They say everything is shutting down

[nursewratchet]

Find out what antibiotic he is on. Make sure they (everyone) washes there hands.  As compromised as his immune system, could have gotten this infection from that.  Keep asking questions, and keep us posted.   

[mikey07840]

  You & your dad are in my prayers... hang in there.

[Roxanne610]

Hello,

Thanks everyone....They have him on Vancomycin excuse me if my spelling is off...His fever went down,  maybe we caught the infection in time we will just have to wait and see. 
His arm is swollen into his hand, they had to give him a morphine shot right in his arm because they said the fistula wasnt working, they are going to see if there is narrowing of the veins and the surgeon who did the surgery is coming in to take a look...Right now the nurse who is in charge of all the nurses (I told you about her Susan) is here changing his dressings..Keep you posted.

ps,,,,he is tiger here trying to get out of a cage....

[paul.karen]

 

Sounds good Roxanne.  Well not good good but you know what i mean.

And if your dad is still being a tiger i assume that is a good sign as well.

Hope all continues to get bettter for your father.
P&K

[Roxanne610]

 ... Staphylococci is the blood infection he has......

[pelagia]

Yes! about the hand washing. Stephen's transplant hospital had signs in every room -- "It's okay to ask - Have you washed?"  My husband and my brother-in-law (his donor) had fun with that one, but it also reminded us all to be vigilant.

[Roxanne610]

Hello,,,

Were home safe and sound the roads were torturous up north..The drs say they want him to stay just to play it safe because his culture is still coming up positive and they wanna get him more dialysis tomorrow neph would prefer them to do it in the hospital because ITS SO SWOLLEN, its not hot to touch and he doesn't feel infection at all, the blood he says is when they take the needles out??  The nurses are more experienced in the hospital and he feels safer with him there for now since the fistula is so young and agarvat ed. 

Guys they are kissing our asses up there    My father says even the nurses are being more nice they must of got in trouble from the Nurse super,,,I raised so much hell up there and I even got them to give him a private room,,   I feel it will help  CUT DOWN ON THE GERMS..  Also I found this special tape its silicone lined and skin friendly,,,so they gave us a prescription for us to be able to get it...If anyone is interested let me know and i could give you the information. Thats all the updates I have for now thanks everyone for staying in touch with me and helping with your caring thoughts and valuable information I APPRECIATE IT SO MUCH...

My prayers are with you all..
Love ,,,
Roxanne
xoxxoxxxooxxo

[cris]

Roxanne,
your Dad's staphs infection was the same thing my Nanay had. Please check the antibiotic resistance test, if they did it. This is very important for you to know. Closely monitor the regular blood test and blood culture they get. You would know if the infection has gone down on the counts. It may be different with your Dad, but when Nanay had the Vancomycin, it was effective only for some days, but didn't really fight the infection. I called up home and got the antibiotic, Tazocin, which had been really effective with Nanay. Please know that we are of different country, this may not be the case in the U.S., and may not be as effective with your Dad.  One effective way that I always beat these doctors is always look up the internet for whatever effects or description of the drug that Nanay was given. You would find out that there is a lot that the doctors, doesn't even care to know about meds. The fistula swelling, it will go down in time, if there is no infection, you should always raise his arm above the head and warm compress also helps. Make sure that the doctors are consulting each other, the neph, the liver specialist, the vascular dr.
I pray your Dad will overcome all this. You are a wonderful daughter!

love,
cris

[Roxanne610]

Thanks Rose I will definately ask the doctors I know it is taking 3 days for the results to come back and that is the test they are doing.  I always know the answer before the question..They are all working together with him,,,I always believe you should be on top of things they are only doctors they are human and make mistakes everyday..  If the vancomycin doesnt take I will ask them about it,, I will mention it before hand though.....

thanks
kisses
xoxoxo

[RichardMEL]

Roxanne this sounds encouraging that they are getting on top of the infection AND treating your dad properly !!!!!! I am so glad have been thinking about you all day and wondering... so I am glad things are starting to look up at least. Fingers crossed over the next few days!!!

hang in there!!!

[okarol]

  Roxanne 

[G-Ma]

  to Rose and Roxanne.

[2_DallasCowboys]

Roxanne,

Thinking aabout you and your Dad and Family = and of course praying for you all

Please let us know how everything is 

Anne

[Roxanne610]

Hello Everyone,,,

My dad had dialysis yesterday and they said his white blood count went up a little which is good they said......They changed his antibiotic to Ancef.  His arm is SO SWOLLEN even his hand there is a black there too....The neph says this all due to the face that the fistual is young and new..it just looks soooooooooooooooo terrible....they said it has a good beat to it, the other day they had to give him a morphine shot in his fistula are because it wasnt working?  Anyone hear of that one? So far he is hanging in its a day by day thing I guess we are just praying for the best....

Thanks everyone big kisses to all of you for caring so much and being there for me...

[willieandwinnie]

Roxanne, we will keep your Dad and your family in our thoughts and prayers. 

[2_DallasCowboys]

roxanne,

Glad to read about the white count.  I have never heard
of a morphine shot into fistula - perhaps someone else can give
you info on that.
My hubby had to have 3 fistulas done, the first two did not  take.
I know how scary access issues are with this condition.
As far as the blackness -  I would not feel too comfortable with it-
keep asking the Drs the cause and what they are doing for it, also
the swelling
will keep praying for you all,
Anne

[idahospud]

you and your family are in my thou ts and parers . in your time of need .  Carol

[Roxanne610]

Hello,,
I just got home from the hospital,,,His hemoglobin has been low he is going to get another transfusion tomorrow with dialysis.  It's so sad to see him so weak.  I guess it's a combination of low hemoglobin,,dialysis, liver, & Hep C..............His arm looks horrible,, i took everyones advice,,,, its not hot to touch,,It,has a good beat (so they say) but I felt it today for the first to it but its swollen into his hand...the vascular surgeon came in to check it and he says its fine...I don't know guys he so weak and its so sad for it to be like this and on top of it its Christmas 

[RichardMEL]

gee must be serious if they're giving him a transfusion. Is he on EPO as well?

hang in there R.. you have to trust that all the experts are looking at it and proclaim it is OK despite looking horrible... hopefully it will calm down soon and return to normal and your dad will feel better....

 

[Bajanne]

i am so sorry that you are going through this at this time.  My caring thoughts and prayers are with you all.    I am really hoping to hear better news very soon.  

[Roxanne610]

    I dont know guys,,,,its so sad

[RichardMEL]

hang in there Roxanne.. what your dad needs from you most now is for you to stay as positive as you can. Inside you may be scared and your heart breaking but he needs you to be strong and supportive of him when you see him. Remember everyone is saying he is doing ok and improving despite how it looks.... have some faith sweetie.... things will come good I am sure of it!!! I am putting my "christmas wish" towards your dad!!!!

 

[kidney4traci]

amen honey, hang in there.  I am sure his doctors have seen this before and know what they are doing.  Keep the faith and be positive around him!!    for you

[Roxanne610]

Hello everyone,,

They let my dad out of the hospital,,he hated being there I dont know if this was the best move, but I guess better than being in there with all the germs..He is very weak, today he had another blood transfusion, his hemogloban is low anyone familiar with that?  Is that from dialysis?  All his blood work is messed up mainly there concerned with the liver levels...So the drs said dont leave him alone for long, and any diarrea or fever go to the emergency room...Thanks everyone for the prayers and kind words I appreciate it...I wish everyone a peaceful holiday....
You are the best everyone of you ,,,,you are so kind..

xoxoxoxo

[Sluff]

I just hope you have a good Christmas together with your Dad.