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Author Topic: My mom got her kidney!  (Read 15471 times)
Beth36
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« on: June 20, 2008, 07:53:11 AM »
Well, my trip to Rochester was delayed due to weather and I spent the night in Chicago but I got there....we went to a million doctor's appointments and labs but had a huge bump when we found out mom's antibodies went up sky high and needed plasmapheresis.  She was so down but I knew it would be OK.  She did 3 days of pheresis and IVIg and got her negative crossmatch last Thursday.  Her transplant was on Friday the 13th....it has turned out to be a lucky day for us.  She is doing great!  Her creatnine is .9 and she looks and feels like her old self again.  My sister is doing great, too...she had a rough time with the trapped gas but it's gone and she feels wonderful.  I was gone for 10 days and missed my hubby and little man so much....my mother in law rearranged my cabinets, fridge, and freezer...eeeek!  She even cleaned the house even though we have a cleaning lady, did laundry every day--including ironing hubby's shirts, entertained my son, AND cooked dinner....OH MY GOD!!  How does she find the energy????  My mom did do 3 days of pheresis and IVIg after the transplant and so far, so good...the antibodies are at bay.  She had to have a transfusion of 2 units of blood but she was having pheresis at the same time.  My dad is helping her with her meds, etc....they are now in the monitoring phase and hopefully will be able to go home soon.  They are staying in a very nice apartment building downtown, so they're close to everything and have tons to do when they aren't resting or going to the doctor.  I'm glad to be home.  I didn't realize how tired I was until I got to sleep in my own bed and was awakened at 6am by my son.  The best news to me is, I don't have to clean house......but I do need to go to the grocery store.  Yuck!  Thanks for all the support!!  Good luck to all seeking transplants!!!


Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
skyedogrocks
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Rob showing off his pot of gold!
« Reply #1 on: June 20, 2008, 08:12:31 AM »
That's great news Beth!  So happy for your Mom!!!!!!  Glad your sister is ok, she is just too awesome for donating!   :bow;. 
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
xtrememoosetrax
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« Reply #2 on: June 20, 2008, 08:20:07 AM »
 :yahoo; Wow! Wonderful news!  :clap; Now try to get some rest! I hope all continues to go well; sending love and hugs to you, your mom, and your sister.  Please let us know how things go in the days to come.
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
kimcanada
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« Reply #3 on: June 20, 2008, 08:41:21 AM »
Awesome!!! Congrats to all :yahoo;
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rose1999
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« Reply #4 on: June 20, 2008, 12:04:05 PM »
 :yahoo; great news, wishing the best to all of you.
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jbeany
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Cattitude
« Reply #5 on: June 20, 2008, 12:57:14 PM »
Hurray!  Love hearing success stories!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
donnia
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me and my donor Joyce
« Reply #6 on: June 20, 2008, 12:57:41 PM »
 :yahoo;  Yay!!!  Congrats!!!!   :yahoo;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
lola
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I can fly!!!
« Reply #7 on: June 20, 2008, 01:38:25 PM »
 :bandance; :yahoo; :clap; :bestwishes;
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willieandwinnie
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« Reply #8 on: June 20, 2008, 01:40:45 PM »
:bandance; :bandance; I'm so happy for your Mom Beth.  :yahoo; :yahoo; Now you get some rest and keep us posted on how things are going. By the way, could I borrow your mother-in-law.  :rofl;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: June 20, 2008, 02:00:35 PM »
 :clap; Yahoo! that's great news! Hoping for a speedy recovery for your mom and your wonderful sis!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #10 on: June 20, 2008, 02:27:07 PM »
Beth, I am thrilled for all of you.  What a wonderful year for your famiy.  It gives me hope to know the positive crossmatch process works.   :2thumbsup;  Now you can focus on those sweet babies!   So glad for your whole family.  Now, rest!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Beth36
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« Reply #11 on: June 20, 2008, 02:48:45 PM »
Thanks, everybody!  My mother in law has tons of nervous energy and can't sit still....I told my hubby not to get used to it because it' ain't gonna happen when I get home.  Then again, she's not running after a 3 year old while pregnant with twins.....I am getting rest now and trying to gain the 5lbs. I lost back.  We did A LOT of walking and I did a LOT of eating but hubby is concerned, even though my OB/Peri aren't.  My sister said they'll be doing more crossmatches just to be sure and if the antibodies come back, the surgeon said mom would do pheresis and IVIg again, so we'll see....we're crossing our fingers but so far, so good.  Mom had another kidney biopsy today and bloodwork.  She's not taking as much blood pressure medication and her restless leg is gone.  So far, she's on cellcept, prograf, prednisone, protonix, synthroid, some blood pressure meds I can't spell, a multi-vitamin, omega 3, and I'm sure a few more things but the sheer amount of meds made my head spin.  My dad is great, though.  He takes her temp and blood pressure and gets all her pills for her morning and night.  She'll be glad when they finally get her doses regulated so she can put the real doses in the pill box they gave her.  It's wild, they give her a schedule every day of all the appointments she has the next morning...it's like being in school.  All in all, I can say she was in great hands and still is.  I just hope things still continue to go well!


Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
charee
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« Reply #12 on: June 20, 2008, 04:04:03 PM »
 :yahoo; great news
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
monrein
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Might as well smile
« Reply #13 on: June 20, 2008, 05:03:49 PM »
 :bandance; :clap; :bandance; :2thumbsup; :bandance;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #14 on: June 20, 2008, 07:57:45 PM »
This is fantastic. :bandance; So happy to hear that everything is going well.  What a great family you have.  I have to agree about your mother-in-law.  She can come visit me any time.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
thegrammalady
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« Reply #15 on: June 20, 2008, 09:30:23 PM »
 :yahoo;    :yahoo;    :yahoo;    :yahoo;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
keith
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« Reply #16 on: June 20, 2008, 10:50:31 PM »
:bestwishes; ur mom has a long journey ahead of her I'm glad to hear da news and wish her a speedy recovery
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #17 on: June 20, 2008, 11:40:21 PM »
Wonderful news!! :2thumbsup;  I am looking forward to her continued progress.  My caring thoughts and prayers are with you all at this time.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Romona
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« Reply #18 on: June 21, 2008, 11:28:31 AM »
 :2thumbsup; Good news for Mom. Now you rest and take care of yourself! :grouphug;
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Laurie
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May 13, 2008
« Reply #19 on: June 21, 2008, 12:15:55 PM »
 :yahoo; Congratulations
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Lori1851
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This is me Lori , Dustin's mom
« Reply #20 on: June 21, 2008, 06:10:05 PM »
So glad to hear she is doing great! Can we say a big Thank you LORD!!!!!!!  :bandance; :bandance; :bandance;

Lori/Indiana
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Jill D.
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« Reply #21 on: June 21, 2008, 07:48:50 PM »
So happy to hear all has gone well! Your family has been on my mind, so good to hear from you!!! :2thumbsup;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #22 on: June 22, 2008, 05:03:10 AM »
Congratulations to all the family  :yahoo;  :grouphug;  :2thumbsup;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Sluff
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« Reply #23 on: June 22, 2008, 03:56:47 PM »
Great News!!  Hope she continues to improve and that everything remains steady.  :grouphug;
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spacezombie
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Melissa: ESRD since 1992, transplant June 10, 2008
« Reply #24 on: June 23, 2008, 07:22:15 AM »
I'm so glad your mom is doing well! =D
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
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