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Author Topic: They say everything is shutting down  (Read 39772 times)
Roxanne610
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I just dont know anymore!!!

« on: December 18, 2008, 01:11:01 PM »

Hello everyone
Im at the hospital and they are saying they are scared for my fathers like.  he has a blood infection,,,Grandpas cockseye,,,sounds like that...dont knw what it really is called....Can this be caused by his fistula?








EDITED:Topics merged-Kitkatz,Moderator
« Last Edit: December 18, 2008, 07:34:20 PM by kitkatz » Logged

My DAD:
Cirrohsis at 32 from Hepatitis C,,,,50 Liver Failure from Hep C, 52 Liver Transplant, 2000 Lymphoma from Anti Rejection Meds treated and has been fine. 
Present:  Kidney failure from Meds for the liver transplant
Hepatitis C is very very active which is damaging the liver they are worried that he may need a liver transplant to, but until he is strong enough to get the liver biopsy.  And now he is hit with blood infection that he caught in the hospital ( i feel from nurses being not gentle enough with him)....
Started Dialysis Nov 08...Just waiting to see what the miserable Hep C disease is doing to our liver before we can even think about a kidney transplant!!!! :(

Roxanne  :(
My prayers and thoughts are with everyone!!!
nursewratchet
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« Reply #1 on: December 18, 2008, 02:07:39 PM »

Gram positive Cocci,  There are Gram positive, and Gram negative bacteria.  Just determines the kind of antibiotic it will be treated by.  Usually very treatable.  Could be from the fistula, or respiratory, urinary or wound.  Would definatley be a catheter, if he had one.  Not usually a fistula.  Good Luck , and keep us posted. 
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Roxanne610
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I just dont know anymore!!!

« Reply #2 on: December 18, 2008, 02:15:56 PM »

Yes thats what it is ............but......since he has a liver transplant with a supressed immune system they told us its very dangerous!!!!!!!!!!!!!  The do have him on anitbiotics, they are waiting to find out what strain it is....of that
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My DAD:
Cirrohsis at 32 from Hepatitis C,,,,50 Liver Failure from Hep C, 52 Liver Transplant, 2000 Lymphoma from Anti Rejection Meds treated and has been fine. 
Present:  Kidney failure from Meds for the liver transplant
Hepatitis C is very very active which is damaging the liver they are worried that he may need a liver transplant to, but until he is strong enough to get the liver biopsy.  And now he is hit with blood infection that he caught in the hospital ( i feel from nurses being not gentle enough with him)....
Started Dialysis Nov 08...Just waiting to see what the miserable Hep C disease is doing to our liver before we can even think about a kidney transplant!!!! :(

Roxanne  :(
My prayers and thoughts are with everyone!!!
boxman55
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« Reply #3 on: December 18, 2008, 02:37:52 PM »

Hang in there my thoughts are with you and your father...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
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« Reply #4 on: December 18, 2008, 04:21:50 PM »

 :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
circleNthedrain
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« Reply #5 on: December 18, 2008, 05:13:02 PM »

Roxanne, you and your Dad are in my prayers.

Nursewratchet,  Thanks for your helpful posts.
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
jessup
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« Reply #6 on: December 18, 2008, 05:15:49 PM »

Lots of love and  :bestwishes;
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RichardMEL
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« Reply #7 on: December 18, 2008, 06:20:54 PM »

thinking of you hun! Hope your dad will be ok!!

 :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Roxanne610
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I just dont know anymore!!!

« Reply #8 on: December 18, 2008, 07:26:32 PM »

the doctors say they fear for his life.........levels are dropping they are seeing what strain it is to the Gram positive cocci however you spell it.  we have troubles because he has the liver transplant so his immune system has to be suppressed so these antibiotics that they will use can damage our liver were damned if we do and damned if we don't.  we are in such dispair if we lose him to an infection that he caught that will be devastating and not the way we should of lost him....any words of knowledge will help.

