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Author Topic: wallyz got THE CALL!  (Read 13465 times)
KarenInWA
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« Reply #50 on: December 20, 2009, 02:19:19 AM »
Dana's latest FB status says she's skipping church so she can take the kids to go see him.  Yay!!!  That will be reassuring for them, and I am sure it will lift Brian's spirits immensley.  Nothing like speeding up the healing with a child's love and laughter!  :cuddle;
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Chris
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« Reply #51 on: December 20, 2009, 02:49:40 AM »
That will be a good thing. I wouldn't see it as a problem skipping church either to go see him and taking the kids to see him, that should be an understandable situation for most at their church. If kids get out of and, puch the morphine button!  :rofl; :rofl; You won't care in a few minutes  :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sluff
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« Reply #52 on: December 20, 2009, 11:15:02 PM »
It will all be worth it Wallyz. Good Luck! What a Christmas present.
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skyedogrocks
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Rob showing off his pot of gold!
« Reply #53 on: December 21, 2009, 03:41:59 AM »
Just saw this thread...YEAH Wallyz!!!  What a great Christmas gift!  Hope you start feeling better soon, it gets easier day by day!  CONGRATS!!!vv :bandance; :bandance; :bandance;
Logged
Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
kellyt
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« Reply #54 on: December 21, 2009, 07:08:20 AM »
I hope everything's going well, Wallyz!!   Take care!!!
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
KarenInWA
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« Reply #55 on: December 24, 2009, 06:48:25 AM »
Hey Everyone,

Please keep Brian in your thoughts and prayers.  Latest FB updates told of him experiencing pain, having an emergency CT scan, which found an infection in his small intestine.  He's back to being hooked up to a bunch of tubes, including the NG tube.  He's also back in CCU for closer monitoring.  They did a needle aspiration around the kidney, to make sure there is no infection there.  This all was probably caused by a leak during surgery.  :'(

Prayers and positive thoughts so all this medicine and care will get him healthy and happy by the new year.

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Chris
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Gender: Male
Posts: 9219


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« Reply #56 on: December 24, 2009, 01:19:09 PM »
I was about to leave you a message on FB asking about Brian Karen. Sorry to hear that Brian is having trouble, but seems like we all have some sort of trouble with this transplant post surgery due to it beingmore complicated. Some problems are minor, while some maybe major with each patient. Hopefully they have a small Christmas Tree in his room or some sort of decorations.

Get Well Brian.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jbeany
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Posts: 7536


Cattitude
« Reply #57 on: December 25, 2009, 07:52:22 AM »
Hang in there, Brian.  It will be worth it!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
pelagia
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« Reply #58 on: December 25, 2009, 08:59:35 AM »
Wow wow wow!  I hope the healing speeds up so you can go home soon.  What a wonderful Christmas gift. :snowman;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kellyt
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« Reply #59 on: December 25, 2009, 04:17:30 PM »
Good thoughts and prayers to you and your family Wallyz!!!!!!    :pray; :pray;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
cariad
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What's past is prologue
« Reply #60 on: January 01, 2010, 05:22:41 PM »
Any updates on wallyz? I have been keeping a good thought for him.

Feel better, wallyz.  :bestwishes;  :grouphug;
Logged
Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Wallyz
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« Reply #61 on: January 01, 2010, 09:30:52 PM »
Quote from: cariad on January 01, 2010, 05:22:41 PM
Any updates on wallyz? I have been keeping a good thought for him.

Feel better, wallyz.  :bestwishes;  :grouphug;

well, the full update  .  I got my organs on the 15th. I progressed well until the 20th. P. The 21 saw me with some pain and pressue that  increased until early on the 23rd when I was taken down to cr and intervatioal radiiology, where they drained over 700ml of infected
fluid. I spent a night I'n the ccu.  They let me backup stairs nextt
 day.  I stayed up on the transplant ward until the  27 th. I then had emergency surgergy to repaif
r two holes in my abdomen  In bed since then.  Total fluid drained off:4200
ml from two different drains .  Estimated time until discharge: 1 1/2 weeks, 4 weeks total.

