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Author Topic: So what are you up to this weekend?  (Read 95835 times)
cassandra
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When all else fails run in circles, shout loudly

« Reply #225 on: August 22, 2015, 03:13:07 PM »

Mmm sounds great Sugar. I might do some baking too (that's what the British Bake off does to me) I started my own 'sort of' nocturnal yesterday (as in my normal 5 hours, 60 litres, but at night) so tomorrow night again, and I think I can work it so I finish at the same time that hubby has to get up for his early shift.
As the HD nurse is not cooperating getting th real nocturnal, I'll do it like this till than.
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis

« Reply #226 on: August 23, 2015, 08:16:57 AM »

Mmm sounds great Sugar. I might do some baking too (that's what the British Bake off does to me) I started my own 'sort of' nocturnal yesterday (as in my normal 5 hours, 60 litres, but at night) so tomorrow night again, and I think I can work it so I finish at the same time that hubby has to get up for his early shift.
As the HD nurse is not cooperating getting th real nocturnal, I'll do it like this till than.

Let me know how that works for you?
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
casper2636
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« Reply #227 on: August 23, 2015, 11:20:44 AM »

I always enjoy cooking for other people, and love to "get lost" in recipes. And, boy, when I cook it's for an army! My freezer is stocked for the Apocalypse! You know the saying "idol hands...."

I have found another "hobby" that is fun, and also earns me a couple of bucks! It's called MTurking. It is taking Human Intelligence Tests, tests that a computer can't do. I take surveys for Universities, categorize things for companies, watch videos, and listen to music, write descriptions, draw, and just about anything. It's fun and makes me feel involved and somewhat productive. So, that's my weekend in a nut shell.

HAPPY SUNDAY!
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Sugarlump
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10 years on and off dialysis

« Reply #228 on: August 24, 2015, 12:52:36 AM »

Mmmm Great F1 at Belgium
Go Lewis!!!!!  :ukflag; :ukflag; :ukflag;

My only complaint is that it was far too hot this weekend, 27 degrees /90% humidity ...  :urcrazy;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly

« Reply #229 on: August 25, 2015, 04:01:18 AM »


Let me know how that works for you?

Hi Sugar, so far it's going peachy  ;D. I do the 60 litres every other night, I feel pretty good, am way more active, and there actually IS more living time in the day. I don't really sleep though. I'm going to ring Mr Healthy (HHD nurse) now to get the Heparine pump, and blood leakage detector sorted. Although you would think that 6 months would have been enough time for that. Anyway withe the hep.-pump I can do 7 or 8 hours, and probably sleep.
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #230 on: December 18, 2015, 06:48:43 PM »

Was thinking of going to see some rescued baby owls and falcons at an animal rehab but hubby is very cranky and I couldn't bite my tongue over it so well, there went the weekend.  :(
Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly

« Reply #231 on: December 19, 2015, 10:59:33 AM »

Sorry PT, sounds familiar  ;D
We went out shopping, this 'panick' Saturday. Got a lovely leg of lamb for Xmas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #232 on: December 19, 2015, 06:27:12 PM »

Sorry PT, sounds familiar  ;D
We went out shopping, this 'panick' Saturday. Got a lovely leg of lamb for Xmas
Ha! "Panic Saturday" is EXACTLY how to describe stores the Saturday before Xmas! And if at all possible, I avoid it! Poor hubby had to go out in it tho. Our tv died and to make matters worse, he came home with a 19-inch screen. WTH? ??? He has better eyesight than me and now mine are crossed. >:(   Hope you enjoy your leg of lamb. I've never had lamb before but I know it's special. I've had moose meat, tasted just like roast beef and a heck of a lot better than frog legs. I'm so hungry right now, I could eat a horse. Well...maybe not. Perhaps I ought to try some lamb.   
« Last Edit: December 19, 2015, 06:28:36 PM by PrimeTimer » Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
PrimeTimer
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« Reply #233 on: April 10, 2016, 02:04:55 AM »

Going to re-caulk our tub and shower this weekend (my job). I'm sure I could have the maintenance men here at the apartment do it but I prefer to take care of these things myself. No fun waiting around for a sweaty man to show up at the door, never knowing when they will knock. As for the caulking, my husband is always impressed with my work...hee hee. No, seriously, I do pretty well at it. Don't know where I learned this stuff, I think it came out of necessity and not wanting to be needy. I watch a lot of DIY videos. As a little girl, I was always daddy's helper so learned some from him. At least until I reached the age where I was allowed to go out on dates...by then I wasn't interested in daddy's home projects so much anymore, which may have explained why he threw my cashmere sweater into the dryer and shrunk it. I was mad because the sweater was ruined. Then I figured out that my dad was probably just afraid of losing his little girl, his little helper and when mom wasn't looking, his "partner in crime". He'd have me up high on ladders and crawling through spaces and stringing electrical cords through the attic, working like crazy before mom came home and caught me up there. But then I started dating boys and he shrunk my favorite cashmere sweater. Ah well, could hardly blame him. His baby girl was growing up and dating boys. Daddy's little helper was moving on to a new attraction in her life...But daddy's should know that they are ALWAYS #1 to us daughters, no one can replace them. Not ever. So, daddy may not have taught me how to caulk the tub but I do it with him in mind and know he's looking down from the Heavens and watching me from over my shoulder "did you do this right? did you remember to do that? get this? put it there...wipe it there..." -sheesh! Don't worry daddy, I got this!  :2thumbsup;
Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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When all else fails run in circles, shout loudly

