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Author Topic: Getting treated for rejection: Update  (Read 24956 times)
donnia
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me and my donor Joyce
« on: May 23, 2009, 12:05:23 AM »
 
Well, I am back at my transplant hospital in Lubbock.  We have not received results from my biopsy yet but we did get blood tests back that showed my immunosuppresents were low.  They don't like to see the number over 500 because it puts you at too much risk for rejection.  Mine was 949 so that shows I am battling rejection.  Dr. Helfrich called me at 4:20 and we were on the road by 5:10.  I was admitted and they have done blood work and started my IV.  At 8am they will take me for a sonogram and more blood work then start IV immunosuppresents.  I will update often :)
 
Please say a little prayer that "Hope" fights back and kicks back in!  Joyce already told me 'her kidney ain't no wimp' so I think everything will be fine :)
 
(I welcome your emails..... I'm gonna get awfully bored in the hospital!!!!!)
 
 
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
rose1999
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« Reply #1 on: May 23, 2009, 12:34:11 AM »
Hi Donnia

Still praying for you and 'hope' - sending love your way  :grouphug;  Get well soon, Rose xx
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charee
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« Reply #2 on: May 23, 2009, 12:35:14 AM »
Thinking of you :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
donnia
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me and my donor Joyce
« Reply #3 on: May 23, 2009, 03:12:24 AM »
Update:

Cretinine Tuesday before dialysis = 5.0
Creatinine last night when I got to Lubbock = 3.7

Nurse said she doesn't have orders to do the IV treatments.... wth?  I guess my tx dr plans on giving the orders when he gets here.  My tx nephrologist is who has ordered a sono of the kidney at 8am.

Will update with any more information as I receive it... I hope you dont get sick of my meaningless updates.... I'm bored LOL!   :flower;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Tinah1968
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ME
« Reply #4 on: May 23, 2009, 03:25:31 AM »
I am praying for you hoping it all goes well... :cuddle;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
monrein
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Might as well smile
« Reply #5 on: May 23, 2009, 04:07:18 AM »
Donnia, those are far from being meaningless updates.  Give your head a shake.  We want those updates even if we don't respond every single time to every single one.  Oops, I meant I, instead of we, there I think.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kimcanada
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« Reply #6 on: May 23, 2009, 04:23:51 AM »
Donnia, I agree with monrein, no update is to small...

I just want you to know that I am sending all my prayers to "hope"
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willieandwinnie
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« Reply #7 on: May 23, 2009, 04:47:44 AM »
 :grouphug; donnia, keep the updates coming. I am praying so hard for you.  :cuddle;
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David13
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« Reply #8 on: May 23, 2009, 04:51:37 AM »
Keep the updates coming!   :cuddle;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
lola
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« Reply #9 on: May 23, 2009, 06:50:35 AM »
 :grouphug;   :grouphug;
 :cheer: :cheer:  GO HOPE GO :cheer: :cheer:




Edited - Fixed smiley error: paris, Moderator
« Last Edit: May 23, 2009, 05:52:59 PM by paris » Logged
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willowtreewren
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« Reply #10 on: May 23, 2009, 07:00:46 AM »
EVERY update is meaningful, even if you have no "new" news to report. We are here for you Donnia. Keep boredom at bay by keeping in touch with us.

I'm pulling for Hope all the way.  :cheer:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
st789
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« Reply #11 on: May 23, 2009, 07:07:47 AM »
Pray for you.
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MIbarra
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Stopping to smell the bluebonnets
« Reply #12 on: May 23, 2009, 07:25:29 AM »
Keep updating and we'll keep praying and hoping!  :cheer:
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Cadaver transplant April 29, 2007
kellyt
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« Reply #13 on: May 23, 2009, 07:28:19 AM »
"Hope" needs to get her azz in gear and start working again.    :boxing;     VACATION OVER HOPE!!!!!!! 
Lots of love and energy going out to you today, Donnia!!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
donnia
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me and my donor Joyce
« Reply #14 on: May 23, 2009, 07:38:30 AM »
Thanks Kelly LOL... Get ur azz in gear Hope!!!!

Okay.... so last night at 12:45 am (I guess this morning lol) my BUN was 47 and Creatinine 3.7
This morning at 6:15 am BUN 49 and Creatinine 3.6

Hummm.... my creatinine went down .1 hummmm... okay, that's my update LOL...

Still waiting for my 8am sonogram.... anybody got the time.... yep, 9:40am  :)
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
MIbarra
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Stopping to smell the bluebonnets
« Reply #15 on: May 23, 2009, 09:08:22 AM »
Hospitals seem to be on their very own time!

I hope you're hanging in there.
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Cadaver transplant April 29, 2007
donnia
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me and my donor Joyce
« Reply #16 on: May 23, 2009, 09:54:45 AM »
Just got back from my tests.... they actually put radioactive stuff in my iv to see how quickly my kidney would process it.  We won't get the results till later.  They are going to go ahead and start the iv immunosuppresents just incase.  My tx nephrologist said 2 - 3  treatments  wouldnt hurt me if it isn't rejection.... the bad thing about it is.... as my neph put it... it is the motherload of meds.... will totally deplete my immune system.  No work or being around people for about 4 weeks.... just like a new tx.

Will update more when I hear more  :flower;
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willieandwinnie
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« Reply #17 on: May 23, 2009, 10:07:30 AM »
Oh donnia.  :waving; Make sure you watch the nurses and doctors that are treating you, they are the worst for being sick and showing up at work. Makes me so mad. Please let us know what the scan showed when you know. Keeping my fingers and toes crossed.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
donnia
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me and my donor Joyce
« Reply #18 on: May 23, 2009, 11:58:48 AM »
Will do W&W!

Goin down to radiology to have a central line put in.... yay!

Hey, it beats getting poked on all the time!

 :flower; 
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willowtreewren
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My two beautifull granddaughters

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« Reply #19 on: May 23, 2009, 12:00:57 PM »
Being isolated for 4 weeks will be no joy ride, but at least you'll have your IHD friends to visit!

I hope the tests turn out well.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MandaMe1986
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« Reply #20 on: May 23, 2009, 12:12:57 PM »
Good luck with the line.  You are in my prayers.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
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Blessed are the peacemakers, for they will be called children of God.

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glitter
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« Reply #21 on: May 23, 2009, 12:35:53 PM »
you sweet girl-  I like to read your updates- rooting for your kidney !!! :flower;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Adam_W
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Me with Baron von Fresenius
« Reply #22 on: May 23, 2009, 12:40:31 PM »
 :grouphug;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
donnia
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me and my donor Joyce
« Reply #23 on: May 23, 2009, 01:26:08 PM »
Well, the central line hurt like tha dickens.... but it was quick... now they can take the painful IV out.

They are going to stop the oral prednisone and give me prednisone in the central line.... along with the immunosuppresents and benedryl  (woot woot!!!!).  Since my hip replacement April 28th I have had a hard time getting comfortable and sleeping.  I get leg spasms and benedryl helps with the spasms.

Updates to come   :flower;
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Wenchie58
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« Reply #24 on: May 23, 2009, 02:20:53 PM »
3.6??  Oh YEAHHHH  I can relate to that number Donnia.....Hope is still there and kickin!  Another "lil kidney that could"!  I have a good feeling now...you're in my thoughts.  Kalvin (my lil kidney that can) and I are pulling for you and Hope.   GO  GO  GO!!   :cheer:
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
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