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Author Topic: Last Post Loves IHD The Most!  (Read 1838982 times)
Sugarlump
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10 years on and off dialysis
« Reply #25475 on: March 24, 2011, 08:30:04 PM »
Guess I win then!   :cheer:  :cheer:  :cheer:
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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« Reply #25476 on: March 24, 2011, 09:05:25 PM »
Very Very Hard to find a ral pizza place near me, it's all chain pizzarias. Were I use to live had great pizza, but it is40 miles away and not an easy drive.
 
I opened one of my flats of Fannie May chocolate and it wasn't the one I thought I was opening. The one I opened then wasn't what the sign said at the warehouse. It was suppose to be milk chocolate covered pistashios, but was white chocolate instead. Still good tho and 383 more pieces to go.
 
By the way, I like the thin crust pizza also MM, but wish they would cut the pizza in triangle slices like they use to.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #25477 on: March 24, 2011, 10:31:41 PM »
NY thin style pizza is the best. A nice ice cold beer along with it is perfect.  :beer1;
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Chris
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« Reply #25478 on: March 24, 2011, 10:44:53 PM »
I'd like to try their pizza and their pastrami from one of the original deli's that first made it.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Des
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« Reply #25479 on: March 24, 2011, 10:47:56 PM »
Morning all.

I don't like Pizza at all.... thin or thick, I like lasagna (like Garfield)
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
YLGuy
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« Reply #25480 on: March 24, 2011, 10:51:45 PM »
Carnegie Deli
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #25481 on: March 24, 2011, 11:54:27 PM »
 8)
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
MooseMom
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« Reply #25482 on: March 25, 2011, 12:16:00 AM »
Flying by for a quick hello. :waving;

Rice milk sounds disgusting, YLGuy.  Did you know that in England they drink barley water? :puke;
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sugarlump
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10 years on and off dialysis
« Reply #25483 on: March 25, 2011, 12:18:42 AM »
After playing tennis in our whites of course!!! Hi Moosey x
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
MooseMom
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« Reply #25484 on: March 25, 2011, 12:20:39 AM »
Quote from: Sugarlump on March 25, 2011, 12:18:42 AM
After playing tennis in our whites of course!!! Hi Moosey x

Hiya!
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sugarlump
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10 years on and off dialysis
« Reply #25485 on: March 25, 2011, 12:21:41 AM »
What's the worse thing you've ever drunk then ????  :puke;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
MooseMom
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« Reply #25486 on: March 25, 2011, 12:23:01 AM »
Barley water.  Isn't it Robinson's?  Is that right?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sugarlump
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10 years on and off dialysis
« Reply #25487 on: March 25, 2011, 12:32:35 AM »
Robinsons lemon barley water very soothing for the stomach thats not that bad  ;)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
MooseMom
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« Reply #25488 on: March 25, 2011, 12:40:17 AM »
Quote from: Sugarlump on March 25, 2011, 12:32:35 AM
Robinsons lemon barley water very soothing for the stomach thats not that bad  ;)

When I was in the later stages of pregancy, I developed pre-eclampsia (turns out that probably triggered my fsgs) and had to go to hospital.  While I was still in casualty, one of the nurses brought me barley water.  I didn't know what it was, but I took a sip to calm my nerves.  I'd never tasted anything quite like that.  In the 18 years I lived in England, I had only that one encounter with barley water.  That was quite enough, thank you very much.

What's the worst thing you've ever drunk?
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sugarlump
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10 years on and off dialysis
« Reply #25489 on: March 25, 2011, 12:45:34 AM »
I had really bad pre-eclampsia with my last one and was hospitalised for 5 months prior and then in ic afterwards. The kidneys virtually packed up (well she was number four!!!) and my child-bearing days were over!

