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Author Topic: Last Post Loves IHD The Most!  (Read 1833591 times)
YLGuy
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« Reply #22525 on: March 11, 2010, 10:30:14 PM »
Chris is home.  :bandance;
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okarol
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« Reply #22526 on: March 11, 2010, 11:28:45 PM »
Quote from: YLGuy on March 11, 2010, 10:30:14 PM
Chris is home.  :bandance;

 :clap; :clap; :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
looneytunes
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Wishin' I was Fishin'
« Reply #22527 on: March 12, 2010, 06:03:41 AM »
Mornin' IHD gang!  Hope all of you have a great day!   :2thumbsup;
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"The key to being patient is having something to do in the meantime" AU
Slywalker
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« Reply #22528 on: March 12, 2010, 07:26:18 AM »
Morning IHD - its Friday!!!!  Weekend just around the corner - yipee.   :bandance; :bandance;
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YLGuy
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« Reply #22529 on: March 12, 2010, 08:00:21 AM »
 :bandance;
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paris
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« Reply #22530 on: March 12, 2010, 09:23:07 AM »
Glad you are home Chris.  How are you feeling?  Get some good rest.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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« Reply #22531 on: March 12, 2010, 07:27:34 PM »
Paris still tired, but now hacking and able to give a sample that I couldn't do in the hospital. However at times makes breathing hard. Went out to go to the pharmacy and store, got lightheaded and exhausted. I also found out I missed all the Girl Scout cookie selling events in my area due to being in the hospital, CRUD! Also lost my iPhone wall charger adapter and hospital can not find it in the wall or turned in, so have to buy another one when I get close to the Apple store next week.
 
Still sleeping a lot to
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #22532 on: March 12, 2010, 08:03:45 PM »
I relate to the charger loss.  I lost my wall charger to the portable dvd player when I had the infusions.  I know it was in the wall plug, but no onw could find it.  I hate losing things or forgetting them in the hurry to leave the hospital.   It is always something, isn't it?

Beth and I head to Ohio in the morning.  Sunday is little Gracie's adoption shower.  Good way to see all the relatives at one time!  I am exhausted just getting ready for the trip.  It is about a 9 hour drive, but I am sure we can stretch it into 10 with many stops along the way.  We will stay with my sister for a few days, just to do some girly things together - shopping, scrapebooking, eating out.  Off to bed.   Hope everyone has a great weekend!!   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #22533 on: March 12, 2010, 09:58:10 PM »
Have fun Paris, but boy what a long drive that sounds sore for sitting for long periods of time.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #22534 on: March 13, 2010, 08:19:52 PM »
I lost my phone charger at the hospital a few years ago. Just left it here.


I win again!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #22535 on: March 15, 2010, 01:38:41 PM »
We are in Ohio. It is damp, cold and dreary.   But we are having a nice time.  The shower for Gracie was very nice and we got to visit with a lot of relatives we haven't seen for awhile.  Little Gracie bonded with Beth because Beth kept speaking French with her and Gracie got so excited.   Then we had dinner with my brother and his wife.  Today -- well, I am still in my pajamas (yes it is after 5pm!) Not doing anything. Just trying to recover from the drive up here.   Tomorrow we will spend the day in Amish country and remember that life can be simple and slower.   

Chris, how are you doing today?   Did anyone find Girl Scout Cookies for you? 

Hope everyone is having a good Monday    :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #22536 on: March 15, 2010, 03:09:54 PM »

Is Monday over yet?  >:D

 :cheer: Winning here!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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« Reply #22537 on: March 15, 2010, 03:15:54 PM »
Horrible Monday.  One of my buttonholes healed up over the weekend: had to really jab it to get it in.  with 2 minutes left my right leg cramped.  When the tech had me stand up my BP went down to 76/39.  I got dizzy and felt like I was going to  :puke; so I sat down.  I felt horrible sitting there dizzy and with my leg killing me.  I HATE DIALYSIS.
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paris
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« Reply #22538 on: March 15, 2010, 06:06:31 PM »
Marc, I am sorry.  It does sound like a bad Monday.  Hope your week gets better.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #22539 on: March 15, 2010, 09:56:28 PM »
I made it in for the day.
Went to doc, got a walker for surgery day, and nose started bleeding non stop for awhile, so fell asleep on the floor. So tomorrow I may see cariad when I go to the city.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #22540 on: March 15, 2010, 09:57:51 PM »
 :waving;
Hey Chris
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Chris
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« Reply #22541 on: March 15, 2010, 10:05:04 PM »
Hi Marc
 
