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Author Topic: wallyz got THE CALL!  (Read 13889 times)
Mimi
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For any who do not like me I use - prayer.
« Reply #25 on: December 16, 2009, 12:51:40 AM »
Wally you must have been living right.  Congratulations!!!!!
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Mizar
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« Reply #26 on: December 16, 2009, 08:38:37 AM »
What a Beautiful Gift, to receive, this Holiday Season!
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KarenInWA
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« Reply #27 on: December 16, 2009, 01:45:27 PM »
Latest FB Status Updates...

From Brian/Wallyz: Hey everyone. I am still in critical care, hoping to move up to the transplant ward today. Thanks for all the prayers. Kidney is working well, Pancreas alittle less so. Thanks Pastor Craig and Johhny Barbosa for stopping by.

From Dana/Mrs. Wallyz: Brian is staying in CCU until tomorrow for now. He says he thinks he must be getting better because he's getting irritable (back to normal, I say). The pancreas still needs some insulin assistance, but the kidney is working away.

 :2thumbsup;  :clap;  :cheer:

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #28 on: December 16, 2009, 01:58:19 PM »
 :pray; Sending good thoughts!!  :cheer:
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #29 on: December 16, 2009, 07:36:28 PM »
Didn't see this post till today, but found out on Facebook from KarenWA.

I hope all went well and that he feels a big difference now like I did.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
KarenInWA
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Posts: 1041
« Reply #30 on: December 17, 2009, 06:23:16 AM »
Dana posted this late last night:  Brian was moved out of CCU to room 1766 tonight (17th floor). He walked some down the hallway today and sat in the recliner for awhile. Things are moving forward! He'll be in the hospital for about 10 days and then spending a couple weeks close to it so he can make daily appointments there for IV treatments. He might be home for Christmas presents, though!


Whoo-hoo!!!  :cheer:  :cheer:  :yahoo;  :bandance;  :bandance;

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
paris
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« Reply #31 on: December 17, 2009, 12:30:35 PM »
This is just the best Christmas news I have heard.  Thank to all who are keeping us updated.   I pray everyday finds him a little better and the kidney and pancreas do their thing.   

Karen, it is wonderful that you are going to visit him   :cuddle;   You just have to love IHD friends!    :2thumbsup;    Give him lots of hugs from all of us.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
KarenInWA
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« Reply #32 on: December 17, 2009, 01:10:42 PM »
Another update from Brian!

I am up in the transplant ward. My parents are here, Mike and Jen Grimshaw stopped by. Everything is going well so far. Thanks for all the prayer.

 :)

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Chris
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******
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Gender: Male
Posts: 9219


WWW
« Reply #33 on: December 17, 2009, 06:43:31 PM »
That's good news!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
KarenInWA
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Posts: 1041
« Reply #34 on: December 17, 2009, 06:53:17 PM »
I am happy to report that even major surgery cannot keep Brian down for long!

The latest update from Dana:

Good news - Brian took 3 walks today and got his NG tube out! Bad news - I almost barfed in the elevator when standing behind a lady with all her hair in one big funky matted dreadlock.

 :clap;  :clap;  :clap;

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Chris
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******
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Gender: Male
Posts: 9219


WWW
« Reply #35 on: December 17, 2009, 07:41:39 PM »
Much better to walk around w/o the NG tube. Mine had to stay in longer, glad Brian is doing much better than my experience and a couple other members.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Wallyz
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Posts: 991
« Reply #36 on: December 17, 2009, 07:42:21 PM »
Hey everybody- Thanks so much for the support.  Things are going well.
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tyefly
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Posts: 2016


This will be me...... Next spring.... I earned it.
« Reply #37 on: December 17, 2009, 07:47:18 PM »
              Good to hear......  keep us updated....        today is your day....... :bow; :bow; :cuddle;
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Chris
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« Reply #38 on: December 17, 2009, 07:51:33 PM »
Wallyz, I think I hsve the saying/spelling correct that fits. "Carpe Deiem" French for seize the day.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
Administrator
Member for Life
*****
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #39 on: December 17, 2009, 08:24:40 PM »
Quote from: KarenInWA on December 17, 2009, 06:53:17 PM
I am happy to report that even major surgery cannot keep Brian down for long!