Worse thing I ever drunk??? Brandy when I was about 16, I drunk a whole bottle of it at a post school play party and slipped into oblivion
and now if I even smell brandy I want to  :puke; immediately. Hate the stuff x
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
MooseMom
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« Reply #25490 on: March 25, 2011, 12:51:04 AM »
Five months!!  Good lord!  I was in "only" six weeks.  But you know what?  I was in the antenatal ward in Mayday Hospital in Thornton Heath (nr Croydon).  It was down the long hall from the regular post natal ward.  There were only 4 beds, and I saw a lot of ladies come and go.  They all had amazing stories.  We would sit up all night and talk.  It was like having a sleepover every night!  Despite the circumstances, it was one of the happiest times of my life.  I don't know why...I guess just having the company and the chance to talk to so many other pregnant women.

I'm not a fan of brandy, but I do like a nice cognac.
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sugarlump
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10 years on and off dialysis
« Reply #25491 on: March 25, 2011, 12:57:33 AM »
I used to play scrabble and trivial pursuit with doctors on call!!! Wasn't allowed out of bed truly truly awful time and I'd been transferred to London Whittington hospital so not many visits! Amazing that baby (Tiffany) survived really.

NO after dinner cognac for me   :puke;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
MooseMom
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« Reply #25492 on: March 25, 2011, 01:07:30 AM »
There was a young lady who had been in the hospital since her 19th week.  Her first pregnancy ended in a miscarriage.  It was later discovered that her uterus was bifurcated (I think that's the word), ie, it was normal sized but inside, it was split in two.  So, the baby had only half the normal space in which to grow.  She and her husband decided to try again, and since it was a high risk pregnancy, they hospitalized her at 19 weeks.  I don't know how far along she was when they decided that she and I should be roommates; I guess they thought we'd be in for a long time.  She was by this time bedridden, and she hated having to call for the bedpan with me in the room.  I felt really bad for her.  After we had been roomies for only 2 days, they let me go home for the weekend.  When I got back, she had just gone into labour and ended up with a healthy baby.  Two days after that, my kidneys started to fail, so I had a C-Section.  Neither of us ended up needing that room for very long.

Maybe tomorrow night I'll tell you a story about another lady I encountered in the antenatal ward.  What happened to her makes me laugh to this day.  But for now, I'm going to bed!  G'night, and until the morrow...
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #25493 on: March 25, 2011, 01:09:33 AM »
G'night my friend x  :waving;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
YLGuy
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« Reply #25494 on: March 25, 2011, 07:42:57 AM »
Good morning  :waving;
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Sugarlump
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10 years on and off dialysis
« Reply #25495 on: March 25, 2011, 07:51:22 AM »
Hello stranger  :waving;
Still got your weather!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #25496 on: March 25, 2011, 09:20:18 AM »
I have to stop putting bets on horses that don't finish or get knocked over by other horses.
Today's results 1 x 2nd
                     2 x pulled up
                     1 x knocked down by other horse when 2nd
                     1 x still to run

What a day .... :(
I've lost the Midas touch.
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Poppylicious
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« Reply #25497 on: March 25, 2011, 01:05:14 PM »
Quote from: MooseMom on March 25, 2011, 12:16:00 AM
Did you know that in England they drink barley water? :puke;
I don't know anybody who drinks that vile stuff!  Or at least, nobody who admits to it (but somebody must buy it because it's in the supermarket!)

Quote from: Sugarlump on March 25, 2011, 12:45:34 AM
IWorse thing I ever drunk??? Brandy when I was about 16, I drunk a whole bottle of it at a post school play party and slipped into oblivion
and now if I even smell brandy I want to  :puke; immediately. Hate the stuff x
I'm the same with Barcardi and also for the same reason (although I was nineteen and at uni.) 

I used to drink a whole bottle of very cheap sherry every Thursday before going to Student Night at the nightclub whilst at university.  That's the worst thing I've had to drink (not for taste, but for the why, oh why? factor), although it was surprisingly yummy and did keep me buzzing all night long.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Sugarlump
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10 years on and off dialysis
« Reply #25498 on: March 25, 2011, 01:20:59 PM »
Hi Poppy
Currently enjoying glass of vodka and russchian (why does no-one remember that???)  ::)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #25499 on: March 25, 2011, 10:03:04 PM »
4am in the morning sitting watching cars drive round in circles  :urcrazy;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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