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Subject Started by Replies Views Last post
Public Comment: Deceased donor initiated KPD chains okarol 0 32 Last post August 11, 2017, 11:47:15 PM
by okarol
Anyone PERSONALLY know anyone in advocacy in San Francisco area? CW 1 365 Last post January 15, 2017, 12:26:08 PM
by Michael Murphy
House GOP eyeing major Medicare overhaul in 2017 Bill Peckham 21 935 Last post December 14, 2016, 05:44:36 PM
by Simon Dog
Patients influencing quality of care hatedialysis2 10 955 Last post May 16, 2016, 05:11:25 PM
by Simon Dog
Announcement: 10th ANNUAL CKD/ESRD Patient Education & Awards Luncheon in NYC SugarBear 1 493 Last post October 28, 2015, 05:19:39 PM
by Zach
AAKP's 41st Annual Meeting Sept. 25-27 in Nashville noahvale 4 526 Last post September 15, 2015, 05:16:08 AM
by noahvale
You can provide input into the development of new devices for kidney patients Zach 0 383 Last post August 07, 2015, 11:19:46 AM
by Zach
Understanding Patients’ Preferences: Stimulating Medical Device Development Zach 0 557 Last post June 15, 2015, 07:28:23 PM
by Zach
Where is the research advocacy? Bill Peckham 16 3311 Last post April 23, 2015, 08:53:14 PM
by PrimeTimer
Have an Impact: U.S. Dialysis Center Standards Up for Revision Zach 5 1622 Last post April 13, 2015, 06:15:53 AM
by Zach
*** Webinar on Latest Dialysis Practice Monitor Data *** Zach 2 2076 Last post April 13, 2015, 06:08:27 AM
by Zach
Call to Action via NKF re proposed Commisioning. Act Now JW77 9 1285 Last post January 29, 2015, 02:30:51 PM
by okarol
Home Dialyzors United, Indiana University Team Up to Present “The Road Home” Zach 0 815 Last post August 31, 2014, 06:01:13 PM
by Zach
HELP: Pushing My Gov to Allow the Concept of [WAITING-LIST] nsdq 2 844 Last post July 07, 2014, 10:41:30 AM
by SooMK
the nerve of people mistreating the elderly patients, amoung others... gothiclovemonkey 9 1941 Last post May 16, 2014, 06:50:14 PM
by Charlie B53
How can I help stuman413 2 1382 Last post January 29, 2014, 01:50:42 PM
by cassandra
*** August 19, 2013 Deadline for ESRD Patient Comments on Quality Care *** Zach 0 1776 Last post August 11, 2013, 05:11:01 AM
by Zach
Please support lifetime Medicare Coverage for transplant drugs noahvale 8 4879 Last post April 10, 2013, 07:39:35 PM
by Bill Peckham
Obama cuts to Medicare Whamo 14 3179 Last post April 06, 2013, 06:51:04 PM
by Bill Peckham
S 323 and H.R. 1325 should not be supported Bill Peckham 5 2877 Last post March 31, 2013, 06:25:12 PM
by Speedy1wrc
Living Kidney Donation and Sharing Your Story (Free Talk) EndPKD 0 1753 Last post March 08, 2013, 05:59:44 PM
by EndPKD
It's always either cops or cancer MooseMom 3 2227 Last post January 05, 2013, 06:17:36 PM
by boswife
Kidney Patients & Physicians Team-Up for Hill Day Visits Zach 1 2931 Last post December 22, 2012, 07:02:01 AM
by Dgayle
RSN bracelets honoring our Okarol! MooseMom 6 3059 Last post November 05, 2012, 01:40:24 AM
by natnnnat
ProPublica launches a new patient safety section okarol 0 2633 Last post September 24, 2012, 01:24:23 AM
by okarol
Join AAKP at its 39th Annual Patient Meeting August 9-11, 2012 in Atlanta, GA! Zach 3 3261 Last post August 03, 2012, 10:22:52 AM
by noahvale
Outdated or no? MooseMom 11 4173 Last post May 12, 2012, 05:43:05 PM
by MooseMom
Which charity to donate to? cattlekid 11 4620 Last post May 12, 2012, 11:04:50 AM
by smcd23
New blog post from DaVita CMO on quality of life cattlekid 5 3641 Last post May 09, 2012, 08:01:40 PM
by dialysisadvocate
Questions dialysisadvocate 15 4627 Last post May 09, 2012, 07:50:48 PM
by dialysisadvocate
AHA proposed Meaningful Use Stage 2: a month to provide hospital discharge info natnnnat 0 3220 Last post May 02, 2012, 08:50:45 PM
by natnnnat
DSEN: Deeply confused New York Times article is a disservice to dialyzors Zach 5 4856 Last post April 27, 2012, 12:39:00 PM
by MomoMcSleepy
