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Author Topic: wallyz got THE CALL!  (Read 13882 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #75 on: January 04, 2010, 11:33:36 PM »
 :pray; Praying for healing and recovery - I am sorry it's been so tough.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #76 on: January 05, 2010, 05:30:08 AM »
 :grouphug;  to Brian and Dana.  My thoughts and hopes and energy and prayers are on their way.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Des
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« Reply #77 on: January 05, 2010, 08:25:11 AM »
 :stressed;  I am thinking of you both and I am sending prayers and love your way.

Let us know how it went.

D :flower;
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
cariad
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What's past is prologue
« Reply #78 on: January 05, 2010, 10:04:54 AM »
Concentrating positive thoughts and hopes on a miracle for Wallyz.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
billybags
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« Reply #79 on: January 05, 2010, 10:26:07 AM »
Thinking of you to-day.
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kellyt
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« Reply #80 on: January 05, 2010, 11:11:23 AM »
Thinking about you today, Wallyz!!!!   :pray;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
RichardMEL
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« Reply #81 on: January 05, 2010, 05:05:13 PM »
man of all the folks I know wallyz just doesn't deserve this!!! So badly sending positive vibes and thoughts that the Pancreas can be saved and this latest surgery goes OK!

Thanks for keeping us updated!!
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
KarenInWA
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« Reply #82 on: January 05, 2010, 07:41:12 PM »
Hello again,

The pancreas didn't make it.  From Dana's FB:

"Surgery is finished and we lost the pancreas. We prayed for it to be a clear decision and it was, so now we heal and try to remember that we still have a working kidney. Brian still needs prayer, guys."

So now we just need to pray and send positive vibes/thoughts to help him have a speedy, healthy recovery.  He does have that working kidney, and that is indeed a Godsend.  Now we need him to be back at home so he can be with his family, and of course his computer so he can post here again!  May that kidney give him many years of freedom from the machine!

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
kellyt
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« Reply #83 on: January 05, 2010, 07:44:04 PM »
My deepest condolences on your pancreas, wallyz!   But we are grateful for that beautiful kidney.   Go Kidney Go!!!!!    :cuddle;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
cariad
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What's past is prologue
« Reply #84 on: January 05, 2010, 07:51:50 PM »
So sorry to hear this news.  :(

 :grouphug; Hoping for a speedy recovery as you look forward, Brian. Freedom from dialysis is indeed a wonderful thing. Long may it continue. 
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Chris
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« Reply #85 on: January 05, 2010, 07:52:57 PM »
Sorry to hear about Brian Karen. On the one positive thing is that at least he did not feel the independence of not taking insulin and then having the pancreas fail in a short time frame. I hope he can now heal fast and feel better with a working kidney.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #86 on: January 05, 2010, 07:53:41 PM »
I hope you recover soon Brian, and can come home. Best wishes to you! :grouphug; :grouphug; :grouphug;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #87 on: January 06, 2010, 03:17:12 AM »
 :embarassed: so sorry to here..... I am glad the kidney is still going.
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
pelagia
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« Reply #88 on: January 06, 2010, 07:02:21 AM »
Happy to hear about the kidney hanging in there.  I'll be Keeping Brian, Dana and their family in my thoughts and prayers.  Linda
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willowtreewren
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My two beautifull granddaughters

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« Reply #89 on: January 06, 2010, 08:14:04 AM »
 :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
KarenInWA
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« Reply #90 on: January 17, 2010, 12:20:32 AM »
Hey Everyone,

Word is Brian will be going home soon - maybe even today!  If not today, then for sure Monday or Tuesday.  Wishing him a very happy, loving, tear-inducing (how could it not be?), warm, comforting homecoming.  Also, may his recovery continue to go on the right track.  I bet it will be kind of weird for him to to sleep in his own bed and *not* be attached to the machine anymore.  However, I'm sure he will get used to that in no time!

Welcome home, Brian!!!

 :cuddle;  :beer1;

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Chris
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« Reply #91 on: January 17, 2010, 12:57:03 PM »
Thanks Karen,
That is good news that he finally get's to go home. Hope your feeling a lot better Brian.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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Posts: 6928


My two beautifull granddaughters

WWW
« Reply #92 on: January 17, 2010, 12:58:35 PM »
 :welcomesign; home~

 :2thumbsup; :2thumbsup;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Hanify
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Posts: 1814


Hadija, Athol, Me and Molly at Havelock North 09
« Reply #93 on: January 17, 2010, 01:53:58 PM »
Yay
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
kellyt
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« Reply #94 on: January 17, 2010, 02:53:36 PM »
And the sound of the day for Brian is.....  aaahhhhhhh.   That's the sound you make after sitting on any furniture that belongs to you after being in those ridiculous beds at the hospital.   Welcome Home Brian!!!!!!!
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
KarenInWA
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Posts: 1041
« Reply #95 on: January 17, 2010, 07:09:24 PM »
Hello Again,

Ok, he didn't get to go home, BUT, he is on the right track!  He is staying in a hotel nearby the hospital, I believe it is a hotel speciifically for the hospital.  I know of one other kidney transplant patient who stayed there, as well.  It is easier to stay there due to the daily appointments he will be having for a while.  Also, Brian is a bit week from being in the hospital for 5 weeks, so he's not quite ready to go home yet.  He lives about 45 minutes away from the hospital (and that's when the traffic is good), so this is better given the circumstances.  Still, it beats sleeping in a hospital bed and having to wear one of those god-awful gowns!  I am sure he is enjoying sleeping in a comfortable bed, with no constant interruptions from nurses and other hospital personnel.  I bet the tv in there is better, too.  I understand he watched football today. :)

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Chris
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Gender: Male
Posts: 9219


WWW
« Reply #96 on: January 17, 2010, 10:14:46 PM »
Well that is still good Karen. My tx center has a center for paitents to stay at to, but I went home instead and that ride home was awful with bumbs in the road, but getting back was easy using the commuter train. I hope he has someone staying with him for most of the day for company and to help him get to the hospital since he is weak, I needed help. Sometimes the mind says I can till you are actually doing it.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Wallyz
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Posts: 991
« Reply #97 on: January 19, 2010, 09:17:20 AM »
Home. Finally. Unfortunately filled  with lots and lots of family, so not as restful as one might hope.  an overview of the whole process is in order I think.

Dec 13: Got the call
Dec 14-15 Operation receiving Kidney and pancreas from cadaver donor.
Dec 23 ileus of the bowel that required drains to be inserted
Dec 28 Abdominal surgery to repair pancreas graft
Jan 5 Abdominal surgery to remove pancreas.
Jan 17 released from hospital.

35 days later, here we are.

Kidney is functioning well, (Creatinine 1.42, BUN 20) but I am  weak as crap.

I have an open incision with a montgomery closure, so the scar will be impressive.


Thanks for all the support and prayers.  Keep fighting, keep loving each other and your loved ones.
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Chris
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« Reply #98 on: January 19, 2010, 10:27:48 AM »
Wallyz, use the transplant  to kicksome people out  :2thumbsup; Say it's a saftey concern for you, especially if someone is sniffilling or coughing.

Coming home is suppose to be nice and relaxing :2thumbsup;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kellyt
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Gender: Female
Posts: 3840
« Reply #99 on: January 19, 2010, 03:30:30 PM »
Yes, a transplant during cold and flu season is a good reason to be left alone so you can rest.

Take care, Brian.  We are all so happy for you.   :beer1;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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