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Dialysis: Transplant Discussion
wallyz got THE CALL!
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Topic: wallyz got THE CALL! (Read 13884 times)
okarol
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Photo is Jenna - after Disneyland - 1988
wallyz got THE CALL!
«
on:
December 14, 2009, 09:27:59 PM »
I didn't post earlier because I didn't want to jinx it - but the last message I got looks VERY good!
He was called this morning for a kidney/pancreas transplant.
7:26 AM PST wallyz commented on his status:
"We'll know by 10:00 PST. Thanks everybody."
9:08 AM PST wallyz commented on his status:
"It's a go so far. Heading into the hospital @11 AM PST."
2:20 PM PST wallyz: "Had a couple people refer to this as a Christmas Miracle- I would prefer a Hannukah miracle, where the Kidney and pancreas last eight times as long as anyone expects. Thanks everyone."
3:09 PM wallyz: "Going to Surgery @ 5:00 PM PST. Thanks everyone."
7:15 PM PST
Dana commented on his status:
"he is in surgery now and will be done sometime between midnight and 2am. The doctor says the organs look great and that he is in great shape going in, so everything seems right on track."
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
KarenInWA
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Re: wallyz got THE CALL!
«
Reply #1 on:
December 14, 2009, 09:42:56 PM »
Thank you, Karol, for posting this! I had been thinking of posting it too, but didn't want to post it too soon! Here's hoping for a smooth surgery and recovery for our friend, Wallyz!
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011 - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Des
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Re: wallyz got THE CALL!
«
Reply #2 on:
December 14, 2009, 10:06:04 PM »
This is SO exciting
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Jean
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Re: wallyz got THE CALL!
«
Reply #3 on:
December 14, 2009, 11:18:21 PM »
Yippee, that is so wonderful. Pray all goes well for him.
Logged
One day at a time, thats all I can do.
tubes
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Miss you so much Susie. Will always <3 you!
Re: wallyz got THE CALL!
«
Reply #4 on:
December 14, 2009, 11:33:20 PM »
wonderful news
Will be keeping you in my thoughts.
Logged
"To be happy is the choice I wish to make in spite of the circumstances that are strewn in my path."
1996 - started incenter hemo
a few months later, started PD
2005 - started incenter hemo
AGAIN
- on transplant list as of August 7, 2009.
2011/June - 15 years on "D"
Transplant - Tuesday October 18th 2011
breezysummerday
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Re: wallyz got THE CALL!
«
Reply #5 on:
December 14, 2009, 11:40:37 PM »
praying and wishing for the most positive outcomes!! Go Wally Go Wally....hang in there!
Logged
caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
Sunny
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Sunny
Re: wallyz got THE CALL!
«
Reply #6 on:
December 14, 2009, 11:42:52 PM »
I am so happy for wallyz. I hope everything is going well.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
YLGuy
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Re: wallyz got THE CALL!
«
Reply #7 on:
December 15, 2009, 01:05:11 AM »
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Darthvadar
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Re: wallyz got THE CALL!
«
Reply #8 on:
December 15, 2009, 02:10:23 AM »
Great news!....
Thinking of, and praying for you, Wally... And of course, keping the donor family in my thoughts, too...
Love...
Darth...
Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
RichardMEL
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Re: wallyz got THE CALL!
«
Reply #9 on:
December 15, 2009, 03:45:51 AM »
about time for poor Wally!! Can understand karol not wanting to jinx it!!! I just checked in to see if there was an update... hopefully he wakes up happy as larry with a working kidney and pancreas!! My fingers are crossed for him and I'm so excited that FINALLY this is the one for him!!!!!
Logged
3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paul.karen
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Re: wallyz got THE CALL!
«
Reply #10 on:
December 15, 2009, 04:35:09 AM »
Wishing you all the best Wally.
Logged
Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
willowtreewren
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My two beautifull granddaughters
Re: wallyz got THE CALL!
«
Reply #11 on:
December 15, 2009, 04:49:36 AM »
Woot!
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
monrein
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Might as well smile
Re: wallyz got THE CALL!
«
Reply #12 on:
December 15, 2009, 05:14:17 AM »
Fantastic!
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
cookie2008
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Re: wallyz got THE CALL!
«
Reply #13 on:
December 15, 2009, 05:47:49 AM »
Logged
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
jbeany
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Cattitude
Re: wallyz got THE CALL!
«
Reply #14 on:
December 15, 2009, 07:46:32 AM »
Hurray!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
lola
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I can fly!!!
Re: wallyz got THE CALL!
«
Reply #15 on:
December 15, 2009, 08:17:48 AM »
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www.caringbridge.org/visit/ottomachado
okarol
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Photo is Jenna - after Disneyland - 1988
Re: wallyz got THE CALL!
«
Reply #16 on:
December 15, 2009, 08:20:22 AM »
4:20 am PST
Dana updated:
Let everyone know that Brian is out of surgery and beginning to make urine! His blood sugars are good and they stopped IV insulin. He looks like hell, but he's going to be better than ever when he heals!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
tyefly
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This will be me...... Next spring.... I earned it.
Re: wallyz got THE CALL!
«
Reply #17 on:
December 15, 2009, 08:45:03 AM »
such great news......
Logged
IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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Re: wallyz got THE CALL!
«
Reply #18 on:
December 15, 2009, 09:18:24 AM »
So thrilled for him! He has had a tough time with calls and then not getting the organs. So yea! for Wallyz and praying for a great recover
Logged
It's not what you gather, but what you scatter that tells what kind of life you have lived.
KarenInWA
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Re: wallyz got THE CALL!
«
Reply #19 on:
December 15, 2009, 10:08:41 AM »
I am planning on visiting him this Saturday. Please let me know if any of you want me to deliver any messages to him. Feel free to PM me!
KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011 - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
KarenInWA
Elite Member
Offline
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Posts: 1041
Re: wallyz got THE CALL!
«
Reply #20 on:
December 15, 2009, 04:15:13 PM »
Here are the latest updates from Mrs. Wallyz....
11:00 AM PST - Brian had his ventilator tube removed so he can talk now. He says thanks for all the prayers, he's happy to be peeing, he feels horrible and he's greatful for all the support.
He has been cracking lame jokes this whole time - the only time it stopped was when the ventilator tube was in.
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011 - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
okarol
Administrator
Member for Life
Offline
Gender:
Posts: 100933
Photo is Jenna - after Disneyland - 1988
Re: wallyz got THE CALL!
«
Reply #21 on:
December 15, 2009, 04:23:00 PM »
Thanks! I am so happy!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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Posts: 4208
What's past is prologue
Re: wallyz got THE CALL!
«
Reply #22 on:
December 15, 2009, 05:26:23 PM »
WOW!!!! This is incredible news! At last, at last!
Congrats, Wallyz. Keep the jokes coming - don't let that ventilator tube stop you!
Logged
Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
willowtreewren
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My two beautifull granddaughters
Re: wallyz got THE CALL!
«
Reply #23 on:
December 15, 2009, 05:35:24 PM »
Good news, good news!
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
RichardMEL
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Posts: 6154
Re: wallyz got THE CALL!
«
Reply #24 on:
December 15, 2009, 11:02:07 PM »
I think some of us have been more on tenderhooks for him to get the organs than he has!!!
I'm so happy this is the best news of the month for me. I'm overjoyed he is peeing and sugars are great - could be the start of a whole new wonderful life for Brian, and that's just sensational.
Another miracle for the IHD crew!
Logged
3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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