OPTN: Public comment is needed on these current proposals okarol 0 3497 Last post March 16, 2012, 11:13:41 AM
by okarol
March is National Kidney Month Zach 1 3631 Last post March 02, 2012, 09:12:10 AM
by Rerun
Panel discussion about Dialysis Sept. 4, 2011 - Hamilton, ON, Canada EndPKD 2 4182 Last post February 27, 2012, 05:22:00 PM
by EndPKD
Adventures on E-bay (yes, this is advocacy!) Meinuk 5 4850 Last post January 05, 2012, 05:51:49 AM
by Meinuk
UNOS: Policy Proposals Issued for Public Comment okarol 0 4157 Last post September 24, 2011, 02:50:48 PM
by okarol
QIP should establish a new CPM: Hgb +/- 10% of MCP Physician target Hgb Bill Peckham 0 4126 Last post August 28, 2011, 06:25:59 PM
by Bill Peckham
2nd Annual NxStageUsers Meet-Up and Conference M3Riddler 0 4146 Last post August 20, 2011, 02:13:13 PM
by M3Riddler
Transplant Recipients International Organization rsudock 0 4139 Last post June 26, 2011, 11:27:45 AM
by rsudock
Free lapel pins - organ donation - April is National Donate Life Month « 1 2 » okarol 42 22324 Last post June 08, 2011, 12:08:05 PM
by okarol
Philadelphia, Detroit and Washington, D.C. Free Lunch & Learn Seminar okarol 0 4629 Last post April 28, 2011, 08:53:48 AM
by okarol
NxStageUsers Announces 2nd Annual Meet-Up and Conference M3Riddler 0 4195 Last post April 12, 2011, 06:57:03 PM
by M3Riddler
QUESTIONS FOR THE CONGRESSMAN MooseMom 8 5256 Last post March 18, 2011, 10:35:29 PM
by okarol
Are you looking for ways to educate others about kidney disease? okarol 3 4598 Last post February 01, 2011, 11:56:16 PM
by okarol
A California dialysis tech training school: Whats good and bad about people? okarol 0 5696 Last post January 14, 2011, 11:09:56 PM
by okarol
**Dial In for Dialysis Info** Zach 0 4198 Last post January 14, 2011, 07:42:40 AM
by Zach
"A unified approach" MooseMom 10 5475 Last post January 06, 2011, 07:45:13 PM
by MooseMom
My homework assignment RE: Etta's Gift jbeany 5 4447 Last post December 20, 2010, 08:37:29 PM
by kellyt
Etta's Gift Business Card kellyt 2 4137 Last post December 20, 2010, 06:08:41 PM
by jbeany
Nominations for 2011 AAKP Medal of Excellence Award Being Accepted okarol 0 4158 Last post October 16, 2010, 08:02:57 PM
by okarol
Are you on the road to transplant? natlarson 4 4421 Last post October 12, 2010, 05:39:36 PM
by MooseMom
Is this naughty? MooseMom 10 5431 Last post October 11, 2010, 10:43:29 PM
by okarol
Who needs the help more? Opinions please... kellyt 10 5211 Last post September 18, 2010, 06:54:39 AM
by kellyt
OPTN/UNOS Nominating Committee Seeks Board Nominations okarol 0 4239 Last post September 10, 2010, 05:05:49 PM
by okarol
Advocate for Kidney Patients - Join AKF’s Advocacy Network okarol 0 4217 Last post September 02, 2010, 08:03:23 AM
by okarol
Informed consent natnnnat 4 5637 Last post July 08, 2010, 07:59:31 PM
by cariad
Passive Advocay Meinuk 11 6131 Last post June 21, 2010, 10:38:15 PM
by natnnnat
When did the NKF become the National Transplant Foundation? « 1 2 » Meinuk 33 13488 Last post June 10, 2010, 06:45:16 AM
by Meinuk
Free Seminar in NYC: The Shortage of Available Organs and Public Health Policy okarol 4 4648 Last post April 29, 2010, 05:02:46 PM
by Meinuk
World Kidney Day 2010 okarol 2 4370 Last post March 01, 2010, 12:54:12 PM
by okarol
DC Diary: Bringing Kidney Disease to Capitol Hill Meinuk 1 4845 Last post February 17, 2010, 07:04:32 PM
by paris
Open Door Forum Panel - development of new quality measures for ESRD okarol 0 4610 Last post February 05, 2010, 06:50:08 PM
by okarol
expectations and reassurances re stem cell benefits Everlasting 4 4812 Last post January 04, 2010, 12:03:24 PM
by CCStan
Emergency Contact Information willowtreewren 0 4954 Last post December 17, 2009, 12:40:44 PM
by willowtreewren
Getting hemodialysis unit in your own town littlesister 3 4413 Last post November 18, 2009, 01:17:21 PM
by Hanify
meeting the costs of stem cell therapy Everlasting 0 4334 Last post November 16, 2009, 04:13:50 PM
by Everlasting
