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Author Topic: Getting treated for rejection: Update  (Read 24963 times)
donnia
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me and my donor Joyce
« Reply #25 on: May 23, 2009, 03:48:43 PM »
Thanks Wenchie!  Yep.... 3.6. I can't wait to see what it is tomorrow.

Wow.... this treatment makes me tiiiiiiiiiiiirrrrrrrrrrrrrrrrreeeeeeeeeeeeedddddddddddddddd!  Guess its the benedryl LOL.......

Oh yeah, and I'm freezing!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
donnia
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« Reply #26 on: May 23, 2009, 04:17:16 PM »
Dont know if I already said this.....

The dr said if my biopsy comes back positive for rejection I may be here 10-14 days for treatment!  Right now they are treating for rejection based on my immunosuppresent levels.... getting over 500 shows you are getting close to rejection... I thought my number was 949 but it was 969.  So that shows I am battling some rejection therefore we went ahead and started treatment.  The bad thing is that it breaks down your immune system to basically zero.  I will not be able to work for 4-6 weeks.  I will have to treat this more sensitive than when I came home with my fresh kidney. 

 :flower;
 
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Wenchie58
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« Reply #27 on: May 23, 2009, 04:43:12 PM »
You can do it Donnia!!  Anything for Hope. 
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
donnia
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« Reply #28 on: May 23, 2009, 04:51:32 PM »
Oh Wenchie... they put in a central line to do my treatments.....  :flower;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
David13
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« Reply #29 on: May 23, 2009, 05:01:31 PM »
Sounds like you and the medical staff are doing everthing possible to keep "hope" chugging along. 

Keep up the positive attitude!  We are all here cheering you on . . .    :2thumbsup;
« Last Edit: May 23, 2009, 05:59:28 PM by David13 » Logged
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Wenchie58
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« Reply #30 on: May 23, 2009, 05:32:54 PM »
Quote from: donnia on May 23, 2009, 04:51:32 PM
Oh Wenchie... they put in a central line to do my treatments.....  :flower;

Might beat the daily poke!!  Whatever it takes to work for you Donnia!  :)
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
paris
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« Reply #31 on: May 23, 2009, 05:56:26 PM »
Lots of prayers for you and Hope!   We worry if we don't hear updates!   Lots of prayers being said   :grouphug;
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donnia
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« Reply #32 on: May 23, 2009, 07:48:20 PM »
Thanks for all the support!!!!

I am done with my first treatment. Now I have to start wearing a mask. My nurse said after about my 5th treatment, the staff will have to start wearing gowns and masks.

Oh yeah.... since being on the treatment 6 hours, I think I have peed about 900 ml! Before I was peeing.... but I would pee about 100 ml at a time.... now I am peeing between 200 - 300 at a time.... does that make sense???
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Wenchie58
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Always carrying the big silly grin!
« Reply #33 on: May 23, 2009, 09:27:40 PM »
Pee is good!  We like pee!  It can't be a bad sign, can it?   Keep on keepin on Girl, you're gonna beat this!!   :thumbup;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
donnia
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me and my donor Joyce
« Reply #34 on: May 23, 2009, 11:04:30 PM »
Wenchie.... u make me smile   :cheer:

I slept a little while with the benedryl, about 2 hours.

I kinda feel crummy..... no temp tho.  So, do you feel more and more crappy with each treatment?
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Wenchie58
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Always carrying the big silly grin!
« Reply #35 on: May 23, 2009, 11:13:17 PM »
I didnt...always felt a lil tired and just "blah" after, but it passed quickly.  It was actually a bit less with each treatment.

Glad I can make you smile....that's good medicine too!   :clap;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Wattle
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« Reply #36 on: May 24, 2009, 01:24:39 AM »
Quote from: Wenchie58 on May 23, 2009, 09:27:40 PM
Pee is good!  We like pee! 

Yep we like pee!

Thinking of you Donnia. Your updates are great. I am bored too... sitting here doing a PD exchange.

Come on "Hope" shake that booty.    :cuddle;
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July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
donnia
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me and my donor Joyce
« Reply #37 on: May 24, 2009, 01:36:20 AM »
Quote from: Wattle on May 24, 2009, 01:24:39 AM
Quote from: Wenchie58 on May 23, 2009, 09:27:40 PM
Pee is good!  We like pee! 

Yep we like pee!

Thinking of you Donnia. Your updates are great. I am bored too... sitting here doing a PD exchange.

Come on "Hope" shake that booty.    :cuddle;

 :sir ken;

Sorry, couldn't resist :)
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willowtreewren
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« Reply #38 on: May 24, 2009, 03:54:25 AM »
Donnia,
I have never been so glad to hear that someone is peeing!  :rofl;

That's good news, for sure.

I am keeping you in my thoughts. HOPE, we are all pulling for you.

Aleta
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
lola
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« Reply #39 on: May 24, 2009, 06:01:06 AM »
 :flower; :flower; :cheer: :cheer:
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donnia
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« Reply #40 on: May 24, 2009, 06:08:58 AM »
Thank you  willowtreewren!

Man.... they took labs at 4:30am and they don't have the results back yet!!! 

Comeon people.... this is important stuff!

 :flower;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Wenchie58
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« Reply #41 on: May 24, 2009, 07:49:27 AM »





<--- crossing fingers!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
donnia
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me and my donor Joyce
« Reply #42 on: May 24, 2009, 08:06:06 AM »
UUUGGGHHHHHH!  They took my blood at 4:30 am..... but it was never 'ordered' so they came and drew again just now.  Should have results in about an hour to hour and a half.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willieandwinnie
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« Reply #43 on: May 24, 2009, 08:29:23 AM »
Oh donnia. Don't you just hate those 4:30 am blood draws and then they come back to repeat it. Makes no sense. Let us know when you know.  :waving;
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donnia
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« Reply #44 on: May 24, 2009, 09:24:19 AM »
Alright... no more getting my hopes up!  Yesterday creatinine 3.6 today 4.0.   :stressed;

I keep being so dang positive.... "I just know it is getting better..... I just know my creatinine is down"  Bah Hum Bug!  I think everything is better and it gets worse.  Just ticks me off!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Wenchie58
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Always carrying the big silly grin!
« Reply #45 on: May 24, 2009, 09:29:04 AM »
It's truly frustrating.  My neph always tells me don't sweat the daily numbers....but they aren't HIS numbers...so I sweat them anyway.  Keep your chin up girl...there will be ups and downs.  I'm thinkin about ya!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
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« Reply #46 on: May 24, 2009, 10:09:08 AM »
 :grouphug; Don't give up Hope.
Thinking of you all the time Donnia!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
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She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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« Reply #47 on: May 24, 2009, 11:32:21 AM »
 :cuddle; Hang in there Donnia. Things will get better. You're a very strong person and will get through this.  :flower;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
donnia
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me and my donor Joyce
« Reply #48 on: May 24, 2009, 09:09:28 PM »
Well, I have my 2nd treatment down.... I should take lans early in the am.... will let you know as soon as I hear anything new.....

 :flower;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Tinah1968
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« Reply #49 on: May 24, 2009, 09:13:03 PM »
im praying for you
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Tina
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