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Author Topic: Jbeany Update  (Read 22995 times)
Chris
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« Reply #125 on: November 03, 2009, 12:45:45 AM »
Congrats on finally getting out Jbeany. Now recovery can really begin with finally being out and out in fresh air.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jbeany
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« Reply #126 on: November 05, 2009, 07:25:35 AM »
Out, in, in, out.   Looks like I'm headed back in for a few days.  The 8 inch long, 2 inch wide incision I've been left with after 4 surgeries thru the same site is not healing well.  The last complication I had, and the last surgery, was because my small intestine perforated where they attached the pancreas to draim.  My small intestine's contents then began to drain thru my incision.  (EEEEEwwwwwww!  I know, I know.)   The hole it's draining thru is still not completely sealed, so the pancreas bile is still dripping out onto the incision.  The bile is disintegrating the healing tissue, so they need to do something a bit more than the regular dressings I've been doing so far.  They gave me an assortment of ointments and powders to try for a week, but if it doesn't improve by my return clinic visit on Tuesday, I'm back in the hospital until they can figure out something better.  I'm guessing there's a wound vac in my immediate future. 

So, here we go again.  I'm packing a bag to take with me on Tuesday.                         
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #127 on: November 05, 2009, 08:26:32 AM »
Oh man, that sucks. I hope they can install a drain or something and get you back home soon. Sending some extra healing prayers your way Janel!  :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lizabee
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« Reply #128 on: November 05, 2009, 11:01:41 AM »
Glad to hear that you are out!!!!
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monrein
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Might as well smile
« Reply #129 on: November 06, 2009, 02:32:07 PM »
Janel, what a time you've had...and we all want things to improve for you soon.   :grouphug;  Damn you're tough!  And you really deserve a big break here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Mimi
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« Reply #130 on: November 07, 2009, 12:13:21 AM »
Oh Janel, what a mess.  I am so sorry to hear this.  Bless your heart you are in my prayers.  You deserve a break.
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
jbeany
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« Reply #131 on: November 07, 2009, 03:02:51 PM »
The three most dreaded letters in the alphabet - NPO.  It's now been 5 weeks, going on 6 with no end in sight.  Heck, and I used to complain about the food and diet restrictions on dialysis!  I'm now on liquid nutrition thru an IV, and only enough water to get my pills down - that's less than a cup a day.

Just for fun, today I made Tollhouse cookies for my family.  Man, it's hard to remember not to lick the spoon!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
kitkatz
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« Reply #132 on: November 07, 2009, 04:04:04 PM »
Wow! You are a brave lady.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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« Reply #133 on: November 08, 2009, 03:43:16 PM »
MMMMMMMMMMMMMmmmmmmmm cookies  :cookie; :cookie; :cookie;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #134 on: November 09, 2009, 10:05:35 PM »
Sorry to hear your still NPO jbeany, hope that ends soon.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MissyKew
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« Reply #135 on: November 11, 2009, 02:46:55 PM »
Jbeany,  you are amazing!  I wouldn't be able to do it.
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jbeany
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« Reply #136 on: November 12, 2009, 11:46:20 AM »
Made apple-banna bread today. 
On the positive side, the leak from my small intestine to the surgical incision appears to have sealed over!!!   They are giving it another week to strengthen, then they plan to schedule another barium scan to make sure all the parts are in working order.  If all goes well, I get to start on jello and broth in a couple of weeks.  Break out the chicken and the veggies - I'm making my own stock for broth. . . then it's time to break out the baby food mill!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
kimcanada
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« Reply #137 on: November 12, 2009, 11:47:50 AM »
Jbeany, I think and pray for you everyday, you are one tough cookie~!
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willowtreewren
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My two beautifull granddaughters

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« Reply #138 on: November 12, 2009, 12:22:08 PM »
Good news, Jbeany! Great to hear this.

I don't know how you can bake when you can't eat it!  :bow; :bow;

You are awesome!  :cheer:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Zach
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"Still crazy after all these years."
« Reply #139 on: November 12, 2009, 01:35:29 PM »
Quote from: jbeany on November 12, 2009, 11:46:20 AM

On the positive side, the leak from my small intestine to the surgical incision appears to have sealed over!!!   They are giving it another week to strengthen, then they plan to schedule another barium scan to make sure all the parts are in working order.


I love the taste of barium in the morning!    :o
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
pelagia
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« Reply #140 on: November 12, 2009, 02:28:22 PM »
Sounds like things are going in the right direction.   :2thumbsup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Chris
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« Reply #141 on: November 12, 2009, 03:26:45 PM »
That's good news jbeany, but sorry you have to drink the barium  :puke;

Gotta love that clear liquid diet, then liquid diet, followed by soft food diet (still wondering about this one I'm on), and finally solid foods. :bandance;

Baby Steps better than baby food?
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #142 on: November 12, 2009, 03:53:24 PM »
Mmmmmm  :bandance; banana bread.
I don't know how you do it, the smell of it is sooo good!
I am so happy your leak is healing! That's great!! :clap;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MissyKew
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« Reply #143 on: November 12, 2009, 07:01:30 PM »
You are amazing!  glad to hear you are progressing well...:)
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kitkatz
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« Reply #144 on: November 17, 2009, 08:24:53 PM »
I sent you a card, but they sent it back because you were discharged! I will remail it.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Mimi
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For any who do not like me I use - prayer.
« Reply #145 on: November 17, 2009, 10:02:49 PM »
So glad to hear you are home and the leak has been fixed.  How in the world can you bake a banana ~ apple cake and not eat a bite of it?  You
are a strong woman JBeany.
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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