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Author Topic: Getting treated for rejection: Update  (Read 24957 times)
willowtreewren
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« Reply #75 on: May 27, 2009, 06:23:25 AM »
Wonderful news with your lab results.  :cheer: :cheer:

Keep up the wonderful progress.

Only on IHD would peeing be such an exciting topic!  :rofl;

Take care,
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
pelagia
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« Reply #76 on: May 27, 2009, 02:59:13 PM »
 :yahoo; great news :yahoo;
 :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Wenchie58
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« Reply #77 on: May 27, 2009, 03:02:48 PM »
 :flower;  :cheer:  :bandance;  :bandance;  :cheer:  :flower;

There are no words!!

 :boxing;   <---Hope
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
kimcanada
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« Reply #78 on: May 27, 2009, 04:05:27 PM »
Donna I am thrilled to hear this news, hope you one tough kick ass kidney!!!  >:D
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donnia
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« Reply #79 on: May 27, 2009, 04:50:07 PM »
Thank you..... Thank you..... Thank you!!!!!!!

Okay.... things have changed bigtime..... here's the jist.

They have stopped the treatment because the biopsy shows it is not rejection.
 
They are saying 'chronic' tubular necrosis.  But even my coordinator said it doesn't seem 'chroni'c, seems it would be 'acute' because it came on quickly.
 
This is what I found on acute tubular necrosis:
 
 
The duration of symptoms varies. The decreased urine output phase may last from a few days to 6 weeks or more (yes this happened to me). This is occasionally followed by a period of high urine output, where the healed and newly functioning kidneys try to clear the body of fluid and wastes (this is happening to me right now... peeing like a russian racehorse!!!).

One or two days after urine output rises, symptoms reduce and laboratory values begin to return to normal (happening right now).

 
Everything that I have read so far has been positive on this.... I hope this is what I have!!!  Seems like it will correct itself and get back to normal.... Please keep me in your prayers.  Im not out of the woods yet.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
paris
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« Reply #80 on: May 27, 2009, 05:11:13 PM »
I hope this is the answer!   I like the direction the labs are going  :2thumbsup;   Still saying lots of prayers   :grouphug;
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Romona
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« Reply #81 on: May 27, 2009, 06:13:51 PM »
Prograf can damage the tubals. That has happened to me. I take bi-carb and phosphorous. I am glad that your biopsy showed no rejection! :grouphug;
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donnia
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« Reply #82 on: May 28, 2009, 05:46:38 AM »
Labs in:
BUN 62......... 61......59 ....... 60 (Dont know why it keeps going up)

Creatinine  3.1 ......... 3.3 ..... 3.5 ....3.8

WBC    3.8........ 2.7.......3.1 ...... 3.9
RBC     2.80 (epo shot) ........ 2.77......... 2.84 ..... 2.82 
Hgb     8.4 ........8.3...........  8.5 .........8.6
Hct     24.9 .......24.9 ............  25.4 .......... 25.6
Phos   4.0 ...........4.1..........4.5 ....... 6.0

GFR    17 ........16........  15 ...... 13

:cheer: :cheer: :cheer: These labs are all better (except BUN) without taking my treatment yesterday :cheer: :cheer: :cheer:

I would also like to say  :birthday; to my daughter Brianna,  she turns 15 today and starts drivers ed on Saturday
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
donnia
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« Reply #83 on: May 28, 2009, 07:05:33 AM »
Just talked to the dr.  and he is sending me home today.  The preliminary biopsy report says it is chronic graft necrosis.  Which means I probably had actute rejection 3 wks ago but now it has gone further.  It has probably shaved some time off of my kidney.  We wont know how much until it starts to fail.  My creatinine is 3.1 right now and if it gets to 2 I will be happy.... hopefully it will get lower though.
 
I am sooooooooooooo sueing the pants off the surgeon.  The one drug that he used that we think started all this is KNOWN to attack the kidney.  If he would have taken 3 minutes to call my kidney dr, he would have been told not to use it.  I am so upset!

Modify:  The drug is vancamiacyn.... dont let anyone use it on you!

Thank you for being here for me my sweets! 
« Last Edit: May 28, 2009, 07:07:21 AM by donnia » Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willieandwinnie
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« Reply #84 on: May 28, 2009, 09:11:31 AM »
donnia, So happy to hear you are going home. That is wonderful news. I'll keep praying that your numbers go in the right direction. Is the drug your talking about Vancomycin the antibiotic? Gets lots of rest when you get home.  :cuddle;
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Laurie
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« Reply #85 on: May 28, 2009, 10:14:06 AM »
Donnia, it's great to hear that you're going home. The hospital is such a depressing place.
I'm sorry to hear about the surgeon screwing up. I'll continue to keep praying that your numbers go down.

Take care  :cuddle;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
donnia
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« Reply #86 on: May 28, 2009, 11:53:36 AM »
Thanks ladies

W&W .... yes, Vancomycin I guess I spelled it wrong :)
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Beth36
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« Reply #87 on: May 28, 2009, 12:42:46 PM »
I've been reading this thread and hope your numbers go down, too!! I can't believe the stupidity of some doctors!!! I hope you get an apology out of that surgeon....my mom had some issues with her transplant and the surgeon flat out apologized and admitted he did wrong..she was floored but respects him now even more. Bless your heart! You are in my thoughts!
 :grouphug;

Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
willowtreewren
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« Reply #88 on: May 28, 2009, 06:01:38 PM »
Yea, Donnia. :cheer:

So glad you are going home. I feel for your frustration over the doctor and his misuse of Vancomycin.

Keep us up to date.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
donnia
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« Reply #89 on: May 30, 2009, 06:33:00 PM »
Sorry I haven't updated... computer is on the fritz.

I don't get labs done again until Monday.  I go to clinic to get a Procrit shot and will get labs at the same time.  I have to go back to Lubbock for follow up June 18th.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
pelagia
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« Reply #90 on: May 30, 2009, 06:51:36 PM »
Thanks for keeping us posted.  Hope Monday's numbers on HOPE are good.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
donnia
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« Reply #91 on: June 01, 2009, 05:16:44 PM »
Labs in:

Didn't get a copy yet, but Dr. said my creatinine was 2.5!!!!!!! 

 :flower;  YEA!!!!!!!  :flower;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
rookiegirl
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« Reply #92 on: June 01, 2009, 05:18:43 PM »
Great report.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
donnia
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me and my donor Joyce
« Reply #93 on: June 01, 2009, 06:06:47 PM »
Ohh yeah.... they took me off Prograf and I'm back on Rapamune.... YAY!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
pelagia
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« Reply #94 on: June 01, 2009, 06:11:30 PM »
this is good news!  :2thumbsup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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« Reply #95 on: June 01, 2009, 06:25:36 PM »
Great news   :yahoo;     2.5!!!   So happy to hear this   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #96 on: June 01, 2009, 11:43:04 PM »
Sorry Donnia, just saw this thread and read each one. Boy you had a worse time than me in the hospital in May. I hope your kidney improves some more. Iguess I should get a new PDR to cary around local doctors office to check on meds (faster than getting a hold of someone at my tx center).

Reminds me, I need to get my monthly labs done this week, well tomorrow would be good.

Did your hospital have an email service? Could have had hospitals emailing each other  :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #97 on: June 02, 2009, 08:42:34 AM »
 :thumbup; :thumbup; :thumbup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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« Reply #98 on: June 02, 2009, 03:07:01 PM »
 :flower;

Rah, rah! sis boom ba!

 :cheer: :cheer: :cheer:
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Romona
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« Reply #99 on: June 02, 2009, 08:07:30 PM »
 :clap; So happy for you!
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