They say everything is shutting down

[aharris2]

Roxanne, don't give up hope! There are no guarantees, but your dad is a fighter and he has you on his side. The medical professionals won't try Milk Thistle, but you've done the research and you will. Good. It is a double whammy - a treatment and maintaining hope in your dad. And he has his family's support. There are intangibles that doctors don't take into account, you keep right on hoping and fighting. You are doing your best for your dad.

Alene

 

[monrein]

Thinking of you all on this Christmas Day.  You are a blessing to your parents.  I'm putting all my strongest good thoughts towards your Dad.   

[RichardMEL]

Your dad is clearly a fighter and I feel you've gotten some of that spark from him because you are too Roxanne. He's already been through so much and proved them wrong let's just see how he goes now. I too would be very concerned and upset from the comment relayed to you, but it's an opinion. We need to have hope that that opinion is wrong and your dad will pull through these very trying times. We are all behind you and your dad!!!! Like Nursewratchet said I too am so very unhappy that this is the christmas for you and your family during a time of celebration and joy you are suffering so. I am praying in my heart for things to turn around for you all.

 

[cris]

Roxanne,
The same way with Nanay, the doctors told us that Nanay may not live that long because of the infection. But we did everything we can, just like what you are doing right now and God had blessed us, Nanay recovered. Be diligent on the laboratory results, how about his urinary tract? I hope it is good. In Nanay's case they found out that most of the virus are also coming from the urinary tract infection. You need to check his urine, if it's improving. With the liver case, the urine is colored a red tea. If the color improves, that means he is fighting the infection. I don't know but Nanay's doctor said, Hepa C's best cure is sunlight and rich vitamin foods. Also, the doctor mention something about an injection that is so expensive. I didn't get the name of it since it will costs us a fortune. One type is 2x injection a month which costs about $300 each and the most potent is $600 injection once a month. Our doctor said this will make the liver healthy. We did not go for these injections, since we can't afford it, we just really took care of Nanay and really watched her labs.
Carry on.
love,
cris

[Roxanne610]

Thanks everyone,,,I am trying to stay positive but its so hard especially when you see how he is sooooooooo thin and weak,, and what the dr said just makes it so much worst.  Today he didn eat much.  One thing to about my dad is not a complainer so he will just tolerate anything he is feeling and not tell my mom..He doesnt complain at all he is amazing my dad in how he handles things he just lets the doctors do what they have to do, he has such a will to live its so sad to see him like this....


Guys I left my parents and I just cant stop crying I just feel this is my last Christmas with him and it is heart wrenching the tears can keep up with the hurt I feel inside...My heart is breaking inside from all this I just cry and cry...Its beyond words...Im sitting here and everyone wants to come over and I just wanna be by myself everyone with no real problems makes me sick when they say there stressed...

Thanks again for all your support,,,I need it....Im out of my mind with this...

xoxoxoox

[RichardMEL]

Roxanne it is very difficult for those of us dealing with, or for our loved ones dealing with, a crippling illness like we are and the concerns of "normal" people are suddenly shown to be so trivial because, relatively, they are. 80% of the time I personally am so happy for such people because they do NOT have to suffer with or see someone they love suffer through a horrible situation like that. The rest of the time I am envious that their life is so rich that their main complaint seems so trivial to me. However everyone's situation is different and I try very hard to not judge others by my own standards. Consider that someone whinging about something aparently trivial may not be telling the whole story, or they may have other concerns they are not letting on about - sometimes you just don't know.

One other thought Roxanne... you have friends who want to come around and show support to you. That's something to not be sneezed at. I totally understand you feel so desperately helpless and sad in this situation - and that you want to be alone to try and deal with it. That is OK. Just remember that at least you do have people who care enough about you that they want to show some support. Some people don't even have that in their lives.

This may or may not be your last Christmas with your dad. Maybe his struggle is nearing an end or not. I do not know. I DO know that at this point the goal should be what is the best for your father and what HE wants.

Thinking of you and sending best wishes.....

