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willowtreewren
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My two beautifull granddaughters

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« Reply #21325 on: December 22, 2009, 07:30:16 AM »
Des, I understand about the packing. After getting all our dialysis supplies, clothes and gifts loaded, my husband said, "We are taking more that some people own in a lifetime!"

 :rofl; :rofl;

We made it to Massachusetts in "only" 15 hours. Good trip. We saw tons of snow and many vehicles that had gone off the road during the worst of the storm. But all was clear for driving yesterday.

Carl is on the machine and I only made a couple of boo-boos setting up. Being in a different place is stressful!  :stressed;

Take care,
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21326 on: December 22, 2009, 07:39:08 AM »
 :santahat; :santahat;
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #21327 on: December 22, 2009, 08:36:26 AM »
   Good Morning everyone.......    Well  I am on a road trip this morning....going with hubby up to Seattle but just for the day.......     Well Its better than staying home.......   

                   See you tonight..........  and   D  tonight...........LOL......
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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« Reply #21328 on: December 22, 2009, 11:42:28 AM »
How is everyone doing with shopping, wrapping and baking?    :rofl;      What doesn't get done, no one will ever notice!   So, I am going to rest a little more and let my heart be filled with the Christmas spirit.      Anyone around to chat later tonight?   

I win for now   :yahoo;   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #21329 on: December 22, 2009, 11:58:18 AM »
Trapped in the house today by the street guys pouring slurry. Had to put one car on the side street, the other on the driveway. No sign of slurry yet down the street.  So I am going to clean out the bathroom cupboards today.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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My two beautifull granddaughters

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« Reply #21330 on: December 22, 2009, 12:21:17 PM »
Taking granddaughter # 1 to gymnastics in a few minutes.  :2thumbsup;

What a hectic day.

Heavy lobbying to get us to move up here! I haven't warmed up since getting up this AM! brrrrr!

Give me the warm south anytime!  :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Des
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« Reply #21331 on: December 22, 2009, 12:51:33 PM »
Hi,

I just wanted to pop in to say Goodbye all. I will be back on the 3rd Jan.

I hope you all have a fantastic Christmas and that you have a blessed 2010.

THANK YOU ALL FROM THE BOTTOM OF MY HEART FOR BEING THERE FOR ME!!

Lovies

Des
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Chris
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« Reply #21332 on: December 22, 2009, 02:02:12 PM »
Have fun Des

Paris, about what time later tonight in your time zone?

Aleta, just ask them for a winning lotto ticket so you can quit your jobs to move up there and find a buyer for your home who is gonna give a good price.  think that might shut them up and rethink  :rofl; :rofl; :shy;

Tyefly, ummmm have fun at D :urcrazy;

We had some snow, but it's melting and it's suppose to freeze tonight. Gonna be a pain in the  :sir ken; going to pt tomorrow morning! >:(
My knee was swollen on both sides yesterday, which really felt weird and pain was different. Being on the knees hurt, but swelling is down so far today. I emailed doctor because I don't see her till March and MRI is on Dec 28. Dec 29 I'l be glowing in the dark  :rofl; :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Slywalker
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« Reply #21333 on: December 22, 2009, 02:14:39 PM »
Aleta - no worries - the Northeast is suppose to be a balmy 35 to 37 degrees by Christmas day.   :snowman;  You will find those temps more to your liking.   :clap;

My daughter has been lobbying me for years to move from VT to Maine.  I keep telling her I was thinking of more of a southerly move..... time will tell.

Have fun everyone.

 :santahat;
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willowtreewren
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My two beautifull granddaughters

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« Reply #21334 on: December 22, 2009, 05:59:41 PM »
Quote
My daughter has been lobbying me for years to move from VT to Maine.  I keep telling her I was thinking of more of a southerly move..... time will tell.

MAINE!!! OMG!

We took a trip to Acadia in June a couple years ago and it got down into the 40's at night! Nice place to visit, but I don't think the old bones could stand it.

Ha, ha. More lobbying tonight!  :rofl; :rofl;

Chris, be careful out there tomorrow.

I bet Des is gone already.  :2thumbsup;

Everyone, enjoy this special time.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #21335 on: December 22, 2009, 08:01:59 PM »
Just woke up again :santahat;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #21336 on: December 22, 2009, 10:12:48 PM »
I am up watching Babylon 5 DVDs and trying to catch up on the board discussions.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #21337 on: December 22, 2009, 10:31:39 PM »
I am up doing nothing xcept having tv on.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #21338 on: December 23, 2009, 03:20:56 AM »
 :santahat;
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willowtreewren
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My two beautifull granddaughters

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« Reply #21339 on: December 23, 2009, 05:53:47 AM »
KK, we have gotten into watching Stargate Atlantis and Stargate Universe on Hulu during D. We don't have cable.

