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Author Topic: Jbeany Update  (Read 22997 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #75 on: October 12, 2009, 04:11:15 PM »
 :flower; GO JB GO!!!  :cheer: :cheer: :cheer:
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sunny
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Sunny
« Reply #76 on: October 12, 2009, 04:16:04 PM »
So happy to know things are going better for you. Never surrender.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Chris
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« Reply #77 on: October 12, 2009, 07:50:56 PM »
Keep up that attitude jbeanyand keep to your goal. You'll reach it.

Bet you can't wait for a shower though!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Des
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« Reply #78 on: October 12, 2009, 11:12:29 PM »
You are an inspiration!!!!!! Keep it up.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Jean
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« Reply #79 on: October 12, 2009, 11:53:13 PM »
Good news jbeany, !!!! Stay tough you are doing wonderful, at last.  :grouphug;
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One day at a time, thats all I can do.
aharris2
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Volcan Pacaya, Guatemala
« Reply #80 on: October 13, 2009, 06:16:05 PM »
JBEANY!!!
 :clap;
It is so good to see you here. I am glad you a finally headed down the right path. "Determined and motivated" Give 'em hell Janel!

Alene and Rolando
Logged
Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Jill D.
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« Reply #81 on: October 13, 2009, 07:40:49 PM »
So great that you are able to post now. I will continue to pray for your recovery to stay on a "forward" motion!!! Like you said, in the scheme of things this will be all worth it down the road when you are living your life without needing insulin or dialysis!!!  :cuddle; :cuddle; :cuddle;
Logged
Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
kitkatz
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« Reply #82 on: October 14, 2009, 06:29:51 AM »
I like to hear that you are doing better!  Hurray!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
jbeany
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Cattitude
« Reply #83 on: October 15, 2009, 01:58:16 PM »
Amazing how important the little victories become.  You have no idea how wonderful it is to be able to get out of bed or a chair without needing assistance just to stand up!  Being able to go to the bathroom alone again is great, too!

I've been placed on the waiting list for acute rehab.  I move upstairs as soon as they have an available room.  They aim to have their patients ready for check out in two weeks or less, so I hope I don't have to wait long.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
KICKSTART
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In da House.
« Reply #84 on: October 15, 2009, 02:16:33 PM »
 :flower;  :cuddle; :flower;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #85 on: October 15, 2009, 03:00:08 PM »
 :2thumbsup; Keep up the good work Janel!!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #86 on: October 15, 2009, 03:09:37 PM »
 :clap;  Keep the feet going one in front of the other.   :cuddle;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chris
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« Reply #87 on: October 15, 2009, 10:07:09 PM »
Yes, small victories are important that are sometimes forgotten over time. It's amazing how many people come rushing to your room because one decides (me) to sit up over the bed when they tell you to call for assistance to get up.

Next big goal for independence is a shower without being checked on evey second to see if your ok. Hope you can be one of the odds who get's out in less than 2 weeks Janel.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Zach
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"Still crazy after all these years."
« Reply #88 on: October 16, 2009, 08:31:26 AM »
I know you're a fighter, jbeany!

:boxing;
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
glitter
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« Reply #89 on: October 16, 2009, 08:40:25 PM »
I am so glad to see you here!!!! I have thought about you so much- its so good to 'see' your voice again!!! :clap; :clap; :clap; :clap; :flower; :flower; :cheer: :cheer: :bandance; :bandance; :grouphug; :cuddle; :beer1;
Logged
Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Falkenbach
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« Reply #90 on: October 16, 2009, 10:12:13 PM »
Jbeany, you inspire me so much. I'm actually crying. But happy crying. Happy for you being so darn determined and upbeat when you post here, and happy for me for having things so much easier than you do right now.

 :flower;
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charee
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« Reply #91 on: October 17, 2009, 01:51:17 AM »
so good to see you back on , your in my thoughts alot keep it up JB your an inspiration :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
jbeany
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Cattitude
« Reply #92 on: October 17, 2009, 02:19:51 PM »
I scared the stuffing out of the aide today.  When she walked in, I was up, decluttering my bedside table and putting all the stray supplies away. "WHAT ARE YOU DOING???"  "Occupational therapy."  She hadn't been assigned to me for a week, and when she was here last, I couldn't even stand up without help!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #93 on: October 17, 2009, 02:34:36 PM »

That's my girl! Love hearing of your progress!  :clap;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #94 on: October 17, 2009, 07:05:39 PM »
Keep up the good work.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #95 on: October 18, 2009, 01:03:37 PM »
So glad to hear that you are so perky!  You just keep on keeping on, girl!  We are with you all the way  :grouphug;  Can't tell you how good it feels to read your posting.

[Please let your ex know how much IHD appreciates him keeping us up to date on your progress. Most of the time he was our only link with you, and we want to say thanks]
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Des
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« Reply #96 on: October 18, 2009, 11:04:13 PM »
Just keep swimming , just keep swimming....... just keep swimming.

Taken from Finding Nemo. It seems appropriate.

GO JBEANY GO!
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Mimi
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For any who do not like me I use - prayer.
« Reply #97 on: October 18, 2009, 11:21:30 PM »
How wonderful to see you posting JBeany.  Now you just keep on keeping on.  Before you know it you'll be home doing a trot.
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
jbeany
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Cattitude
« Reply #98 on: October 19, 2009, 11:34:27 AM »
Insurance!  They havge a set of criteria for qualifying for acute rehab.  Thanks to all the time I've spent on my treadmill, I can walk much farther than their allowable distance.  I can't, however manage stairs at all yet, and even rolling myself in and out of a bed without handrails is still impossible.  But because of the walking, they won't pay for the intense rehab.  Looks like I'm staying in my regular room and working with the regular therapists instead of the specialists.  Ahh, well, I'm still one step closer to getting outta here!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Chris
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« Reply #99 on: October 19, 2009, 12:44:06 PM »
If the doctors really want to help you, hey will contact the insurance company to help plead for you. Also if you use twitter and you have BC/BS, they pay attention to complaints according to the news. But a good old fashione phone call and pleading your case with some arguing is the best rute and ask for their supervisor. ;D :2thumbsup;

Don't give up yet on the idea of the rehab center. Are you using a support cane to walk around? I hope. Hopefully they have a mini step to practice stair climbing. Fire xit not the best route to try yet for you.

Good Luck jbeany.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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