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Author Topic: Jbeany Update  (Read 22991 times)
Chris
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« Reply #25 on: October 04, 2009, 03:26:34 PM »
I will have to look for a funny and uplifting card. Well not to funny, don't want you to be laughing and hurting at the same time. :oops;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jill D.
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« Reply #26 on: October 04, 2009, 06:22:59 PM »
Thank you so much for the update -I have been thinking about Janel and keeping her in my prayers.
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
kitkatz
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« Reply #27 on: October 04, 2009, 10:49:44 PM »
Do we have an address for cards to send to JBeanY or am I behind the times here?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #28 on: October 04, 2009, 11:51:59 PM »
Yes we do kitkatz, you had to PM Okarol for it so it would not be public.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Rerun
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Going through life tied to a chair!
« Reply #29 on: October 05, 2009, 02:41:43 AM »
I have it now, so you can PM me, Rerun~
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kitkatz
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« Reply #30 on: October 05, 2009, 06:09:23 AM »
Thank you for the addy.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
thegrammalady
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« Reply #31 on: October 05, 2009, 11:28:09 AM »
glad to hear she's out of icu.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
kidney4traci
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« Reply #32 on: October 05, 2009, 01:40:35 PM »
So sorry to hear of the many issues, pray all wil heal in quick time! HUGS !
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
jbeany
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« Reply #33 on: October 06, 2009, 09:10:03 AM »
Hi everyone.  Got another update this morning.  At this point the docs are saying that she is still leaking internally, however no surgery at this point.  They have her going down for daily ultrasounds to check the progress of the healing.  They are starting her on a new pain patch today to try to get that under control.  Also no food for 6 weeks and at least 2 more months in the hospital.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
paris
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« Reply #34 on: October 06, 2009, 09:43:25 AM »
Again, thank you for giving us updates.  We just sit here and worry until we here something new.  Two more months -- I hate that for her.  I'll keep praying for a little postive progress everyday.   Please give her our love   :grouphug; 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #35 on: October 06, 2009, 10:18:50 AM »
 :thx; so much for the updates.  Please assure Janel that a loving group of people are here sending her caring thoughts and prayers.  We do appreciate you keeping us updated on her progress. :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Chris
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« Reply #36 on: October 06, 2009, 02:37:45 PM »
Wish there was better that they could do for Janel, this is frustrating and sad to hear and I wish her all the best for a much better recovery. To bad they didn't have medical grade duct tap to use or some really good super glue to stop those leaks.

I hope Janel's spirits are not getting to down, but totally understandable if she has trouble.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sunny
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Sunny
« Reply #37 on: October 06, 2009, 02:57:21 PM »
I am so sorry to hear about the rough times you are having.
This can't be easy for you and your loved one's. I hope the hosptial takes good care of you and has you on the road to recovery.
Thanks for the updates.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #38 on: October 07, 2009, 04:32:21 AM »
 :grouphug; :grouphug; :grouphug;
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Ken
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« Reply #39 on: October 07, 2009, 04:36:05 AM »
a month without real food??? gosh....

what was a beautiful surprise and promise of something much better has become a real ordeal for her. I hope SO MUCH she pulls through with everything intact!!!!!!

I still remain positive for her that things will work out and she will be back with her kitty before she knows it!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
monrein
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Might as well smile
« Reply #40 on: October 07, 2009, 05:08:32 AM »
Still sending hugs your way Janel.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #41 on: October 07, 2009, 06:32:29 AM »
Many, Many hugs.

 :grouphug; :grouphug; :grouphug;

Just wish I could come and sit with you for a while to help pass the time....

Thinking of you daily.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Des
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« Reply #42 on: October 07, 2009, 07:09:44 AM »
Another few months!!!!! hang in there!!!

hugs
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Rerun
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Going through life tied to a chair!
« Reply #43 on: October 07, 2009, 07:40:54 AM »
Janel, I'll go with you sister to hunt the bastards down that did this to you!

          Hang in there!             :boxing;
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Mizar
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« Reply #44 on: October 07, 2009, 05:10:37 PM »
Prayers and Good Thoughts, go up to Jbeany and Family Tonight.
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jbeany
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« Reply #45 on: October 09, 2009, 02:29:23 PM »
Hi everyone, sorry I haven't given you a Janel update in a few days, this two jobs thing is keeping me busy. 

I've been texting back and forth with Janel every day and her mood is excellent.  I made her laugh the other day with kind of an adult style smart ass remark and she said I wasn't allowed to do that cause it hurt too much, for just a word to the wise, no jokes....

The latest update I have is that they are going to "re-evaluate" her on Monday and possible send her to the rehab unit, however still no food for 6 weeks.  The nose tube has come back out and her meals are in little hanging plastic bags. 

She says she is getting "beat up" by their PT staff on a daily basis, but she doesn't mind being sore for those reasons.

That's all I have for now.  I'm sending her your love.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #46 on: October 09, 2009, 02:36:48 PM »

Oh I am so glad to hear she's laughing, that makes me happy!
Thank you for keeping us posted.
 :thx;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #47 on: October 09, 2009, 03:17:08 PM »
Great that her mood is good.  It sounds like a tough recovery. Go JBeany Go!  :bandance; :bandance; :clap; :clap;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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My two beautifull granddaughters

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« Reply #48 on: October 09, 2009, 04:10:13 PM »
So glad to hear that her humor is intact!  :clap;

Laughing may hurt, but it is great exercise!  :rofl; :rofl;

Thanks for sending her our love.

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #49 on: October 09, 2009, 09:12:20 PM »
Good to hear a little improvement has been made
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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