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Author Topic: Getting treated for rejection: Update  (Read 24954 times)
MIbarra
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Stopping to smell the bluebonnets
« Reply #100 on: June 02, 2009, 08:18:44 PM »
2.5! Yay! So happy to hear this!  :flower;
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Cadaver transplant April 29, 2007
Wenchie58
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Always carrying the big silly grin!
« Reply #101 on: June 02, 2009, 09:52:02 PM »
YAY!!!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
donnia
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me and my donor Joyce
« Reply #102 on: June 03, 2009, 08:31:01 PM »
Got the copies today and it was actually 2.47... does my neph not know how much that extra .003 means to is?!?!?  LOL

Chris, I'm not sure if my hospital has email for us.... i will ask next time!  LOL
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Chris
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« Reply #103 on: June 03, 2009, 09:04:03 PM »
Quote from: donnia on June 03, 2009, 08:31:01 PM


Chris, I'm not sure if my hospital has email for us.... i will ask next time!  LOL

My people will get of hold of your people and we'll get conneted sometime  :rofl; :rofl; :rofl;

That small difference does mean a lot to us and our bodies. We can tell a small diference in change in our bodies they can not by numbers.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
donnia
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me and my donor Joyce
« Reply #104 on: June 04, 2009, 05:56:09 AM »
That would have been too cool to be emailing back and forth.... I should have  asked for your cell phone number, we could have texted!!!!!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Chris
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« Reply #105 on: June 04, 2009, 08:41:00 PM »
That was the easiest way to keep multiple people updated at once besides word of mouth over the phone.Need to switch to verizon to get voice to text capability, so if I amgoing to be blind for several months, that would be the easiest and only way to be connected somewhat to IHD. ;D
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
donnia
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me and my donor Joyce
« Reply #106 on: June 09, 2009, 10:12:50 AM »
Wow Chris,  I didn't even know there was a feature like that... too cool!

Update..... you ready for this ? ? ? ? ? ? ? ?

Yesterdays labs........

Creatinine = 1.68   BUN = 32  :cheer:

WOOOOOOO HOOOOOOOOOOOO  I cried!!!!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
breezysummerday
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« Reply #107 on: June 09, 2009, 10:34:59 AM »



                                          BA BAM!!!


           :bandance;    :bandance;   THIS IS THE BEST DAMN NEWS!!    :bandance;    :bandance;
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
Laurie
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May 13, 2008
« Reply #108 on: June 09, 2009, 11:24:40 AM »
 :cheer:  :cheer: That must be such a relief for you!!!  :cheer:  :cheer:
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
paris
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« Reply #109 on: June 09, 2009, 11:44:17 AM »
This is the best thing I have heard for awhile!  I am so excited for you and "hope".  Can you feel how glad we are for you?   :grouphug;   :yahoo;   :2thumbsup;   :bandance;   :cheer:     I thnk many of us have tears of joy for you!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #110 on: June 09, 2009, 12:39:14 PM »
  W :flower; O :flower; W  :flower; !!

Oh Donnia - I am so happy for you!! Never gave up HOPE!!
 :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
donnia
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me and my donor Joyce
« Reply #111 on: June 09, 2009, 12:41:08 PM »
Thank you all soooo much!  I have full faith that 'Hope' will make a FULL recovery!!!

btw... is anyone on Everolimus???  They are talking about switching me from Rapamune to Everolimus.....
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #112 on: June 09, 2009, 01:00:12 PM »
Just my 2 cents Donnia - but if it ain't broke - don't fix it! I think I would hold off making any changes - you've had great improvement and changing meds again could create another challenge. I would give it more time to stabilize.
« Last Edit: June 09, 2009, 01:20:36 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #113 on: June 09, 2009, 01:12:30 PM »
 :bandance; Way to go HOPE!     :clap;



 :flower;
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willowtreewren
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My two beautifull granddaughters

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« Reply #114 on: June 09, 2009, 01:14:24 PM »
 :bandance; :bandance;

Woot, Woot!

 :cheer: :cheer:

YAY!

 :2thumbsup; :2thumbsup; :guitar:
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
charee
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« Reply #115 on: June 09, 2009, 03:29:35 PM »
 :bandance; Great news Donnia :bandance;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
chris73
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its me ...Chris

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« Reply #116 on: June 09, 2009, 05:34:17 PM »
Great news!!! "Hope"  the creatinine continues going down!!! been a rough road for ya looks like its gonna work out!!   God Bless!!!....  Chris
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
Wenchie58
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Always carrying the big silly grin!
« Reply #117 on: June 09, 2009, 05:38:52 PM »
YAYYY!!!!!  :yahoo;

Hope is tougher than anyone gives her credit for.  My creat last week was 2.1, best number I have seen since January.  I would cry for your numbers too!!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
MIbarra
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Stopping to smell the bluebonnets
« Reply #118 on: June 09, 2009, 05:48:45 PM »
 :clap;  :clap;  :clap;
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Cadaver transplant April 29, 2007
Jill D.
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« Reply #119 on: June 09, 2009, 06:55:35 PM »
This is great news!!! YAY!!! :2thumbsup;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Chris
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« Reply #120 on: June 09, 2009, 09:02:10 PM »
Quote from: donnia on June 09, 2009, 12:41:08 PM
Thank you all soooo much!  I have full faith that 'Hope' will make a FULL recovery!!!

btw... is anyone on Everolimus???  They are talking about switching me from Rapamune to Everolimus.....

Great news Donnia

The phone is new to Verizon on a Motorola q9 phone that is specially ordered from Verizon. Just found out about it coming out from The American Federation For The Blind.

As for that medication, that is the first I have heard of it. It's not listed in any information I have.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
donnia
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me and my donor Joyce
« Reply #121 on: June 10, 2009, 02:24:32 PM »
Yeah, it is a new medication.... and cost $6400 a month!!!!!!!!!!!!!!!!!!!!!!!!!!

I called my coordinator back and I think we are gonna stay on the rapamune lol   :flower;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
pelagia
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« Reply #122 on: June 13, 2009, 08:16:15 PM »
I haven't been able to check in much lately, but this news is the greatest! I am very, very happy for you! :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
donnia
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me and my donor Joyce
« Reply #123 on: June 16, 2009, 05:09:29 PM »
Got my labs from yesterday!

Creatinine down from 1.68 to 1.54 and BUN down from 32 to 31!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Romona
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« Reply #124 on: June 16, 2009, 06:23:02 PM »
 :bandance;
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