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Author Topic: Getting treated for rejection: Update  (Read 24961 times)
glitter
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« Reply #50 on: May 24, 2009, 09:36:35 PM »
I am thinking of you-  I told my Mom about you- so we are both thinking of you.  :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
donnia
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me and my donor Joyce
« Reply #51 on: May 25, 2009, 06:04:48 AM »
Thank yall so much for your thoughts and prayers.  You don't know how much it means to me.

Just woke and tood my cylex level.  Will be taking my meds in a few minutes which means I can't eat breakfast until about 10:00.

I should be getting my labs soon so I will  post as soon as I get them.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
donnia
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me and my donor Joyce
« Reply #52 on: May 25, 2009, 07:22:32 AM »
Labs in:

BUN 60

Creatinine 3.8 (was 4.0 yesterday.... praying this is the down swing!!!!!!!)

WBC 3.9
RBC 2.82
Hgb 8.6
Hct 25.6

Phos 6.0  (mine was never high while on dialysis before transplant... now it is creeping up)

GFR  13
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willieandwinnie
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« Reply #53 on: May 25, 2009, 08:36:49 AM »
donnia  :cheer: glad to see your creatinine is coming down. You need to be real careful now that your white count is going so low. Wonder why you phos is going up? What are they feeding you? I will continue to keep you and "Hope" in my thoughts and prayers.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Romona
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« Reply #54 on: May 25, 2009, 10:09:11 AM »
 :grouphug; Maybe some of the meds are making numbers wacky! keeping you in my prayers.
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ndl0520
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« Reply #55 on: May 25, 2009, 10:20:33 AM »
Hey Donnia,

Hang in there, keep a positive mind & faith.  I'll be keeping you in my prayers.
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pelagia
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« Reply #56 on: May 25, 2009, 12:01:10 PM »
I posted on the other thread and then I found this.  :flower;

Whew, that emotional roller coaster can sap your energy.  I imagine it takes a day or two for the immunosuppressives to really start taking action if you have already started showing signs of rejection.   I'm guessing that once you have to knock down the refection process instead of just keeping it from starting up (as in a fresh transplant), it takes a little longer.  Does that make sense? 

Do you ever use visualization?  If so, start imagining all your IHD friends, miniaturized, roaming inside your body in search of those bad guys (I can never remember what those cells are called).  We're zapping them as we find them and your creatinine is going down with every one we take out.  There are loads of us and we're fearless, so we aren't going to give up easily.   :Kit n Stik;

Sending you loads of love and hugs, Donnia!
 :cuddle;
 :guitar:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
donnia
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me and my donor Joyce
« Reply #57 on: May 25, 2009, 04:13:43 PM »
Thanks pelagia!  That helps :)
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
donnia
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me and my donor Joyce
« Reply #58 on: May 26, 2009, 05:43:23 AM »
Labs in:
BUN 59 .......... 60 yesterday

Creatinine  3.5  ........ 3.8 yesterday.... praying it continues to go down!!!!!!!)

WBC 3.1.......3.9  yesterday
RBC 2.84 ......... 2.82 and got epo shot yesterday
Hgb 8.5 ...........  8.6 yesterday
Hct 25.4 ............  25.6 yesterday
Phos 4.5........ 6.0 yesterday  (yay...back in normal range... high normal... but normal just the same :) 

GFR  15  ..........  13 yesterday
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willowtreewren
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« Reply #59 on: May 26, 2009, 06:13:59 AM »
Hey, Donnia!

Yes, yes, yes!!!

I am sooo glad your creatinine is going

D
  O
     W
        N!!

 :cheer: :cheer: :cheer:
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
willieandwinnie
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« Reply #60 on: May 26, 2009, 06:49:42 AM »
 :yahoo; donnia, that's the way to go.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
donnia
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me and my donor Joyce
« Reply #61 on: May 26, 2009, 02:48:01 PM »
No biopsy results today :(
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
kellyt
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« Reply #62 on: May 26, 2009, 02:55:39 PM »
Great news, Donnia!   Did you say you are still urinating?  If so, is your dialysis sessions now getting shorter because your numbers are improving?  Or has the improvement not yet been significant enough?

