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Author Topic: Jbeany Update  (Read 22989 times)
jbeany
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« on: October 02, 2009, 09:11:36 AM »
Hi everyone, jbeany's ex-hubby here.  It's been a while so I wanted to update everyone on Jbeany's condition.

She had to go in for yet another surgery yesterday, the site that the new pancreas was attached to ruptured again.  The surgeons went in and repaired the rupture.  They left the pancreas in because taking it out would've been more dangerous.  Today she is in ICU, if she stays stable she will be back in a normal room again tomorrow.  The surgeons are hoping that the scar tissue from the latest surgery will help the process.  She isn't going to be allowed any food or water for 3 weeks, they are doing this because they don't want the site to rupture again.

Best case, she will be in the hospital for another month, although it is looking more like two at this point.

I should get another update tomorrow and will post again.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Run8
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« Reply #1 on: October 02, 2009, 09:30:17 AM »
jbeany, my thoughts are with you. I went though the very same thing. keep your head up and be strong. the food in a i.v. bag really bites. i did that for two weeks, and well, it sucks. Did they give you meds to help slow down the pancreas from making the digestive enzymes,that help me alot. you will get though this, you are a strong person and my prayers are with you.
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KICKSTART
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In da House.
« Reply #2 on: October 02, 2009, 09:33:43 AM »
 :flower; Sending virtual flowers and best wishes for a speedy and good recovery.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
paris
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« Reply #3 on: October 02, 2009, 09:41:14 AM »
Oh jbeany, it wasn't suppose to be this hard!  I am so sorry that you continue to battle so many problems.  You have many people thinking of you everyday and saying lots of healing prayers for you.  You are strong and will get through this, but I know you wish the road wasn't so long. 

Jbeany's ex--thank you so much for giving us updates.  We love her and worry about her so much.    :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
circleNthedrain
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« Reply #4 on: October 02, 2009, 10:12:43 AM »
jbeany, my thoughts and prayers are with you...stay strong!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Zach
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"Still crazy after all these years."
« Reply #5 on: October 02, 2009, 10:48:24 AM »
Sending love to you!
 :-*
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
del
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« Reply #6 on: October 02, 2009, 11:33:44 AM »
Sending thoughts and  :flower;
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thegrammalady
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« Reply #7 on: October 02, 2009, 11:43:07 AM »
 :flower; :flower; :flower; thinking of you and praying for the best
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For You Are Crunchy And Taste Good With Ketchup
rose1999
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« Reply #8 on: October 02, 2009, 12:04:24 PM »
Thank you for updating us, please tell Jbenay that we all send love and healing wishes. I'm going away tomorrow for a while and hope things will go OK while I'm away. xxxx
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Darthvadar
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« Reply #9 on: October 02, 2009, 12:15:08 PM »
Oh poor Jbeany...

I'm SO sorry to hear how hard this is for you!.... I'll be thinking of, and praying for you...

Jbeany's ex... Thank you for keeping us informed... You're one in a million!...

May God bless and protect you both...

Love...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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My two beautifull granddaughters

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« Reply #10 on: October 02, 2009, 01:26:38 PM »
Oh, I am so sorry that this has been so hard!  :grouphug; :grouphug;

Jbeany, we are all pulling for you. I hope you are finding positives to keep your spirits up.  :flower;

Ex, thank you so much for keeping us informed. We care.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Mimi
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« Reply #11 on: October 02, 2009, 08:15:22 PM »
My loving prayers and thoughts are with you.
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Meinuk
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« Reply #12 on: October 02, 2009, 08:41:35 PM »
Wow.

JB, you are in my thoughts every day.  Paris is right, it wasn't supposed to be this hard.  You can do it.  September came and went, and October will soon pass.  I hope your body heals and your mind stays uncrazed as you are healing.

We need you.

Love,

Anna
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

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Chris
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« Reply #13 on: October 02, 2009, 09:27:37 PM »
Sorry to hear jbeany, this bites that your having such a hard time.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Des
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« Reply #14 on: October 02, 2009, 10:24:11 PM »
My dear IHD friend,

I am so sorry that you are having a hard time.

Please know that we are thinking about you and praying for you.

I hope that you get through this and that it is just plain sailing from now on. :flower; :grouphug;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
MIbarra
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Stopping to smell the bluebonnets
« Reply #15 on: October 02, 2009, 11:45:51 PM »
Oh this is terrible. I hope things get better soon!
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Cadaver transplant April 29, 2007
kristina
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« Reply #16 on: October 03, 2009, 12:34:07 AM »
Thanks for the update.
I send my best wishes to Jbeany
and please let her know that
I keep my fingers crossed for her
and hope she has a speedy recovery.
Kind regards from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
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                                          ...  Oportet Vivere ...
jbeany
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Cattitude
« Reply #17 on: October 03, 2009, 03:35:30 PM »
Hi everyone,

Janel is out of ICU already and back to a normal room.  She was up and watching football today (not her choice) and her mood was excellent.  She currently has three drains in to try to help with the bloating.  Both the pancreas and kidney are still working fine.  All in all her road to recovery is currently back to normal.  Still needs a lot of rest but doing better.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
paris
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« Reply #18 on: October 03, 2009, 03:48:37 PM »
We love every tiny bit of good news   :2thumbsup;   So glad she is out of ICU but very sorry she has to watch football   :rofl;    Tell her we want her to keep resting and healing.   And we love her!!    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Rerun
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« Reply #19 on: October 03, 2009, 07:09:33 PM »
She is going to be one pissed off Cowgirl once she gets out and can get a hold of the idiots that let this happen. 

Get better fast JB!              :pray;
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Chris
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« Reply #20 on: October 03, 2009, 07:26:02 PM »
Glad to hear the progress is better.  :2thumbsup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Marsh
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« Reply #21 on: October 03, 2009, 08:07:45 PM »
 :flower;
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nick
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here iam still skateboarding even on dialysis
« Reply #22 on: October 03, 2009, 08:31:06 PM »
 will pray for her recovery  :flower; :grouphug;
:guitar:
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thank you and take care
Nicolas Buenafe

January 2 diagnose ESRD
January 05, 2007 start dialysis
51.5k dry weight
Braun Dialog Machine
2x a week
Blood Pump 300-380
Plan for transplant maybe next year looking for funds
monrein
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Might as well smile
« Reply #23 on: October 04, 2009, 02:49:39 PM »
Thinking of you very very regularly jbeany and sending my love also.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lola
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I can fly!!!
« Reply #24 on: October 04, 2009, 03:26:21 PM »
 :grouphug; :grouphug; :grouphug; :grouphug; :flower;
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