The latest update from Dana:

Good news - Brian took 3 walks today and got his NG tube out! Bad news - I almost barfed in the elevator when standing behind a lady with all her hair in one big funky matted dreadlock.

 :clap;  :clap;  :clap;

KarenInWA

 :rofl; :rofl; :rofl;

Quote from: Wallyz on December 17, 2009, 07:42:21 PM
Hey everybody- Thanks so much for the support.  Things are going well.

Yeah baby!!  :yahoo;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #40 on: December 18, 2009, 12:33:31 AM »
wallyz time to change that avatar because the tables are now turned on those drinks are they not?!!!

DRINK FOR ALL OF US!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  :clap; :clap; :clap; :clap; :yahoo; :yahoo; :yahoo; :yahoo;
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Wallyz
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« Reply #41 on: December 18, 2009, 10:26:28 AM »
No kidding, RichardMel. i'll work on it.Creatnine has gone from 7.29 before the surgery to 7.24, to 4.98 to 3 to 2.21.  BUN is down to 37  I'm still on supplemental insulin, because I am taking a lot of prednisone.  I finally got good sleep last night, which was amazing.  This is hard, but I am already enjoying not dialyzing.
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jbeany
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Cattitude
« Reply #42 on: December 18, 2009, 10:32:53 AM »
 :bandance;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #43 on: December 18, 2009, 10:40:40 AM »
 :2thumbsup; :2thumbsup; :2thumbsup;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
tyefly
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2016


This will be me...... Next spring.... I earned it.
« Reply #44 on: December 18, 2009, 10:41:50 AM »
  Sounds like everything is going great.......   looking forward to your new avatar.......   :clap;
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Chris
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WWW
« Reply #45 on: December 18, 2009, 10:56:50 AM »
Glad your doing better and hopefully no more insulin ASAP, but understand why you need some for a bit.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kellyt
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Posts: 3840
« Reply #46 on: December 18, 2009, 11:03:21 AM »
Oh Wallyz, I just now saw this post!!!!   Yea!!!!  :clap; :clap;   I am SOOOOO happy for you!   :yahoo; :yahoo; :yahoo; :yahoo;

It is hard, but it sounds like you're doing great!  Keep us informed on your progress!  :beer1; :cuddle;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
KarenInWA
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Posts: 1041
« Reply #47 on: December 19, 2009, 06:56:36 PM »
Hey everyone - I visited Brian in the hospital today.  He says he feels like he's been hit by a mack truck, and is having a hard time with the recovery, but understands that it will take some time.  He is very thankful for everyones support and prayers!  To all of you who have been through the k/p transplant, please let him know how your experience went!  I know he's on a lot of meds (okay, duh!) in hopes that his body doesn't recognize his new organs as "foreign".  Here's hoping the greencard process goes smoothly, and that they pass the citizenship test with flying colors!   :)

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
jbeany
Member for Life
******
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Gender: Female
Posts: 7536


Cattitude
« Reply #48 on: December 19, 2009, 08:12:50 PM »
Karen, tell him that even with all the complications I went through and am still recovering from, I still feel sooooooo much better now than I did on dialysis.  I was on the run yesterday doing errands and chores for 13 straight hours.  If I had done that while still on dialysis, I'd have spent the next day puking my guts out, and unable to get out of bed.  Now - I just slept in an extra hour or so, and got up and did more chores!  Once they get his meds adjusted, he's going to feel great!
Logged
"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Chris
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Gender: Male
Posts: 9219


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« Reply #49 on: December 19, 2009, 10:50:28 PM »
Karen, does the hospital have e-mail cards or email to patients?

Well hopefully they gave Brian a small pillow to hold over the abdomen when laughing (Hurts like hell), coughing, sneezing), or well even passing gas that doctors want you to do before eating solid foods. As far as my experience has gone, I have no regrets of getting a transplant. All my problems seem mostly with after care/ lack of, but would do it again because I felt so much better. The more walking the better even though it can get boring due to the same scenery.. When allowed to eat, start off slow, build your way up, the meds may make you  :puke; when it comes to eating solid food again.

Can't think of to much right now
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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