« Reply #234 on: April 10, 2016, 03:41:57 AM »

Wow PT I'm well impressed. My dad taught me how to lay the pavement. Now I can't do that anymore, but I could instruct people to do it. Just a pitty no-one wants to listen. As soon as the engineer for the Central heating has been I'll repair one of the kitchen cabinets. With super glue

    ;D
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #235 on: April 10, 2016, 07:51:47 AM »


I can't help but think of that poor lamb hopping about missing one leg in the snow.


Frog legs are easily dried out and ruined.  One has got to be very careful cooking and use plenty of broth or veggies to keep the moisture up.  If frying watch closely, they don't take but a minute one each side.   They can taste a lot like chicken but a very much finer 'grain' to the meat.  Similar problem with most all 'wild' meats as they most all have much lower at content.  It's all good when cooked well moistened.
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PrimeTimer
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« Reply #236 on: April 22, 2016, 07:59:57 PM »

Don't know what we'll be up to this weekend but DO know we won't be going frog hunting. Dad once thought it would be funny to have Mom fry up some frog legs and serve it to us kids for dinner as if it were chicken. After a couple of bites Dad asked me how I liked it. I said it was good. Then he told me the "chicken legs" were actually frog legs. I said "Well, that explains the pond water taste". Mom gasped, never to serve frog legs again.

I spotted a large toad one nite outside on our patio. Don't know if he was looking for water or for bugs. Maybe I will do some toad watching this weekend. Toads are a little different from frogs, could be interesting. 
Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Charlie B53
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« Reply #237 on: April 23, 2016, 05:49:28 AM »


Got the 9 y.o. Brat G'son.  At least for today.  Going to take him outside and work him like a rented Mule.  lol

Pick up sticks and branches blown down out of the trees again.   Mow the middle acre.   Not let him play with the Tablet, computer, watch TV.   He has a spuer spoiled attitude and likes to think HE is the Boss and tell everyone else what HE wants.    We need to teach him different.

I'm soo tempted to just warm his bottom daily, twice, but I don't.   Instead I am trying to explain things to him, relate to things he does know so he might understand.

Threatening to send him to Military school.   He thinks he will like it.   Yea, maybe for the first hour.   lol    I'm a Vet, I remember my first day.   It was anything but fun.
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kristina
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« Reply #238 on: April 24, 2016, 12:02:55 PM »

... Because it is Sunday today, my husband and I took it very easy through the whole day (breakfast in bed whilst listening to a wonderful LP with baroque chamber music)
and then we went for a lovely walk and talk in the park (the sun was shining in an invitating way) ...  and after a while we returned home again and then later,
after each of us had some "me" time, where each of us could do what they wanted to do for themselves, we cooked some wonderful taste-treats together
and now in the evening we let the day slowly wind down and we look forward to tomorrow ... :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Charlie B53
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« Reply #239 on: May 29, 2016, 06:51:56 AM »


Holiday Weekend, Memorial Day.  As usual we are staying home.  Traffic is stupid, so many people heading to the Lake, gas prices are up again as the gas companies always raise prices knowing people have no choice, they have to pay it if they want to go anywhere.

I stay home and mow the yard.  # acres of yard with 60 odd trees there is always something needing done to keep it up.

Good thing we have three mowers as with all thing mechanical, things break, or wear out, and I take it apart, order what I need to put it back together all well again.   Currently my favorite mower is down waiting on a part that has been 'back-ordered'.  I'm not very happy about it but there isn't much I can do but wait.  Tuesday I will spend some time on the phone to see if some other supplier happens to have one on their shelf.  If so I will order it and cancel the back-ordered supplier.

BBQ'd steaks last night, well, I didn't, Son did while I was still mowing part of the yard.   I'm sure he will be over again today again.

Hoping everyone has a safe Holiday, and everyone traveling gets home safe and sound.
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lainiepop
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« Reply #240 on: June 27, 2016, 01:15:49 PM »

So this weekend we are taking my 8 yr old son to wimbledon to watch the tennis, cannot wait!!! Hopefully he will lift that trophy one day haha!!
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Xplantdad
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Health is not valued till sickness comes. T.Fuller

« Reply #241 on: June 27, 2016, 01:48:08 PM »

So this weekend we are taking my 8 yr old son to wimbledon to watch the tennis, cannot wait!!! Hopefully he will lift that trophy one day haha!!

