They say everything is shutting down

[Roxanne610]

I will try it will be hard,,I guess the best I can have due to the circumstances...

[okarol]

I bet this is so tough for you Roxanne, but I hope your dad does ok at home and gets some rest.
Best wishes to you! 

[cris]

Roxanne,
the blood transfusion will make your Dad better. Keep encouraging your Dad and your family. Is he still on antibiotic? He must have improved, otherwise the drs. will not discharge him out of the hospital.
Keep your faith up. Your Dad and your family is in my nightly prayers.

love,
cris

[circleNthedrain]

Hi Roxanne, hopefully your Dad will improve now that he's home.  At least he can get some rest.  Most dialysis patients have low hemoglobin and are given a drug called EPO.  It will usually eliminate the need for blood transfusions.  It can take a few weeks for EPO to bring hemoglobin to an acceptable level.  Hang in there Roxanne!

[G-Ma]

Low hemoglobin is my middle name, have no clue why, epo and transfusions are the constant.  Hang in there.
Ann

[pelagia]

 

[monrein]

Most of us have low haemoglobin Roxanne.  It's a very common side effect of ESRD.  We get Epo and sometimes transfusions to bring it up.

Enjoy the holidays with your family.  Not an easy task given the circumstances but I hope you'll try and that you can relax a bit at least.   

[RichardMEL]

agree with everyone re hemoglobin. EPO (or aranesp) is usually perscribed to up the hemoglobin rate. I don't know of any dialysis patient who isn't on it. In the meantime the transfusions should help up his levels and sort him out.

Best wishes to you all for a Christmas spent together and NOT in the hospital!!! 

[Roxanne610]

Hello,,,,,
We had dialysis today,,,,it went welll with the nurses but HE IS SO VERY VERY WEAK...His color is grey looking and his eyes cloudy,,,and I belive jaundice is setting in cause his eyes have a tint of yellow that has to be the Heptatiis C,,,the Dr's are worried that its causing damage to his liver and if the worst case scenario he would need a liver transplant too on top of a kidney Pittsburgh where he got his original transplant said they would do it....but we are so far away from that because this damn frigin hep c is active and u just dont know when it will go inactive , I dont believe anyone would do a transplant with that active....I have to call about our appointment January 5th...see if its worth heading out to...     

His legs are very weak too anyone experience that..Not cramps weak where we have to help them walk to the car and has to lift his legs to make them move thats how weak he feels in his legs....Any advice?

Well everyone try to have a Merry Merry Christmas I wish all of you a peaceful Christmas....

[Roxanne610]

Hey guys one more thing I wanted to give you some blood results.......Billirubin is 7.4....Which is very bad!!!!   Bun is....28.   Creatine...... 3.80 
There is no need for renal diet those particular levels are fine...  Any thoughts feel free....

xooxox

[cris]

Roxanne,
Nanay's Billirubin shoot up to 3x the normal because of fluid overload. She was given a "celemine" bath, a liver vitamin everytime she was on dialysis, plus she took maintenance tablets for her liver. Tho, she hasn't been transplanted. When all the fluids had gone down, her liver started to heal, it took months, before her color improved.
I am still praying for your Dad. I can feel you.
love,
cris

[Roxanne610]

Hi Cris,

Thanks for the email...your in my prayers to...its a horrible thing were going through,,,now your nannay???  Who is that your mom or gradma?     

Our disgusting problem is that hepatitis C....Its doing a number on him right now....its at 50 million viral load wich is very high and since its a transplanted liver it will damage it alot faster than our own liver..Im going to start him on Milk thistle (liversupport.com) I had my dad on it 12 years ago before the liver transplant and we had great success on it for his liver levels he had NO JAUNDICE, OR EXTREME FATIGUE, LOSS OF APPETITE it helps protect the liver and speed up rejunvenation of that organ..I saw with my own two eyes how it helps the liver so I am going to start him on that asap, I just ordered theres from that website..From all my research that one has the most benficial properties....

For anyone who takes alot of medicines, advil, any prescriptions drugs it protects the liver from not getting toxic from the RX's...I really wish I would of given my dad it back again after his transplant but I didnt know that the meds he takes damages the kidneys..    But its never too late I will tell everyone the updates on the effects..Im confident that it will I know that Germany has it approved for pharmaceutical use...Our country needs to concentrate on more of the cause then just constant medicines...