also his arm is very swollen now down to his hand,,they say it could of been infiltration or the vein is clogged...we are so worried you can even imagine,,,,i cant even stay in my own skin
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My DAD:
Cirrohsis at 32 from Hepatitis C,,,,50 Liver Failure from Hep C, 52 Liver Transplant, 2000 Lymphoma from Anti Rejection Meds treated and has been fine. 
Present:  Kidney failure from Meds for the liver transplant
Hepatitis C is very very active which is damaging the liver they are worried that he may need a liver transplant to, but until he is strong enough to get the liver biopsy.  And now he is hit with blood infection that he caught in the hospital ( i feel from nurses being not gentle enough with him)....
Started Dialysis Nov 08...Just waiting to see what the miserable Hep C disease is doing to our liver before we can even think about a kidney transplant!!!! :(

Roxanne  :(
My prayers and thoughts are with everyone!!!
RichardMEL
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« Reply #9 on: December 18, 2008, 07:35:59 PM »

 :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;

all of us are hoping for the best outcome here hun!

 :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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« Reply #10 on: December 18, 2008, 07:38:05 PM »

 :grouphug;
I hope your Dad can beat this. Our prayers are with you.

Alene and Rolando
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« Reply #11 on: December 18, 2008, 08:01:59 PM »

 :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cris
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« Reply #12 on: December 18, 2008, 08:27:44 PM »

Roxanne,
we have been exactly in the same situation about what antibiotics to give to kill the infection in the blood which could not harm the liver. Nanay's neph and her liver specialist had it configured. Please have your drs. confer and insist on knowing everything. They gave her a shot of strong antibiotic for 5 days, it's an IV antibiotic, and when the infection had gone done, they started treating her liver, all at the same time. Nanay turned really very green-yellowish in color, bone and skin, but we pray to God, she is all well now.
love,
cris
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« Reply #13 on: December 18, 2008, 09:04:00 PM »

We will keep your family and your Dad in prayer for strength to pull through this, and mostly for you the hope to keep positive thoughts.  :grouphug;
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Bajanne
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« Reply #14 on: December 18, 2008, 09:46:13 PM »

Please know that our caring thoughts and prayers are with you all the way. :grouphug;
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I LOVE  my IHD family! :grouphug;
Roxanne610
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I just dont know anymore!!!

« Reply #15 on: December 18, 2008, 10:19:30 PM »

Its 12:51 east coast time,,,,,On Thursday nite worrying my head off, we got home from the hospital and are goin back up early morning,,,we need to pray that even though he has so many other problems,,,hep c is active, liver transplant levels are not normal, hemoglobin, white and red blood cells and his kidney failure that he can beat this!!!!!!!  His Neph said he is scared for his life!!!!

He is mad he has to be there,,my just told him tonite about the blood infection dont think he knows how serious and right now he just doesnt wanna talk....He had to get this infection because of the times the nurses put the wrong needle in, and the dialysis nurse ripped his taping when he told her not too he had a puddle of blood in his bed.  I did go to the Head Nurse of the hospital and told her how reckless the nurses were with him.  Causing two friggin open wounds, as I have said what they did in my previous posts....She visited our room changed his dressing said she will be the only one removing his paper tape.....She will investigate the reasons this happened like this and will have an answer tomorrow........ITS TO p*ckING LATE though!!!!  I am so mad right now I wanna see the both nurses who did this too and I want an explanation I cant wait to hear what they have to say!!!! Assholes!!!!!This is just so disgusting if we lose him to a blood infection and not for the reasons he is sick.

Words cant describe how I feel,,,its indescribable the hurt you feel,,,the hardest cry doesnt meausre how I feel...
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My DAD:
Cirrohsis at 32 from Hepatitis C,,,,50 Liver Failure from Hep C, 52 Liver Transplant, 2000 Lymphoma from Anti Rejection Meds treated and has been fine. 
Present:  Kidney failure from Meds for the liver transplant
Hepatitis C is very very active which is damaging the liver they are worried that he may need a liver transplant to, but until he is strong enough to get the liver biopsy.  And now he is hit with blood infection that he caught in the hospital ( i feel from nurses being not gentle enough with him)....
Started Dialysis Nov 08...Just waiting to see what the miserable Hep C disease is doing to our liver before we can even think about a kidney transplant!!!! :(

Roxanne  :(
My prayers and thoughts are with everyone!!!
Mimi
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« Reply #16 on: December 18, 2008, 10:38:38 PM »

My prayers and cares are with you and your family.
Keep us posted.