That sounds like fun!!!
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
lainiepop
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« Reply #242 on: June 27, 2016, 01:52:53 PM »

My daughter will be 5 on friday and her grandparents are taking her to london zoo while we r at the tennis, she's a bit young for it yet, cant see ver the net let alone hit ball over haha!
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
kristina
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« Reply #243 on: July 07, 2016, 03:15:44 AM »

During the summer there is a chance to listen to wonderful classical concerts in Hyde Park
and this weekend we are going to try and find out where exactly these concerts take place  ...
... Living in Central-London can be a real treat on occassion
because many classical concerts often do not cost anything,
except the effort to go and be there ...
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kristina
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« Reply #244 on: July 16, 2016, 05:12:45 AM »

... One should not make any solid weekend-plans, because things might change just like that ...
... We had it all nicely planned out for the weekend, but unfortunately things did not turn out as they should:
This weekend, I shall have a job to "look after" and "mend as much as possible" this nasty "invading" flu which hit me yesterday.
... I was coughing and sneezing all through last night and hardly got any sleep (nor did my supporting husband)
and today my whole body hurts and almost feels as if  "the end is nigh"...
... Hopefully, with the help of the chemist, we can find a kidney-friendly cough-liquid to ease my bronchies
and hopefully things might get a little better soon to make life more livable again ... soon... :'(
« Last Edit: July 16, 2016, 05:13:56 AM by kristina » Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
DayaraLee
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« Reply #245 on: July 16, 2016, 07:34:56 AM »

I'm sorry, Kristina! Coughing, sneezing, and not being able to sleep can be extremely wearing and lead to a feeling of exhaustion very quickly. I've tried warm tea with honey and lemon before to help a cough... And also, peppermint tea (the peppermint is supposed to act as a decongestant). I didn't notice that it helped any more or less than traditional over-the-counter options, though.  :cuddle;  I hope that a few medicines can be identified to help you feel better.
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Husband Dx - CKD Stage 3, Diabetes Type II, Hypertensive, Stubborn...

"What is love? Love is the absence of judgment."  ~Dalai Lama
kristina
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« Reply #246 on: July 18, 2016, 02:11:11 PM »

Many thanks for your kind thoughts, DayaraLee, it is very much appreciated... I had to see the doctor and was given antibiotics straight away
and the coughing is calming down and the two of us could have a restful night again... I had half a cup of peppermin-tea with some honey and it also helps a little.
When I asked the doctor and the nurses what sort of cough-mixture/medicine could assist me, they warned me not to get anything at all.
This made me wonder and then suddenly the "penny dropped" and I began to understand : Cough-tinctures/medicines are heavily "loaded" with plenty of potassium and therefore ...
Many thanks again from Kristina. :grouphug;
Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
PrimeTimer
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« Reply #247 on: July 18, 2016, 03:53:07 PM »

Many thanks for your kind thoughts, DayaraLee, it is very much appreciated... I had to see the doctor and was given antibiotics straight away
and the coughing is calming down and the two of us could have a restful night again... I had half a cup of peppermin-tea with some honey and it also helps a little.
When I asked the doctor and the nurses what sort of cough-mixture/medicine could assist me, they warned me not to get anything at all.
This made me wonder and then suddenly the "penny dropped" and I began to understand : Cough-tinctures/medicines are heavily "loaded" with plenty of potassium and therefore ...
Many thanks again from Kristina. :grouphug;


Hope you feel better soon. Perhaps just a sip or two of hot water with no tea in it would help. The warmth might help loosen things to control the cough. Or maybe a humidifier in the room.
Logged

Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
kristina
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« Reply #248 on: July 19, 2016, 06:10:33 AM »

Many thanks PrimeTimer for your kind thoughts and ideas, it is very much appreciated.
You are quite right, the warmths of a steamy hot tea/water has gone a long way and has helped to loosen things
and get the cough under better control. But most of all I am grateful for the existence of these antibiotics and they have helped me to "get back to the living" again.
It was a strange (and frightening) experience to realize, how much dialysis can weaken a body and it shows up very clearly, when a cough comes along and suddenly antibiotics
are urgently needed to get a chance "back to normal" again... just goes to show...
Many thanks again from Kristina. :grouphug; :grouphug;
Logged

Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kickingandscreaming
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« Reply #249 on: July 19, 2016, 09:49:42 AM »

Quote
It was a strange (and frightening) experience to realize, how much dialysis can weaken a body and it shows up very clearly, when a cough comes along and suddenly antibiotics

Not sure if it's the dialysis that does it or the underlying kidney failure.  I usually have a very strong immune system and have gone years in a row without even the peep of a cold.  But since my kidneys have failed, I am much more vulnerable.  Had pneumonia last November and then just the other day had a 2-day bout with an unknown fever.  Now it's over, but I have no idea where it came from and why I succumbed at that point.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
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