They say everything is shutting down

[okarol]

Hospice care could be very helpful now. It is a difficult topic and I am glad nursewratchet brought it up. Roxanne, you may want to ask your dad's doctor's if they feel it's necessary at this time. Hospice can provide care and comfort and the support for the family is also incredible. It it isn't necessary for him to have hospice the doctor's will let you know.

[Roxanne610]

Hello,,

Thanks for the comments,,I never knew hospice was for that also.. My mom is taking care of him,,,he just is in a tough spot due to his fall..He was alot better before that.  He is just so sore from ii,,,he was weak prior to it and now the fall just made it worst....He ate a little bit yesterday tomorrow we are going to get his false teeth fixed we are hoping they can fix them so that he will be able to chew,,with no teeth its very hard to eat anything.  Im gonna make him some rice and beans he likes that,,,and I think it will be easy to eat. 

They still have him blood cleaning in dialysis ,,,he still pees so they said to just watch out for shortness of breath...He will go tomorrow for dialysis he has to,,im hoping to see an improvement when I go by there today...

[RichardMEL]

Yes the shortness of breath would indicate fluid overload (fluid around the lungs etc) and that would not be a good thing. It's good he still pees that would help with what little he's drinking, but it's important to watch the fluid levels and check for swelling in ankles etc.

[kidney4traci]

Still thinking of you...   

[Bajanne]

Just to let you know that my caring thoughts are still with you, your dad and your family. 

[Roxanne610]

Hey guys, I just got home from the hospital its 515, my brother stayed with my mom he's gonna leave in the morning I came home so I can drop off my aunt...BAD BAD,,really bad news....

We finally got my father to dialysis today what a struggle he could hardly walk and was moaning the whole time,,,which is not my dad he is tough I saw him go through a transplant with no complaints  So he was in serious pain...His stomach hurt on the way to dialysis and just got worst which we thought maybe the ribs from the fall. So we rushed him to the emergency room right from dialysis.  His dialysis was cut short 20 minutes cause he moved his arm and he was bleeding all over...So our neighbor got the ambulance and was able to take up to Livingston the hospital he always goes too...

 Well they told us that his liver is enlarged and lots of fluid and in his chest,,,due to liver failure his ammonia level is starting to climb up and on top of it he has pneumonia in his right lung.. They gave him a pain shot and when he woke up out of it he was really disorientated...I drove home in a fog like im in a bad bad dream and this is not happening to my dad or my family....I dont wanna lose him I love him so much and it is killing me inside to see him so sick.  Today when they did the EKG I saw him with no shirt on and he looks anorexic hes emaciated it is so heartbreaking that this is my dad he was such a strong man and now he cant even walk and hardly talk...Guys im soooooooooooooo upset,,,my mom is devastated my brother its terrible..

I wanted to post to you guys sooner but for the last days before this I was in a state of depression so you can imagine how I am now...

I will keep you posted I will take my computer to the hospital tomorrow

Hope all of you are well,,
xooxox

[RichardMEL]

Gee Roxanne that's really tough for you. I'm so sorry. Unfortunately the build up of fluid is one thing that worried me about him missing dialysis the other day. I hope they managed to take SOME off during his session, though it sounds like there was still a lot there if they checked him when he went to ER afterwards. It does all seem to be mounting up against him I'm afraid. Let us hope the folks at the hospital can do something to at the very least alieviate his pain and suffering while he struggles.

 

[Roxanne610]

PS..........Any input will be helpful regarding the fluid and the enlarged liver, if you dont remove fluids as they havent in dialysis saying there is none,,,could this back up into your liver and chest,,,and also cause pneomonia,,,if anyone has experienced this or knows please let me know..if the doctors dont feel as if it can i want proof to show them...

thanks

[pelagia]

Roxanne, I can't offer any insights on the symptoms.  I am sorry that your dad is suffering.  I hope that he will pull through.  It seems that right now it is very important to make him comfortable.  Were you able to ask about the hospice care?  I'll be keeping your family in my thoughts and prayers today. 

[nursewratchet]

Roxanne,  I'm so sorry for ya'll,  we know how hard this is. If his Ammonia levels are climbing, he will start to be confused and disoriented.  That is normal.  Also, they can get more fluid off if they give him some Albumin with his dialsysis.  It is a liquid, infused during treatment.  It will cause fluid to "shift" from spaces that it shouldn't be in, to the vascular system, so that it can be removed.  Ask them about it.  I wish you would ask about Hospice, it would really be a help to you all.  Keep us posted. 

[paddbear0000]

Roxanne, I can't offer any information, but I just wanted to let you know that I am still thinking of you and your Dad. 