Again, I'm glad "Hope" is starting to wake-up a bit.  :)   Keep the good labs coming!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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« Reply #63 on: May 26, 2009, 04:21:19 PM »

I also asked about dialysis - Donnia isn't getting ay now - so I'd say she's making good progress with those numbers!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #64 on: May 26, 2009, 04:33:01 PM »
I loved Pelagia's visualization!  We all have our combat gear on and we are Donnia's warriors!   :2thumbsup;   We all want your numbers to keep improving.  Glad you have your laptop and can keep us updated.  We are a bunch of worriers!    :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Wenchie58
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« Reply #65 on: May 26, 2009, 04:35:52 PM »
Good going Hope!  Just goes to show ya'll these lil kidneys are tough!  They keep on goin when we are ready to give up on them.  Hope is fighting, now Donnia...keep your spirits high.  Sounds like things are progressing nicely.....cept that WBC...what's up with that?
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
donnia
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me and my donor Joyce
« Reply #66 on: May 26, 2009, 04:45:12 PM »
:)  Karol is right.  I have not had dialysis since Thursday, so the numbers improving mean so much more! 

Yep, Hope and I hare fighting hard... we wont give up!!!!

Wenchie.... the treatments they are giving me are tearing my immune system down... hence the lower wbc.

Can not wait until I get labs in the morning.  The Lord and I have a great talk before labs :)
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Jill D.
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« Reply #67 on: May 26, 2009, 05:09:22 PM »
I praying for you and Hope, Donnia!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
MIbarra
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Stopping to smell the bluebonnets
« Reply #68 on: May 26, 2009, 05:14:20 PM »
I hope those numbers keep going down, down, down! (Creatinine and BUN anyway)

 :bestwishes; I think about you often during the day!
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Cadaver transplant April 29, 2007
Romona
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« Reply #69 on: May 26, 2009, 06:28:17 PM »
 :grouphug; Thnking of you!
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kellyt
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« Reply #70 on: May 26, 2009, 08:28:49 PM »
Quote from: okarol on May 26, 2009, 04:21:19 PM

I also asked about dialysis - Donnia isn't getting ay now - so I'd say she's making good progress with those numbers!

Excellent!  Then she appears to be going in the right direction then.  What a pain this has been for her!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
donnia
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me and my donor Joyce
« Reply #71 on: May 27, 2009, 04:53:07 AM »
Labs in:
BUN 61......59 yesterday ....... 60 Monday (dont know why that went up)

Creatinine  3.3  ........ 3.5 yesterday....3.8 Monday
WBC 2.7.......3.1 yesterday...... 3.9 Monday
RBC 2.77......... 2.84 yesterday..... 2.82  and got epo shot Monday
Hgb 8.3...........  8.5 yesterday .........8.6 Mondat
Hct 24.9 ............  25.4 yesterday .......... 25.6 Monday
Phos 4.1..........4.5 yesterday....... 6.0 Monday  (LOVE LOVE LOVE to see the Phos coming down!!!!!)

GFR  16........  15 yesterday...... 13 Monday (LOVE LOVE LOVE to see the GFR going UP UP UP!!!!)

Kelly... sorry forgot to tell you.... yes I am still peeing.... up a storm!!!!  I have not had dialysis since Thursday, so almost a week and my numbers are coming down.... fantastic news!!!!


I am soooo excited!!!!!!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
monrein
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Might as well smile
« Reply #72 on: May 27, 2009, 04:55:34 AM »
I'm excited too Donnia.  Great news and please tell Hope I thank her and tell her to keep it going.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #73 on: May 27, 2009, 05:55:44 AM »
Awesome!
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willieandwinnie
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« Reply #74 on: May 27, 2009, 06:06:35 AM »
 :yahoo; donnia. I think about you all day. I hope you continue to get those good numbers.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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