Some how we never got into Babylon.

Getting the machine up and running this morning. It is almost time for the grand "sticking" ceremony. Being in a different place I made several errors yesterday. Nothing like stress to give the old BP a boost! I sure hope it goes better today! Whew!

This afternoon it is off to the grocery store. Fun, fun.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21340 on: December 23, 2009, 07:07:20 AM »
Maine?, But you people are from away and I don't think you can get thar from heer.
(I had very close friends who lived in Portland, Maine I visited)
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willowtreewren
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My two beautifull granddaughters

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« Reply #21341 on: December 23, 2009, 08:13:15 AM »
I feel so bad for Carl.

Yet he is such a trooper. He is in an uncomfortable chari for dialysis, he can't do anything for himself as he is not in his "office" at home, it is 14 degrees outside and his chair is near the door, and yet he never complains (except for the cold! ha ha)

He feels bad about asking me to do things for him, but hey, I'm not the one stuck (pun intended) in the chair.

He is wrapped up in blankets and still can't get his temperature as high as 97!

 :'(
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Slywalker
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« Reply #21342 on: December 23, 2009, 08:52:52 AM »
Quote from: YLGuy on December 23, 2009, 07:07:20 AM
Maine?, But you people are from away and I don't think you can get thar from heer.
(I had very close friends who lived in Portland, Maine I visited)

YLGuy - I must admit that is a problem here in the northeast states......  We always seem to end up taking the scenic route to wherever we are headed. 

I hope everyone is having a great day.  I'm off to grocery shop for Christmas dinner (roast pork, homemade applesauce).  Yummo.

 :santahat;   :snowman;
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YLGuy
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« Reply #21343 on: December 23, 2009, 08:59:13 AM »
Yes, I grew up in Connecticut.  My grandfather hated the highways (although the Merritt Pkwy is pretty scenic).  Once, we went to my uncle's cabin in VT with him.  He drove all back roads there.
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Chris
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« Reply #21344 on: December 23, 2009, 04:44:59 PM »
 :santahat; :popcorn; :christmastree; :snowman;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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Posts: 6928


My two beautifull granddaughters

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« Reply #21345 on: December 23, 2009, 04:59:34 PM »
I am so bummed! And only you guys will understand. I lost my "I Hate Dialysis" pin today. I have had it on the strap of my purse and when we were at the grocery store I realized that it was gone.  :'(

Oh, well. I guess I can buy another one!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cariad
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What's past is prologue
« Reply #21346 on: December 23, 2009, 05:16:27 PM »
I thought I had this Christmas under control since my husband and I have much of the wrapping completed already and we are going really simple and informal for dinner Christmas night, then.... My brother (the sober, non-violent, mentally stable one) emailed my husband two nights ago asking him to forward a message to me. He has moved to Illinois and wants to come up to visit for nearly a week, starting on Christmas Day.  :o

I do not speak to my family, and have not seen him in over five years. He is the only one of my siblings I can stand, in fact I think he's wonderful, but I do not want any contact with that household, and I do not want them to know anything about me. Luckily I don't have an access to hide or anything, but I don't know how I am going to fake my way as a healthy person for nearly a week - I can barely do that for an hour. There is no one else in this town for him to visit - he is coming up to see us. Thankfully, he is staying at the home of a relative, so we won't have to prepare a room or anything, but the relative is off in Costa Rica so he'll be alone there.

Part of me looks forward to seeing him again - the rest of me wonders why I cannot seem to ever fully escape that awful house.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Chris
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« Reply #21347 on: December 23, 2009, 06:12:41 PM »
Cariad, I take it your husband was trying to be in the Christmas mood by letting your brother come visit without prior knowledge of you? I understand how you feel aboutsiblings.

Guess it would be to late to teach the kids to be quiet and for husband not to answerthe door when he arrives?  :sarcasm; :shy;

Hope you make it through the visit Cariad.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cariad
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What's past is prologue
« Reply #21348 on: December 23, 2009, 07:48:00 PM »
Ack, sorry about the pin, Aleta!  :( I hope it turns up.

Quote from: Chris on December 23, 2009, 06:12:41 PM
Guess it would be to late to teach the kids to be quiet and for husband not to answerthe door when he arrives?  :sarcasm; :shy;

Oh, Chris, don't put ideas in my head or I may still wimp out!  :rofl;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Chris
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« Reply #21349 on: December 23, 2009, 08:52:47 PM »
Why is it that I don't notice typos till  it's to late?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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