[Roxanne610]

Hello,,
I told my mom about the nurse we are definately gonna have to do something when he gets home if he is not mobile...Today was a very hard day beyond words...He was very emotional today I walked in the room from getting him ice water,,my brother my mom were in the room and all of a sudden the lights were off.  I said whats the matter?  My brother whispered he's crying,,so I walked over to him and put my hand on his shoulder and said Dads whats the matter??  He said Rox I dont want you guys to be sitting here worried about me its not fair, I love you all too much I dont want you to be worried about me.  I said Dad we love you and you would do the same for us.  My brother and mother walked out of the room sobbing,,I held him and said Dad your going to  get better you will see...He said Rox I dont wanna die I said your not gonna die Dad you just have pnemonia and we caught it in time...He was sobbing and saying how he wasnt a good father,,I said what are you talking about look at me and steven we are who we are because of you and we love you so very much your the best father anyone can have!!!!!!!!!!!!! He said look at me I cant even look in the mirror do you see what I look like? I cant even do anything for myself,,,, I cant I was just holding him the whole time crying with him...as im crying right now reliving it...This was the sadest and hardest thing today that I had to go through with father..   This is such a hard thing to go through I dont wish it on my worst enemy there are no words to see your father suffer and to be so sad....Were in the hospital and sleepin here my mom and me are laying on strechers where I wish they would wheel me away put me in a room and medicate me,,the pain is so hard that im feeling right now I wanna jump right out of my skin....

[RichardMEL]

*tight hugs for you Roxanne*

not sure what else to say at this point. It is obviously very painful for you and your dad (and your family too). Your hope will help I am sure. Hang in there you are so dedicated and loving and whatever happens your dad knows this. Remember you have and are doing all you can for him. Nobody could expect or ask for more.

 

[G-Ma]

I'm so glad to hear that you are able to talk to each other.  When going through something like this communication is so very important in a family. I pray for strength for you and your family.
Ann

[okarol]

  I am crying with you - watching someone we love suffer and then feel like a burden on top of it all is so difficult. He's lucky to have a loving family.
Sending prayers and love your way Roxanne. 

[2_DallasCowboys]

Roxanne,

Thinking and praying for your Dad, you and your family!

Many of us here have been thru very difficult times, and your
pain and nervousness is well understood.  Please know you
and yours are in my thoughts and prayers

Anne from NJ

[Chris]

There are so many things to say  and complain about doctors, but I digress. Sorry to hear how things are going with your father in the last week. I hope that he will improve.

Try to get some rest and relax, even though that maybe hard.

Chris

[jessup]

Oh my dear mate
It is so heart wrenching and I too have tears for you, your Dad, Mum and bro
It makes me think of my Dad and how he is coping - it rips you apart
I have no words of wisdom but to say
I know exactly how you feel.  Watching our Dads suffer sucks
There are many days that make me wonder WHY but then I find strength to ensure that my time with Dad is all it can be.
It is extremely hard to see our loved Dads cry especially when they have always been the ones who were strong and there for us when we had problems, fears etc.
Please cherish everyday with your Dad, share the tears, laughter, love
I have faith that your Dad will get better, just like my Dad
It's friggin hard but you and your family, and especially your Dad are strong buggers
Lots of love to you all
 

[willieandwinnie]

  Roxanne

[lola]

 

[monrein]

   
 

[Roxanne610]

Hi this is not Roxanne.  I am her Aunt.  She have me her sign on so I can read everything.  I had to respond to all of you because you have been so wonderful to her.  Let me tell you about Roxanne.  Not only is she the most caring, loving daughter which goes beyond words, but she is the most caring person to all she loves.  And as she has said to me..."When I love, I love with all my heart."  What daughter would take her Dad to China with her on a business trip.  She has such a wonderful memory of their time together, as well as her Dad. 

Roxanne is my niece and I don't know how I would have made it without her.  I lost my almost 18 year old daughter 14 years ago and she was there for me hook, line and sinker.  She called me continuously, visited me, took me shopping etc.  Just to get me out of the house. I love this girl with all my heart.  Steve, her dad, my brother in law is the strongest man I have ever met not to mention kind and loving under that tough posterior.  He is the brother my husband never had.  Our whole family is affected by his progress or lack of.  We are all heart sick with emotion.  Arlene, Roxanne's Mom is like a sister to me and it breaks my heart to have them go through this.  They are the most caring group of family and I am so blessed to have them in my life. I struggle every day but this isn't about me. 

Keep Them in your prays...Arlene, Steve, Roxanne and Stephen.  I don't know how they will get through this. Arlene has been a care-giver to her mom, who has died at 57 from cancer, Her father in law and Steve her husband of 44 years.  (Roxanne's Dad.)  Not to mention to me...to help me through my depression as well as Roxanne who I love like my daughter.  You can only read her words...but I see the torment in her eyes and hear it in her voice.

Blessings to you all.  I just was compelled to write. 

Paula...Roxanne's Aunt

[monrein]

Paula, thanks for taking the time to tell us more about Roxanne.  It's so nice to hear of your family's mutual support of each other and I had already guessed at Roxanne's loving, caring nature.  My thoughts and prayers are with you all as you navigate this painful, stressful time.   

[del]

   to Roxanne and her family 

[okarol]

  Thank you for stopping in Paula. Prayers are sent.
Roanne, we know you're a special person and a wonderful daughter, how nice of your aunt to tell us even more. Take care.