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Last Post Loves IHD The Most!
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Topic: Last Post Loves IHD The Most! (Read 1834235 times)
Chris
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Re: Last Post Loves IHD The Most!
«
Reply #22575 on:
March 20, 2010, 10:37:13 PM »
First Marc sent me 2 boxes of the Girl Scout lemonade cookies and now know why people love them, they are soooooo good. Thanks Marc.
Went out Friday with friends, played pool and had fun doing that. I had coffee instead of beer at the bar and think I got sick from that. By morning I was really nauseated. Sitting was a bad idea. As soon as we got a seat at the restaurant, I really started feeling like I was going to
. So we had to have the waitress make our food to go when it was ready. I couldn't drink the coffee I ordered or drink water. Came home and sleptall day and part of the night. I still feel full from Friday night when we went out to eat too.
Marc, sounds like your day did not go well. Sorry to hear if that is the case.
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
YLGuy
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Re: Last Post Loves IHD The Most!
«
Reply #22576 on:
March 21, 2010, 05:29:23 AM »
It is what it is. Your welcome for the cookies.
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YLGuy
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Re: Last Post Loves IHD The Most!
«
Reply #22577 on:
March 21, 2010, 07:43:43 AM »
Church, then my last pinewood derby. 13th or 14th car I have made with my kids.
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paris
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Re: Last Post Loves IHD The Most!
«
Reply #22578 on:
March 21, 2010, 03:31:20 PM »
Good day at the park with the family. Kids brought their bikes and we sat around and talked and ate. We were all just loving being outside and enjoying spring.
Marc, You're in my thoughts. My brother had a rough time with the courts. They insisted he pay child support for 12 months, even when he had his son three months during the summer. It made no sense. I hope things work out well for you. You are a great father and the love you have for your children is evident to all of us.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
YLGuy
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Re: Last Post Loves IHD The Most!
«
Reply #22579 on:
March 21, 2010, 04:15:06 PM »
She pays me child support. She travels for work and only has them 20% of the time...never mind. I hope that you enjoy those cookies Chris. I felt bad that you were in the hospital while they were on sale in your area. I remember that you mentioned you were looking for the lemon ones before you went in.
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Chris
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Re: Last Post Loves IHD The Most!
«
Reply #22580 on:
March 21, 2010, 09:11:56 PM »
Marc, I finally got a reply from ABC Bakeries about where I can get the Lemonade cookies, unfortunately they are not sole nowhere near me and they gave me the Girl Scout troop who dows in far northern IL. Haven't gotten an email back from theem yet about buying or ordering some for next year.
Today I slept past 2 pm and nausea is gone so far. Fell asleep again for an hour while I was sitting and adjusting settings on new tv and stereo for surround sound and other settings.
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
looneytunes
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Wishin' I was Fishin'
Re: Last Post Loves IHD The Most!
«
Reply #22581 on:
March 22, 2010, 10:29:12 AM »
Hello IHD folks!
Chris, glad you are having a better day so far.
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"The key to being patient is having something to do in the meantime" AU
paris
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Re: Last Post Loves IHD The Most!
«
Reply #22582 on:
March 22, 2010, 11:48:53 AM »
Hi friends. Spent the day at the rhumatologist. Finally decided to talk to someone about the amount of pain and how it is effecting my day to day life. Of course, two other doctors had given me their opinion, but I was looking for a different answer.
(they were all right) She is going to help with the knees and other joints but also with the now named source of pain, fibromyalgia. This is why I hate going to doctors---they always find something wrong with you
But, I am ready to not have pain control my life. My Mom had it, my sister has it but I don't want anything else. Oh well, it could always be worse. What is one more pill at this point??
Hope you are all enjoying your Monday
«
Last Edit: March 22, 2010, 04:36:00 PM by paris
»
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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Re: Last Post Loves IHD The Most!
«
Reply #22583 on:
March 22, 2010, 10:15:47 PM »
Paris are they sending you to physical therapy? I guess that's what you get when you ask more than 2 doctors, but atleast yours agreed.
Today didn't get much accomplished I needed to get done except get vehicle worked on, which is in part to why not much got done. Did some laundry, tried to shop for things I need pre and post surgery and only made it to one store and they didn't have anything. So got a new Milky Way flavored bar and a new 3 Muskateers flavored bar at the gas station along with a coffee.
Was going to post picture of new TV, but picture is blurry.
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
paris
Member for Life
Offline
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Posts: 8859
Re: Last Post Loves IHD The Most!
«
Reply #22584 on:
March 22, 2010, 10:22:07 PM »
The doc has lots of fun things planned. Lots of xrays, injections, aquatic physical therapy, more meds-----I am just so excited
My problems have been going on for a long time, but I just kept focusing on my kidneys and ignoring everything else. This all gets to be so old, doesn't it?
Sorry you didn't get everything done you wanted to do today, Chris. I would love to see your new tv. That is a nice size and I bet you are loving it.
Logged
It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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Re: Last Post Loves IHD The Most!
«
Reply #22585 on:
March 22, 2010, 10:38:56 PM »
Well Aqua therapy I liked unless the pool was cold that day or they had me get out of the pool and get on the treadmill. The treadmill under the water is kinda hard to get use to at first if you have to do that.