Creattine 1,72 bun 27
I now have a Montgomery closure on my abdomen which wll take
a lot longer to heal,   





Edited: Fixed quote tag error - okarol/admin
« Last Edit: January 02, 2010, 12:32:15 AM by okarol » Logged
Chris
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« Reply #62 on: January 01, 2010, 09:40:52 PM »
Glad to hear from you Wallyz, but sorry to hear what has happened. First time hearing about that closure though. Hope blood sugar is in control now though.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #63 on: January 02, 2010, 12:34:02 AM »
 :pray; Wow Wallyz - I hope things get better soon!
 :cuddle; :cuddle; :cuddle;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #64 on: January 02, 2010, 12:46:38 AM »
Thinking of you Wallyz - one day at a time mate - you'll get there.
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
kellyt
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« Reply #65 on: January 02, 2010, 04:07:07 AM »
 :cuddle;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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Posts: 8323


Might as well smile
« Reply #66 on: January 02, 2010, 05:14:38 AM »
Sending good thoughts your way wallyz and hoping for speedy ,or at least effective, healing.   :cuddle;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #67 on: January 02, 2010, 09:39:02 AM »
It's a new year and hopefully a new and better dawn for you mate. Have been praying for you to get a call that stuck and that's finally happened... now moving on to quick healing and no more bloody problems!!! I want you to post pics of you with a bloody huge Venti coffee ASAP!!!!  :bow; :bow; :bow; :bow;
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paris
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« Reply #68 on: January 02, 2010, 01:17:10 PM »
Wallyz -- keeping you in my prayers   :pray;   Hoping for a little healing every day.  Miss your posts!   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
cariad
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What's past is prologue
« Reply #69 on: January 02, 2010, 03:38:14 PM »
Sorry to hear it's been so rough, Wallyz. I hope you start feeling better soon. You dual transplant recipients are a strong lot! 
Logged
Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
glitter
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« Reply #70 on: January 02, 2010, 03:52:19 PM »
Sorry its been so rough- :grouphug; :grouphug; :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #71 on: January 03, 2010, 12:49:39 AM »
Wallyz...
Hey folks, I am still off food and
Still recovering slowly thanks for all your continued prayers.
2 hours ago via Facebook for iPhone
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KarenInWA
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Posts: 1041
« Reply #72 on: January 04, 2010, 09:33:11 PM »
Hey Everyone,

Hard times for Brian.  His latest FB update:

"More surgery to morrow. Still haven't stopped the leak. Probably lost pancreas ttrying to save kidney.,:"

And from Dana:

"Doctors found another hole and Brian is going back into surgery. They think the pancreas must have some necrotic tissue, so they will likely remove it. Urgent prayer requested!

Surgery will happen tomorrow. Most likely will have to remove pancreas, but there is a tiny chance it could be saved (pray for miracle here). Kidney should survive all this, so at least we have that. Spirits are low :("

So, surgery is on Tuesday, Jan 5th.  Please, pray, sing, yell, do a kidney/pancreas dance, whatever spiritual energy works for you.  Just do it and send that energy to Seattle, to help save that pancreas and help that kidney remain strong and functioning!!!  He's come too far to have this happen.   :boxing;

Thank you,

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Chris
Member for Life
******
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Gender: Male
Posts: 9219


WWW
« Reply #73 on: January 04, 2010, 09:43:56 PM »
Sorry to hear abou this about Wallyz Karen. I didn't see that you put an update on FB.

Hopefully that can manage to save both.

Always seems they do things so slowly at such an important time doesn't it?
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Hanify
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*****
Offline Offline

Gender: Female
Posts: 1814


Hadija, Athol, Me and Molly at Havelock North 09
« Reply #74 on: January 04, 2010, 11:17:49 PM »
Thinking of you both
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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