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monrein
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Might as well smile
« Reply #22625 on: March 30, 2010, 10:30:49 AM »
Picked up my new orthotics today and did blood work.  Everything was in the normal range, every single value and I'm very happy.  Creatinine was 91 (slightly over 1 in US scale) and all my liver enzymes are good too.

Planning to go shopping in a bit and will make a tofu and green bean recipe with toasted almonds, golden raisins, hot spices, and fresh yogurt.  I'm still getting over a nasty cold but feeling basically human again.  Still cool here today but tomorrow it'll be 18 celsius and 28 on the weekend. 
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22626 on: March 30, 2010, 11:23:51 AM »
Gee whiz     I miss all of you......Have been lost in the cyber games.........  I need to stop that stuff......waste of time........  Sounds like everyone is happy....doing well    and   Yes I still hate Dialysis and am tired of do it everyday.........
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Lisa
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« Reply #22627 on: March 30, 2010, 06:11:30 PM »
Had my unbelievably long pre-transplant appointment today.  It had to be easily 8 hungry hours!!

I have just a couple things to complete then the comittee can sit and decide if I am worthy of a third kidney in 22 years!! 
I think I  took pretty good care of the last one (15 yrs) so hopefully that works in my favor! 
I am a really crappy dialysis candidate too...vascular access crap...trying PD now after many abdominal surgeries and praying the current permacath doesnt infect!!

Have a great nite everybody!
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
YLGuy
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« Reply #22628 on: March 30, 2010, 06:30:17 PM »
 :waving;
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paris
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« Reply #22629 on: March 30, 2010, 07:00:07 PM »
Good night everyone.  See you all in the morning.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #22630 on: March 30, 2010, 07:09:02 PM »
 :waving; Nite paris!  :-*

 :cheer: I win, I win I win!!  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #22631 on: March 30, 2010, 07:09:52 PM »
Quote from: Lisa on March 30, 2010, 06:11:30 PM
Had my unbelievably long pre-transplant appointment today.  It had to be easily 8 hungry hours!!

I have just a couple things to complete then the comittee can sit and decide if I am worthy of a third kidney in 22 years!! 
I think I  took pretty good care of the last one (15 yrs) so hopefully that works in my favor! 
I am a really crappy dialysis candidate too...vascular access crap...trying PD now after many abdominal surgeries and praying the current permacath doesnt infect!!

Have a great nite everybody!

At what point do they check your PRA?
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #22632 on: March 31, 2010, 08:50:54 AM »
Morning  :waving;
 
I was rudely awaken this morning by a call from the doctors office to come in for test for surgery. Couldn't they wait till after 7:30 am? I'm use to  them caling late for one, usually after 4 pm. Now I have to go out to drop off papers for Medicaid since their fax machine on't answer for the last couple days.
 
I would go back to bed if I could, but eventually will as usual after 5 pm
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
tyefly
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Posts: 2016


This will be me...... Next spring.... I earned it.
« Reply #22633 on: March 31, 2010, 10:52:22 AM »
Hello everyone......   day is starting out crazy......  they are tearing up my street right in front of the drive way...... big holes and all of that stuff.....  can get out to go anywhere....... 
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
billybags
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« Reply #22634 on: March 31, 2010, 11:36:51 AM »
Booked a last minute holiday over Easter for 3 nights, lovely hotel. Bit scared this is the first time we have been away since Alan got peritonitis in Kos. The hotel is in the country only 40 min away from hospital. I know I am stupid but I would rather be near home just in case. Hope every one has a good break.
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YLGuy
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« Reply #22635 on: March 31, 2010, 04:02:04 PM »
Me: Good morning
Dietitian: Have you been bleeding?
Me: Excuse me?
Dietitian: Have you been bleeding?
Me: Uh....no
Dietitian: Your hemoglobin is VERY low.  Have you been tired?
Me: I am always tired.
Dietitian: Well, we upped your Epogen.
Me: ok

How about starting with hello, hi or good morning?
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Lisa
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« Reply #22636 on: March 31, 2010, 08:31:55 PM »
okarol,
They took all the bloodwork yesterday.