Yes, enjoying the new tv, Discovery channel tonight was great. Now if I can get a cheap blu ray off ebay to see if there is really an improvement in movie quality. Not sure if I will buy Avitar when it comes out April 22 on Blu Ray/DVD.
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
okarol
Administrator
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Posts: 100933
Photo is Jenna - after Disneyland - 1988
Re: Last Post Loves IHD The Most!
«
Reply #22586 on:
March 23, 2010, 08:47:05 AM »
Good morning.
We are in La Jolla. Jenna asked to see the transplant team about getting wait listed. We'll see how that goes.
Then she and her sister (home from college in NY, YAY!) will go to the San Diego Wild Animal Park to see the lions and rhinos and whatever else is out- it's amazing to see the herds roaming in open praries.
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
Member for Life
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Posts: 9219
Re: Last Post Loves IHD The Most!
«
Reply #22587 on:
March 23, 2010, 10:12:32 AM »
Afternoon
Good Luck to Jenna Karol
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
looneytunes
Elite Member
Offline
Gender:
Posts: 2071
Wishin' I was Fishin'
Re: Last Post Loves IHD The Most!
«
Reply #22588 on:
March 23, 2010, 03:37:27 PM »
Paris...I sure hope something works to relieve your pain. I have suffered from fibromyalgia in the past and took all sorts of treatment and drugs for it. The one thing that I find works for me is stretching exercises. The rest of it...not so much.
For now (and I'm sure it won't last long) I'm WINNING!
Logged
"The key to being patient is having something to do in the meantime" AU
YLGuy
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Posts: 4901
Re: Last Post Loves IHD The Most!
«
Reply #22589 on:
March 23, 2010, 04:40:50 PM »
It was one year ago today I was informed that I had end stage renal disease. Kinda bummed.
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paris
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Re: Last Post Loves IHD The Most!
«
Reply #22590 on:
March 23, 2010, 06:10:58 PM »
Marc, you are amazing. You have taken control of your life and made the best of everything that is thrown at you. And you give excellent advice and support to everyone here. I hope the next year finds you with a new healthy kidney
Logged
It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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Posts: 9219
Re: Last Post Loves IHD The Most!
«
Reply #22591 on:
March 23, 2010, 11:12:33 PM »
I think I need a new camera, I can not get my camera to focus well and have reset the camera. Here is the best one I could get of my new TV and Entertainment Center.
Still couldn't find things I need for pre and post surgery clothing, so I guess I will buy scubs for one of the things I need
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
Slywalker
Sr. Member
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Posts: 748
Re: Last Post Loves IHD The Most!
«
Reply #22592 on:
March 24, 2010, 07:13:09 AM »
Nice TV Chris. I'm a little jealous. Someday, if my TV would just die, I will get a flat screen too.
IHD - I hope the sun is shining on you today.
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paris
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Re: Last Post Loves IHD The Most!
«
Reply #22593 on:
March 24, 2010, 07:56:27 AM »
Sun is shining here! 70's and beautiful. Now if I just felt like going out and enjoying it! Maybe I will just go out and sit in my swing and soak up the sun's rays. I should really be productive and clean today, but I would rather go back to bed.
Hope everyone is enjoying their day
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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Posts: 9219
Re: Last Post Loves IHD The Most!
«
Reply #22594 on:
March 24, 2010, 09:48:09 AM »
Cloudy and in the 50's here, gonna finish watching "Men Who Stare At Goats" then return it.
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
tyefly
Elite Member
Offline
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Posts: 2016
This will be me...... Next spring.... I earned it.
Re: Last Post Loves IHD The Most!
«
Reply #22595 on:
March 24, 2010, 05:54:57 PM »
Stopping in to Say HI everyone......its Salmon season here and we are catching a bunch....
Logged
IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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Re: Last Post Loves IHD The Most!
«
Reply #22596 on:
March 24, 2010, 07:51:44 PM »
Taking my tired, aching body to bed. Not sure if new med is working or if it just needs some time to get to it's full effect. I am in a "I hate doctors, medicines, illness, etc, etc" mood. But, I am also grateful for doctors and medicines!
See you all tomorrow. Have a good, restful sleep everyone.
Logged
It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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Posts: 9219
Re: Last Post Loves IHD The Most!
«
Reply #22597 on:
March 24, 2010, 09:42:38 PM »
Good Night Paris, hello to the next erson.
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
paris
Member for Life
Offline
Gender:
Posts: 8859
Re: Last Post Loves IHD The Most!
«
Reply #22598 on:
March 24, 2010, 10:26:47 PM »
Back again! Sleep just didn't work for me tonight. Ambien and Tylenol 3 and I am wide awake and feeling every bit of pain all over my body. Thought I would work on a few things and then try going to bed again. Sleep has to come eventually
Hope the rest of you are sleeping soundly and having pleasant dreams.
Logged
It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
Member for Life
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Posts: 9219
Re: Last Post Loves IHD The Most!
«
Reply #22599 on:
March 24, 2010, 11:14:15 PM »
Nope not yet, but wa sleeping from 8 pm to 11:30 pm. I see Marc hasn't been in.
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
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