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Author Topic: Last Post Loves IHD The Most!  (Read 1833677 times)
fc2821
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« Reply #22100 on: February 03, 2010, 05:57:02 AM »
     Good morning everyone  :waving;
      Well, you inow you have been on dialysis for a while, when you start having dreams about it.  Strange dream about having left my bag with my cell phone at the clinic and had to go back to get it.   :rofl; :rofl;
     
       Chris, hope you are able to find an answer to the amonia taste.  Other than the taste do you have any other "symptoms" of anything?

        Fun afternoon planed.  Have to go make my quaterly personal appearance at the "family" doctor's.  Not sure why I'm going, she can't really do anything.  I don't really need to go.  Ah, but it wouldn't be a Wednesday unless I went to a doctor's office.. :rofl; :rofl; :rofl; :rofl; 
         
        Well, our ice is almost gone and it is suppose to get into the low 50's today.   :clap; :clap;

         Have a good day all.   :bestwishes;
 
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22101 on: February 03, 2010, 07:08:18 AM »
  Well its just like old times......Des is back....  and everyone seems to be in good shape......   

           Good Morning......  and   Spring is so close now....I have flowers starting to bloom in the yard....buds on the trees are very big.... and there are some new birds in town....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
YLGuy
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« Reply #22102 on: February 03, 2010, 07:17:39 AM »
Going up to the mountains this weekend with the Indian Guides.  They recently got a couple feet of snow and it looks like Friday and Saturday we may get more.  Looking forward to it.  :clap;
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fc2821
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« Reply #22103 on: February 03, 2010, 07:49:36 AM »
       I have been meaning  to tell you all this for a while, but we are going to have quit meeting like this folks.     
       The smilies are getting suspicious  :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl;

         ;)
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22104 on: February 03, 2010, 09:08:20 AM »
  Indian  guides ?      What are they and what do the guide you too.......Sounds interesting....    are you guys learning to eat native plants....   geology.....  folklore.......  totempole creation......... frog collecting....
« Last Edit: February 03, 2010, 09:10:39 AM by tyefly » Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
cariad
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« Reply #22105 on: February 03, 2010, 09:20:27 AM »
 :waving;

Chris, I get that ammonia taste off and on, too. I have always read that it is one symptom of kidney failure, so in my case I just wrote it off as part of the decline. Have you been eating lots of protein with few/zero carbs? The ammonia taste is apparently a sign of ketosis, which can be an effect of low-carb diets or just not eating enough in general.

I hope it's nothing kidney/pancreas related. Let us know what the yahoos say....
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

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angela515
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« Reply #22106 on: February 03, 2010, 09:24:04 AM »
Every 3-4 months I have a time period of like 2 days to a week where I burp A LOT and it tastes and smells like sulfar and it's so disgusting it makes me want to puke every time I burp from the smell alone and the taste alone. Anyone around me can smell it also and it makes them want to puke. Then it goes away like nothing ever happened.

I hate it with my whole being. Have no idea what the cause is.... if I knew I would so prevent it!

:)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22107 on: February 03, 2010, 09:34:04 AM »
  Maybe you guys should brush your teeth more often...... :rofl;     :rofl;      :rofl;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
angela515
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« Reply #22108 on: February 03, 2010, 09:36:29 AM »
lmao.  :P
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
YLGuy
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« Reply #22109 on: February 03, 2010, 03:40:38 PM »
Quote from: tyefly on February 03, 2010, 09:08:20 AM
  Indian  guides ?      What are they and what do the guide you too.......Sounds interesting....    are you guys learning to eat native plants....   geology.....  folklore.......  totempole creation......... frog collecting....
The YMCA has a father/son program.  We do a bunch of stuff like go camping.  This weekend we are in cabins in the snow.  It is actually called the Y-Guides now to be pc.  They have a father/daughter program called the princesses I did with my daughter.  They did the same stuff except they add father/daughter dances.  They are great programs.  I used to be Nation Chief for the boys program.
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willowtreewren
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« Reply #22110 on: February 03, 2010, 03:48:51 PM »
Aw, Marc, sounds like such fun!

I have had an interesting day! Our autistic student decided to test the limits today. Hoo boy!

Then a little girl thought it might be fun to push a staple between two teeth. Her dad had to take her to the dentist! In all my years of teaching, that is completely new! Two major nosebleeds! Poor kids!