Nite all!!
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
Chris
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« Reply #22637 on: March 31, 2010, 09:33:22 PM »
Found out I lost another good doctor today. Would be nice if they would send a letter, call, or email until you ask for a refill. Then they don't even ask if you would like to come in to see someone else  :rant;   :urcrazy; :urcrazy; :Kit n Stik; :Kit n Stik;  Other than that it was a nice day out and warm. Had the cat out side with me as he followed me around in the backyard (it's fenced)
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #22638 on: April 01, 2010, 09:50:42 AM »
Hi Chris, Beth bought a harness and leash for our big Maine Coon     :rofl;    She looks so silly walking around on a lease---the cat!!  Not Beth!!!  But the cat loves being outside. 

Off to another doctor today.  Is that all we do around here?    Looks like just Chris and I are winners today    :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
YLGuy
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« Reply #22639 on: April 01, 2010, 04:38:41 PM »
 :waving;
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Chris
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« Reply #22640 on: April 01, 2010, 04:53:24 PM »
Quote from: paris on April 01, 2010, 09:50:42 AM
Hi Chris, Beth bought a harness and leash for our big Maine Coon     :rofl;    She looks so silly walking around on a lease---the cat!!  Not Beth!!!  But the cat loves being outside. 

Off to another doctor today.  Is that all we do around here?    Looks like just Chris and I are winners today    :2thumbsup;

Doctors and Test is about it that we do  :rofl;
 
Our female cat doesn't mind the harness, but she doesn't like to go out side very much. The garage is about as far as she'll go on her own if the door is closed. Male cat loves to go outside and also wears the harness with no problem. He will go for a walk for a short bit, but would rather lay and watch, then prance on something or chase a leaf.  :rofl;  Need more pictures of your cat Paris.
 
Good to see you around Marc.
 
No much going on today, tomorrow is another story with test.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #22641 on: April 01, 2010, 05:26:49 PM »
Today is the kind of day that makes me remember why I hate going to doctors.  I like my doctors, but am really tired of them finding things wrong with me.  I know the problems have all been there for awhile, but I just want one diagnosis to deal with.  Just kidney disease should be enough --- nothing else.   Anyone (or everyone) agree??     I thought I would be the 90 yr old that still went hikiing and traveled the world.  Best laid plans    :rofl;   

Wishing all who celebrate, a wonderful Easter holiday.  I am looking forward to egg hunts, church with my family, huge gathering on Sunday, and the grandkids are having a lemonade/ candy stand to help raise money for our Kidney Walk.   We have made chocolate green ribbons, Eiffel towers and purple tiaras!  I will post pictures---they all look so cute.  You can buy candy molds in any shape!  And they are making cupcakes with green ribbons on them.  Love, love, love these kids. They are very special.   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #22642 on: April 01, 2010, 06:48:09 PM »
I might be in the mood the day after to celebrate, the chocolate sales begin  :rofl; :rofl; :rofl;  However, I haven't had a strong urger to look for easter candy this year. I saw a lady buy peeps today and thought for a brief second I should buy some. Then I quickly remembered I don't like them
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #22643 on: April 01, 2010, 09:08:33 PM »
I almost bought some Peeps. But you have to open the package and let them get stale for them to be any good to eat.  I win!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
YLGuy
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« Reply #22644 on: April 01, 2010, 10:42:16 PM »
peeps...yummy!
oops, wrong thread.
I win
 :yahoo;
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paris
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« Reply #22645 on: April 01, 2010, 11:51:12 PM »
2:45 am on the east coast.   Why am I awake?   Maybe sleep is just highly overrated.   Guess I will sit here alone and win for awhile.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Slywalker
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« Reply #22646 on: April 02, 2010, 06:47:07 AM »
IHD time to get up and smell the coffee.  Bright sunny skies here today with highs to be in the 60 degree range.  WOOHOO.  My car will get its summer sneakers on and the winter boots off tomorrow.  YIPEEEEEE.  Quieter drive in my horizon. 

 :flower;

And apparently I'm winning.
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Chris
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« Reply #22647 on: April 02, 2010, 09:46:22 PM »
Ok Slywalker, you won enough or today  :rofl; :rofl;
 
 
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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Posts: 4901
« Reply #22648 on: April 03, 2010, 12:28:24 AM »
I agree  :rofl;  :rofl;  :rofl;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #22649 on: April 03, 2010, 01:35:09 AM »
 Am I alone here??  :bandance;

I bought peeps, purple chicks, blue bunnies, pink bunnies, yellow chicks - can't wait to bite their heads off.  :rofl;

Scared now?? I win.  :lol;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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