputation. I don't know if that is universal but I hope so. Let it serve as a little boost along your road to walk again. Maybe OB will comment.

 :grouphug;
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
boxman55
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« Reply #71 on: May 03, 2008, 06:17:31 PM »

OB, thanks again you are part of my strength

Boxman
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"Be the change you wished to be"
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« Reply #72 on: May 03, 2008, 07:02:18 PM »

 :waving; Boxman, wish you didn't have things so hard. Sounds like the doctors have tried their best. I pray for your strength getting through this. take care
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« Reply #73 on: May 03, 2008, 07:30:25 PM »

Yes, that is true Aharris2.
It is good to be off of pain meds after being on so many for so long that didn't help a whole lot.
The last couple of months is the first time I've been pain freeiwith no pain meds n like 18 mos.
That in itself makes one feel a whole lot beter.
Before amputation I got very little sleep as I was always in too much pain.
My blood count improved also.
I was struggling to keep it high enough and the last 3 mos or so it has been real good.
They said it was because I wasn't fighting infection.
It is a long hard painful struggle trying to save a limb.
If you lose that struggle you have to decide whether to give up or press on.
You can choose to press on and still enjoy life.



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If I must do this to live, I must strive to live
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« Reply #74 on: May 04, 2008, 02:16:55 AM »

I'm so sorry you are dealing with this. Whatever you decide I hope that you heal quickly and feel better than you did before. <3
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
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