[Roxanne610]

Hello its 3:50 am cant sleep thank you for your post....I'm trying to be strong and then reality hits and its so difficult....Everyone one knew when I called my aunts I guess they didn't wanna tell me,,I guess they knew how I would re-act...I just feel horrible and I guess I need to gain my thoughts I have no idea I don't even know how I am suppose to feel...

[Chris]

I wish I had some words to say,  some of encouragement, wisdom, or guidance, but I have nothing that comes to mind. I hope the neph is very wrong and that the transplant center gets more  involved with your fathers care.

[Roxanne610]

thank you Chris,,,its the Hep C thats causing havoc,,,Kidneys can be compensated by dialysis, but when you have hep c that is so active and is doing havoc on the new transplanted liver its very very hard...But I'm keeping positive by getting  Milk Thistle I'm not giving up I will fight till the end...

[jessup]

I too have no words of wisdom but............
my heart is full of hope and love for your Dad, you, your Mum and the entire family
Yes it does SUCK that at this time of the year or bugger that any time of the year this shit happens
Just know that I and everyone else pray for you all
I don't know what else to say but 
HAVE FAITH







EDITED:Moved thread to general discussion area-kitkatz,Moderator

[Lucinda]

Hi Roxanne.  I know it is hard but my Dad came back from similar infections time and time again.  They were always saying there was no hope and then he would come back around again.  That went on for years and years.  In the end my father chose his own time and he went very peacefully and at a time where we were ready to accept that he was ready to let go.  If your Dad wants to fight then I am right there fighting with you.  Lots of love, Cindy. xx

[RichardMEL]

Roxanne is there any updates on your dad??? Been thinking about you guys and hoping all is going OK with the struggle...

 

[Roxanne610]

Hello,,

The only update is that his bilirubin is at 10.1 Which is very high...the range is the highest it should be is 1.3...So we are in trouble with that one...I am calling the drs tomorrow and I should know more...Hope everyone is well,,,I think of all of you everyday,,,its just amazes me how nice all of you are.....

[circleNthedrain]

Thinking about you and your Dad Roxanne.  Hope things will soon improve.

[pelagia]

 

[Roxanne610]

Hello,,

I just got back from the emergency room, my mom called me hysterical 9 am this morning my dad fell, he was putting the heat on and then tripped on the piece of wood that divides the room doorways,,,He hit his head on the floor and gashed the top of his hand on his dialysis arm.....     Does it ever friggin end what the heck like my poor father doesnt have enough...

They didnt do stiches it would just tear his skin more...so they did butterfly ones..I feel so bad and sick to my stomach I could throw up ...He couldnt even make it up the steps when he got home, his side is hurting now from the fall to another thing to make him feel worst...

[paul.karen]

:-(
 

[monrein]

Oh Roxanne, I'm so sorry to hear this latest.   

[okarol]

  Poor Dad.   

[breezysummerday]

Hello,,

I just got back from the emergency room, my mom called me hysterical 9 am this morning my dad fell, he was putting the heat on and then tripped on the piece of wood that divides the room doorways

This just tells me how strong he is......the driving force which you have inherited....

[Roxanne610]

Question,,,

The hand that he hurt was all swollen and now it went down seems that the laceration skin tear released fluids so his hand is not that swollen.  Dont know if that is good or bad?

[rose1999]

It really is so hard to see those we love suffer, but he is lucky to have you to care about him...................I hope things improve for him (and consequently for you), you are always in my thoughts, as daughters we are so used to our Dad being the strong one, now it's our turn.  Keep your chin up (as we say in the UK) 

[Sluff]

I wish your Dad would get a break.  Hope you had a nice Christmas with Dad.

[Romona]

 

[breezysummerday]

Skin color is a good indication of circulation.
Also, can he feel his finger tips?  Or no numbness?

I should also explain my earlier post.  Your dad still has
the wherewithall to get up and move.  He may have
hurt himself, but he still wants to do stuff.  How
is Dad now?