On the good side, I finished writing the first course for the university! And it has been sent in! Now on to the other three!
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #22111 on: February 03, 2010, 06:04:17 PM »
Sure does sound like your day was interesting.
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willowtreewren
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« Reply #22112 on: February 03, 2010, 07:10:44 PM »
Tonight was our BIG lad night. Kt/v, plus dialysate sample, plus water sample.

And I had to back up my whole computer because we are taling it in to have that little screen problem checked out.

I'm one tired puppy!  :waving;

I hope everyone else is doing just great!  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #22113 on: February 03, 2010, 08:56:13 PM »
Longhouse meeting tonight.  Last minute prep for the winter camp.  Next month is the pinewood derby and in April is the Diaz Lake campout.  The Diaz campout the YMCA won't have anything to do with because we set up a shooting range.  It is a great campout.  Shooting, lots of fishing and dirt bikes and quads. 
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YLGuy
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« Reply #22114 on: February 03, 2010, 08:57:23 PM »
Oh ya, Hi tyefly, chris and hopefully...des.
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22115 on: February 03, 2010, 09:01:58 PM »
 Thx Marc .....   you sound like you have so much fun doing all of that.....   and your kids will always remember just like we still do ......   


Good Morning  Des......... 

And Chris    I didnt know you were sick......  everyone has been worried about you ........
           
                                  But then thats your      :sir ken;     they are worried about........... :rofl;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
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« Reply #22116 on: February 03, 2010, 09:15:56 PM »
Hi Marc, Tyefly, Des, andanyone else who may come in.
 
Stil waiting to get an appointment from tx center, but saw knee surgeon today. He will do surgery if I get the ok from the docs and get an ekg done. However he said I will have to stay for a day or 2 on the transplant floor. I just hope I don't see my tx doc, I dislike him so much. Kidney surgeons I like so much better.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #22117 on: February 03, 2010, 10:12:25 PM »
Hope all goes well for you Chris.
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angela515
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« Reply #22118 on: February 04, 2010, 08:22:46 AM »
Oh yay.. woke up again with tons of retention in my fingers.  :boxing;

Gotta love it.  ::)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22119 on: February 04, 2010, 08:30:26 AM »
  Off to another fine day of nxstage training.....  brought home supplies yesterday  and  was wondering where I am going to put all these boxes of this and that......Looks like a medical clinic now.....    I need to get these put away  so they dont remind me everyday......    Yesterday I did the whole dialysis thing all by myself....... I am so proud of myself........   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #22120 on: February 04, 2010, 08:38:10 AM »
     Good morning  (or whatever it is where you are when you read this) every one  :waving;

     Chris hope all goes well.

     Marc same for you.

      Angela, that was terrible..  :(

      Tyefly  proud of you too.   :clap; :clap; :clap; :clap; 

     We're suppose to get snow/rain tomorrow.  Sounds like fun will be had by all  :rofl; :rofl; :rofl;

      Using terminal at dialysis.  Got to come in an hour or so early today.  Doesn't like me getting into IHD.  Not seeing any replies to my posts, takes me to posts in Nov 2009, have to "cheat" my way to a threat.  Wonder if Frescenius is trying to keep us from using the terminals for sites like IHD?  Then maybe it is some technical problem on their end.  Anoying, but gives me something to do besides staring at Tv screen for 4 hours.
       
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
willowtreewren
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« Reply #22121 on: February 04, 2010, 09:00:02 AM »
Rob, this weather is just yucky!

Kathy, so proud of you!

I have been so busy getting these courses written. Sorry I have been out of the loop more than usual! But it is almost the weekend.  :2thumbsup;

When we were at Carl's clinic today they were saying how excited they are to have him coming back in for a week while I am traveling in March. They love him.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22122 on: February 04, 2010, 09:02:29 AM »
 :2thumbsup;       :yahoo;     
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
fc2821
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« Reply #22123 on: February 04, 2010, 09:32:24 AM »
   Aleta you are right weather has been yucky.  But like all things it will change.   :oops;  that's another thread entirely   :rofl; :rofl; :rofl; :rofl;

   It is good Carl's clinic is so nice.    :2thumbsup; :2thumbsup; :2thumbsup;   
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
angela515
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« Reply #22124 on: February 04, 2010, 09:46:50 AM »
I am so bored today.l
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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