Love, Mmi
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jessup
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« Reply #17 on: December 18, 2008, 10:52:26 PM »

Hey mate
I have tears in my eyes and in my heart
I too am worried
But you know what - we never know
And faith and love is what counts

Lots of love to you, your Dad and the entire family
Lots of prayers and positive thoughts too
 :flower; :flower; :flower;
 :grouphug;

Oh and for the fuc%#en idiot nurses and staff
 :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik;
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rose1999
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« Reply #18 on: December 18, 2008, 11:01:46 PM »

Roxanne, hang on in there.  I felt just like you did on Monday, I was too upset and scared to post about it but my Dad too was in hospital (rushed by ambulance) and I didn't think he'd make it to the next morning, but he's home now and although very poorly I can see he is on the mend very very slowly.  This too was the fault of the hospital who should have changed his line last week but messed him about and sent him home and I'm so angry about that as well as worried so I kind of know how you feel. 

I hope things can turn around for your Dad, I will keep you all in my thoughts and prayers.  Don't ever give up hope.

Sending love from one daughter to another  :grouphug;
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« Reply #19 on: December 18, 2008, 11:22:48 PM »


Roxanne,
Just wanted to check on you before I go to bed. Thinking about you and sending lots of hugs and support.

 :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #20 on: December 18, 2008, 11:26:04 PM »

 :grouphug;
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June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Roxanne610
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I just dont know anymore!!!

« Reply #21 on: December 19, 2008, 12:00:26 AM »

THANKS EVERYONE I APPRECIATE IT.....ITS SO HARD...WE HAVE SO MANY THINGS AGAINST US BEFORE EVEN THIS HAPPENING... I will keep everyone posted will bring my laptop to the hospital going early in the morning,,,there is suppose to be  a snow storm tomorrow hows that???  Just our luck i have a 2005 Mercedes ML350 fourmatic so we should be safe but it doesnt matter what you have when theres ice.....
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My DAD:
Cirrohsis at 32 from Hepatitis C,,,,50 Liver Failure from Hep C, 52 Liver Transplant, 2000 Lymphoma from Anti Rejection Meds treated and has been fine. 
Present:  Kidney failure from Meds for the liver transplant
Hepatitis C is very very active which is damaging the liver they are worried that he may need a liver transplant to, but until he is strong enough to get the liver biopsy.  And now he is hit with blood infection that he caught in the hospital ( i feel from nurses being not gentle enough with him)....
Started Dialysis Nov 08...Just waiting to see what the miserable Hep C disease is doing to our liver before we can even think about a kidney transplant!!!! :(

Roxanne  :(
My prayers and thoughts are with everyone!!!
2_DallasCowboys
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« Reply #22 on: December 19, 2008, 03:31:16 AM »

Roxanne,
Just now reading these posts.  I feel so very badly for
what you are going thru, and I can just imagine your
anger, and feeling how needless this was!
Please know you are in my thoughts and prayers, as is
all your family.
Also, the weather up north NJ is supposed to be very bad-
plse be very c areful!

Anne
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monrein
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« Reply #23 on: December 19, 2008, 05:39:01 AM »

Hi Roxanne
I'll be thinking about you all day today and of course praying that they can do whatever it takes to get your Dad well.  I also want YOU to be super super careful driving to the hospital and back today.  I say this especially because of how upsetting the whole situation with your Dad is and I worry that you'll be preoccupied as you drive.  Take care girl!!!   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #24 on: December 19, 2008, 06:37:02 AM »

Roxanne - It seems that you are strong.  You can help you dad fight for his health.  I can tell from what you've written that you are trying to be as informed as possible and to make sure those docs are paying attention and thinking about the options/alternatives.  Keep asking them questions -- they are humans too and they can make mistakes.  The more questions you ask, the more it will make them think about what they are doing and the less chance they will miss something.  I'll be praying for all the daughters and fathers out there today.  :grouphug; 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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