Home Dialysis Actin Plan for Bundling M3Riddler 0 4473 Last post October 28, 2009, 09:32:10 PM
by M3Riddler
perseverence - donor searching Everlasting 4 4752 Last post October 22, 2009, 06:36:16 PM
by okarol
Organ donors and health insurance - fact or spam?? okarol 2 4431 Last post October 21, 2009, 05:44:15 AM
by tyefly
OPTN/UNOS Policy Proposals Distributed for Public Comment okarol 1 4325 Last post October 15, 2009, 03:34:14 PM
by Sunny
Your support and loving kindness Everlasting 3 4442 Last post September 26, 2009, 12:32:14 PM
by thegrammalady
Help! a stroke has entered the picture! Everlasting 7 4950 Last post September 18, 2009, 05:28:07 PM
by Bill Peckham
OPTN/UNOS meetings are open to the public okarol 1 4437 Last post September 11, 2009, 11:26:51 PM
by Chris
NKF: Get Ready for an Emergency okarol 1 4449 Last post September 03, 2009, 05:32:33 PM
by Rerun
financially supported airfares for out of province/country treatments Everlasting 1 4468 Last post August 21, 2009, 03:11:12 AM
by kimcanada
look at my new license plate! xtrememoosetrax 22 8787 Last post August 18, 2009, 12:16:51 PM
by paris
FREE HDC Webinar: Treatment Options & Informed Consent M3Riddler 0 4546 Last post August 12, 2009, 09:43:32 PM
by M3Riddler
Keeping a relationship strong while dealing with kidney transplant issues Everlasting 7 6223 Last post August 12, 2009, 06:35:33 PM
by kellyt
cell phones and sense of well-being Everlasting 0 4426 Last post August 11, 2009, 10:28:27 AM
by Everlasting
UNOS public comments accepted until Sept. 14, 2009 okarol 1 4749 Last post August 03, 2009, 12:16:08 AM
by Chris
No dialysis in local hospital wahoozer 14 5754 Last post August 01, 2009, 05:43:56 PM
by Hanify
I need help really bad kidneyless_In_PA 7 5340 Last post August 01, 2009, 12:26:26 PM
by kidneyless_In_PA
establishing an informal support group Everlasting 3 4746 Last post July 31, 2009, 10:17:44 AM
by peleroja
Please sign a petition to support me and others on dialysis « 1 2 3 » Bill Peckham 56 21108 Last post July 22, 2009, 12:13:02 AM
by Hanify
Speech to social workers for home dialysis advocacy Adam_W 5 5460 Last post July 14, 2009, 06:18:58 PM
by David13
Ask your Representative to Extend Immunosuppressive Drug Coverage okarol 8 5978 Last post June 20, 2009, 04:39:59 PM
by TiffanyJean
Terrible YouTube video series - what should be done? Anything? « 1 2 » Bill Peckham 33 17542 Last post April 22, 2009, 08:17:45 PM
by Zach
Immunosuppressive Drug Coverage Legislation Introduced okarol 2 4628 Last post April 06, 2009, 10:07:07 PM
by Rerun
Tell Your Elected Officials to Co-Sponsor the Immunosuppressive Drug Bill! okarol 2 4612 Last post March 31, 2009, 12:25:18 PM
by paul.karen
SSI for children with ESRD willieandwinnie 0 4786 Last post March 28, 2009, 11:43:13 AM
by willieandwinnie
research for BK Polyoma Virus cure cmazure 3 6211 Last post March 24, 2009, 06:52:49 AM
by Zach
World Kidney Day - videos found on the internet okarol 1 4516 Last post March 16, 2009, 05:41:56 PM
by Sluff
Let's find another avenue to pay our BILLS!!! Rerun 6 5524 Last post March 14, 2009, 07:16:25 PM
by Rerun
March 2009 PKD E-News: Today is World Kidney Day! okarol 0 4505 Last post March 12, 2009, 02:31:30 PM
by okarol
Join George Lopez and his celebrity friends okarol 0 4702 Last post March 10, 2009, 01:09:45 PM
by okarol
A Letter to President Barack Obama - The Ten Point Plan: Renal Patient’s View okarol 5 5406 Last post March 09, 2009, 11:18:58 AM
by Bill Peckham
*** The Power of People Like Us -- Be Your Own Best Advocate *** Zach 1 4616 Last post March 02, 2009, 09:43:51 AM
by okarol
PKD Foundation: Learn the latest news and information about kidney transplants okarol 0 4679 Last post February 25, 2009, 05:49:44 PM
by okarol
NKF Calls for Action in Organ Donation “END THE WAIT!” Campaign okarol 3 5203 Last post February 20, 2009, 05:38:26 PM
by karen547
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