I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 28, 2024, 03:17:05 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Jbeany Update		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: 1 ... 3 4 [5] 6 Go Down Print
Author Topic: Jbeany Update  (Read 23016 times)
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude
« Reply #100 on: October 21, 2009, 01:49:38 PM »
They worked it out, and I got transfered up to acute rehab yesterday.  They did evals of my physical condition, and have set a busy therapy schedule, and atentative discharge date of the 27th - 2 months to the day since the transplant!
Logged
"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #101 on: October 21, 2009, 02:42:15 PM »
Well that is good new in one respect and a pain in the  :sir ken; in another aspect due to all the intense rehab. However it will be worth it in the long run.One short hurdle left and you'll be out Tuesday  :yahoo; :bandance;

Good Luck Janel, but be sure to use  :Kit n Stik; if need be with the therapist  :2thumbsup; :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
Member for Life
******
Offline Offline

Gender: Female
Posts: 17042
« Reply #102 on: October 21, 2009, 02:52:15 PM »
Keep it up JB!
Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile
« Reply #103 on: October 21, 2009, 03:02:06 PM »
 :cuddle;  :beer1;  :flower;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bill Peckham
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3057


WWW
« Reply #104 on: October 21, 2009, 03:35:39 PM »
Great news
Logged
http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude
« Reply #105 on: October 23, 2009, 01:30:47 PM »
PT and OT are kicking my butt in twice daily sessions with each of them.  I'm making excellent progress, though.  If it weren't for all the training I'm going to need to do for the IV nutrition and my wound care, I think they would have sent me home today.  I've got training sessions for self care all day Monday, and then I'm hopefully getting sprung from the joint on Tuesday morning.  They are still messing with my tacro levels, so hopefully that won't hold things up.  They aren't quite as bad about waking you up in the middle of the night here as they were on the regular floor, but they still come in a couple of times a night.  I'm really looking forward to a regular bed and no interruptions to my night's sleep except a potty break or two!
Logged
"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Zach
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4820


"Still crazy after all these years."
« Reply #106 on: October 23, 2009, 01:32:47 PM »
 :boxing;
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #107 on: October 23, 2009, 01:33:06 PM »
You've come a long way baby!  :2thumbsup;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #108 on: October 23, 2009, 05:20:54 PM »
Way to go JB. So do you have a break during the weekend?
You can do it JB, you'll get out by Tues or on Tues.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Bajanne
Member for Life
******
Offline Offline

Gender: Female
Posts: 5337


Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #109 on: October 24, 2009, 08:52:32 AM »
We are overjoyed at your progress.  :2thumbsup;  And we know you will get better and better and better. :cuddle;
Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Sunny
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1501


Sunny
« Reply #110 on: October 24, 2009, 12:49:52 PM »
This is good news. Things are improving. Lucky you're a fighter!
Logged
Sunny, 49 year old female
 pre-dialysis with GoodPastures
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114
« Reply #111 on: October 24, 2009, 10:34:09 PM »
 :bandance; :bandance; :bandance;
Logged
One day at a time, thats all I can do.
thegrammalady
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3788
« Reply #112 on: October 24, 2009, 10:38:03 PM »
so glad that you are doing better, keep up the good work and get sprung soon.
Logged
s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
RichardMEL
Member for Life
******
Offline Offline

Gender: Male
Posts: 6154
« Reply #113 on: October 24, 2009, 10:45:45 PM »
That's great news!!! Some real progress is worth celebrating!!! Let's hope it continues to improve for you!
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Bill Peckham
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3057


WWW
« Reply #114 on: October 25, 2009, 05:50:08 PM »
Home is where the healing can really start. Nothing like your own bed. Hope it's soon.
Logged
http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Des
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2318
« Reply #115 on: October 26, 2009, 06:43:55 AM »
YEAH FOR POTTYBREAKS!!!!!

Good to have you up and "running"
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #116 on: October 29, 2009, 01:05:38 PM »

Are you home yet??  :pray;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
Member for Life
******
Offline Offline

Gender: Female
Posts: 8859
« Reply #117 on: October 29, 2009, 02:30:00 PM »
Jbeany--one of the strongest people I know   :2thumbsup;   We are thrilled at your progress and will rejoice when you are sleeping in your own bed!!     Sending you much love and many healing thoughts   :cuddle;
Logged


It's not what you gather, but what you scatter that tells what kind of life you have lived.
Falkenbach
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1104
« Reply #118 on: November 01, 2009, 11:40:11 PM »
Damn you are awesome jbeany. I remember crying after a week in hospital following my transplant. I was all packed and ready to go, and they came in at the end of the day and asked me to stay for an iron infusion. I just burst into tears and promptly refused to stay another night. Said I would come back in the morning for the infusion, but at that moment, I was going home to SEE MY DOGS GODDARNIT!

I was such a wuss. You keep up the toughness, girl. Let yourself cry if and when you want, but don't let that ruin how strong you are in the long term.
Logged
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude
« Reply #119 on: November 02, 2009, 07:20:13 AM »
Whew!  My borrowed laptop crashed, so I was stuck.  I got stuck at the hospital, too.  I was supposed to be discharged on Tuesday the 27th.  My labs came back that morning with high potassium.  With all the messing around to find the cause and fix it, it took them until Friday to finally release me!  I'm settled in at my sister's house now, and plugging thru my last couple of weeks of IV food.  It's soooooo nice not to have anyone but the cat waking me up in the middle of the night!  I'm still low on hemoglobin, and working on muscle tone, but it's fabulous to be in a real house with family!
Logged
"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Pam
Full Member
***
Offline Offline

Gender: Female
Posts: 390
« Reply #120 on: November 02, 2009, 07:47:34 AM »
 :clap;
Getting out of that place is enough to make you feel like a new person. I am so happy for you!
I just got home Bay City. D day and it spit snow flurries most of the way. Just think what you have to look forward to.

Pam



Edited: Fixed smiley error - okarol/admin
« Last Edit: November 02, 2009, 07:55:46 AM by okarol » Logged
Zach
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4820


"Still crazy after all these years."
« Reply #121 on: November 02, 2009, 07:48:07 AM »
Welcome home (to your sister's)!

8)
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #122 on: November 02, 2009, 07:56:49 AM »
 :2thumbsup; Good to hear you've been sprung JB! I hope each day gets better and you can sleep better and heal!  :cuddle;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile
« Reply #123 on: November 02, 2009, 10:09:52 AM »
So glad you're finally out of hospital!!!  Keep us posted.. :flower;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
charee
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1176
« Reply #124 on: November 02, 2009, 01:49:07 PM »
So happy to read`that your out of hospital and doing so well keep it up JB :flower;
Logged
Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Pages: 1 ... 3 4 [5] 6 Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!