[cris]

Roxanne, Nanay is a filipino word for Mom.
Nanay had 30 million bacterias, it was treated with antibiotics for 10 days and the celemine bath and frequent dialysis to dry up the liver from excess fluids. This one's really slow to heal. Nanay even went out of her mind during that time. Psychologist said because of high imbalances that affects the brain. She was bone and skin.
Surely your love is one great thing that's holding your Dad and Mom. Keep on Roxanne, you are not alone on this.

lots of prayers,
cris

[kidney4traci]

Phosphatidyl Chloline is very good for liver, just a thought.  It is a complex Omega 6 to Omega 3 at a 4:1 ratio is best.  Look at BodyBio, you may be able to order online.  I had Hep C and it helps.  Other than that, lots of hugs to you dear!!

[Roxanne610]

Hello,,,
Thanks everyone for your comments and help through all this....Today I brought him a lobster tail, (his favorite)    had a little little piece of flounder,,a hard boiled egg which made us happy to see him eat a little we have to get his false teeth fixed because that is making him hard to eat also, he said maybe he will be able to eat more with them fixed...

Question??? His legs are hard to move no strength in them, anyone know what this could be caused be? 

I wish everyone a beautiful peaceful Christmas...xoxoxoxo

 
Thanks for all the support I appreciate it through this scary road were in...
xoxoxoxoxo

[Jess21]

Good to hear he's eating!
His leg muscled may be atrophied..when I was in the hospital for 10 days I could barely walk 50ft without sitting down.  The muscles just wear down when we don't use them.  As long as he gets walking around surely but safely it should be fine!

[Roxanne610]

Thank you for your post,,,I will check that out..Yes he is eating little bits which is better than nothing....

Have a Merry Christmas
Thank you
xoxo

[Roxanne610]

atrophied I just read and omg that scares me if its that, cause it could be caused by kidney and liver disease both he has that can cause muscle damage to the lower limbs  I  pray its just from the 10 days in the hospital,,,its been two days and no sign of improvement....I will die if its that

[Bajanne]

Please don't 'die', your dad needs you very much.  My caring thoughts and prayers are with you as you go through this challenge.

[cris]

Roxanne,
today at the Christmas Mass, I asked for your Dad's recovery if only because of your overwhelming love.
Eating the egg white of the hard boiled egg will help reduce the fluid fast. Exercise his legs, move it, feeling weak, stiff and wobbly for a while but with your indulgence to exercise it, he will regain his strength.

love,
cris

[RichardMEL]

Yes Roxanne we're all thinking of you and sending our wishes. I thought of you and your dad today on Christmas. My best wishes for his continued improvement - it is really good that he is eating - even if but little bits... this is a positive sign I think.

I think you need to talk to the experts - the docs - about his legs and see what they say.

hang in there.. it's a rocky road but know you have so many of us on your side!!!! Right now I want your dad to get better even more than I want a transplant call for me. I am totally serious with that wish.

 

[Jess21]

Have you ever just sat around all day and then gotten up and your legs were tired/weak?  That's really what happens, except after all that time in the hospital the muscles get really weak.  It took me several weeks til my legs were "normal" again.

[Roxanne610]

My brother just told me that the neph dr told him that my dad doesnt have long he said this Monday when they were releasing him from the hospital.    I am upset and disturbed by this comment...He is not a liver specialist no lvier biobsy was done,,,Yes his liver levels are going up but if we make him stronger Pittsburgh where he got his liver transplant said they would do a transplant.  the kidneys will be fine on dialysis right and he wll get stronger just from that alone....We just have to pray that this hep c goes away and stops damaging the liver, I am putting in on that Milk Thistle.............. Germany has it now in Pharmacy and they use it as a treatment for liver disease and Hep C.  This is just disgusting on Christmas I read everyones comments to my mom and we just crying reading all the kind thoughts of everyone...Thanks again...

[nursewratchet]

Roxanne,  i hate that this is your Christmas.  We will all die, you and I included, but your Dad's Dr., nor mine know when for any of us.  We are all on "the same list", who knows when it will be.  Hope you stay positive through the holidays.   

[2_DallasCowboys]

Roxanne,

Please know that I am thinking and praying
for your Dad, and all your family

Please try and stay strong, I do know how
hard that can be.  Also, try to stay positive
for your Dad, also your Mom

Anne