Good Morning Des who should be in soon  ;D :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #22542 on: March 15, 2010, 10:18:51 PM »
Okay, Good morning Des.  :grouphug;
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Chris
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« Reply #22543 on: March 15, 2010, 10:51:03 PM »
Off to bed I go, early train to city I gotta catch
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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Posts: 4901
« Reply #22544 on: March 15, 2010, 11:04:50 PM »
GL tomorrow
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YLGuy
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« Reply #22545 on: March 16, 2010, 07:04:28 AM »
4.4 earthquake at 4:04 am.  4 X 4 = 16.  Todays date is the 16th, Hmmmm  :rofl;
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paris
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« Reply #22546 on: March 16, 2010, 06:21:04 PM »
Lovely day with my sister and daughter in Amish country.  The farmers were out in the fields. Monday is laundry day and all the yards were full of clean clothes hanging.  We went to our favorite bakery and quilt shop.  Ended the day with dinner at a restaurant we use to go to with our Mom.  I now have all my cooking supplies re-stocked (best place to buy bulk everything).  And some treats for the grandkids.  Of course, lots of fabric and sewing accessories.  Fun day.  One more day till we head back to North Carolina. 

I am trying to catch up with everyone here before I fall over from fatigue!   Don't we have an exhaustion smiley?       :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #22547 on: March 16, 2010, 10:12:13 PM »
 :urcrazy; Went to transplant clinic and to pick up surgery packet from knee surgeon and both turned out to be a bad day to do things. However I visited Cariad for a bit on the hospital floor. They wouldn't let her go downstairs today though for some reason, but had a good chat in the lounge on her floor. She seems to be doing ok, but a little drained kinda look compared to our first meet. Then again she is having dialysis which just sucks the fun out of yah. I will probably visit her in the next few weeks, but tomorrow didn't sound like a good day with a full schedule of things they are going to do.
 
Anyway as for my clinic visit, they didn't have me in the computer for labs or an apointment for today or for this year. I showed them my appointment card and then I am told that my doctor doesn't even come on Tuesdays  :banghead; :urcrazy; ???   Then I said, "Then why have I seen her before on Tuesday's?" and the receptionist just says oh she's on maturnity leave now. OK then, so I was just deleated off the schedule and not told? Anyway, now I have the appointment rescheduled with some doctor I never heard of or seen a day before my knee surgery next month. Now on the the surgery packet I was to pick up. The surgery coordinator said she would have a packet ready when I came in today and picking it up at 9:30 would not be a problem. Apparently that was not true. She was paged several times and could not be found for several hours, so I went to my transplant center across the hall (which turned out ot be FUBAR of a situation). After the fiasco at my transplant clinic, I waited some more to get this darn packet. Turns out she waited till the last minute to put it together and didn't have the information I needed for transportation to get home afterwards since I have to do this myself and they won't allow me to go home alone on a bus or cab to the train station. :rant;  So if I can't get transportation home, no surgery because they don't want to hospitalize me, which just sound lazy to avoid insurance paperwork. To me I'd rather be hositalized for one day after this type of surgery due to all my medical issues, but that doesn't concern them.  :urcrazy;  She ended up apologizing profusely, then hugs me and that was really really really weird. For one I don't get hugged alot, it's feels uncomfortable to me, and why did she do it. ??? :urcrazy; :waiting; :stressed;
 
Then I saw cariad which was definitely a pleasant experience for the day.
 
Tomorrow another early day with the DXA body scan and bone specialist. I'm not a morning person!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #22548 on: March 16, 2010, 10:28:29 PM »
Wow, what a day!  Like you said, at least you got to see Cariad.
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kitkatz
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« Reply #22549 on: March 16, 2010, 10:58:00 PM »
Beastly day Chris!



I went to Legoland and had a lot of fun today. I will have pics posted up soon on Facebook.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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