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Author Topic: Last Post Loves IHD The Most!  (Read 1834017 times)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #21550 on: January 06, 2010, 09:51:22 PM »
Yay Tyefly.  Good on you!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #21551 on: January 06, 2010, 09:55:09 PM »
  Thx.....   Hanify.......    didnt you go on a trip......  how was it......   I havnt talk to you in a while..... 
         someday I am going to come to NZ.....   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Chris
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WWW
« Reply #21552 on: January 06, 2010, 10:22:30 PM »
Hi YLGuy aand Tyefly and everyone else who comes in. I'm going to bed od day.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #21553 on: January 06, 2010, 10:23:53 PM »
Quote from: tyefly on January 06, 2010, 09:49:11 PM
  Hey everyone....just got back from D..... feeling really good...... used a blunt for the first time tonight and no problems ....but just in the venous.......

    Got to win with that
:yahoo;  :thumbup;  :clap;

G'night Chris.  Hitting the sack too.
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Des
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« Reply #21554 on: January 06, 2010, 11:03:02 PM »
Hi,

Good morning all. I am going well. (better)

I just came from the school and my daughter has passed her final school exam and now it is Universtity next week. I am so proud of her.  :cheer: :cheer: :cheer:

She is going to be a teacher.......... :urcrazy;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
YLGuy
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« Reply #21555 on: January 07, 2010, 06:32:52 AM »
Good to hear Des.  I have been worrying about you. 
Great news about your daughter!  :2thumbsup;
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dwcrawford
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Getting the heck out of town.
« Reply #21556 on: January 07, 2010, 07:59:56 AM »
Help... Emergency.   

On TV they keep saying "wrap your pipes".  Where are my pipes?
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
YLGuy
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« Reply #21557 on: January 07, 2010, 08:06:31 AM »
Seriously? If you have a basement or crawl space and exposed pipes overhead, the hardware store should have insulation to wrap around your pipes.  If you keep the basement heated then you should not have a problem.
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dwcrawford
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Getting the heck out of town.
« Reply #21558 on: January 07, 2010, 08:11:19 AM »
Thanks.  Yes I was serious.   No basement and low attic (one story and It is going to be toasty the next two days.  So I need to do nothing?  I like that part.

They said pets, plants and pipes.  No pets, plants are too  big for an old dialysis man so I'm done.  Except to start the chili and cocoa.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #21559 on: January 07, 2010, 08:16:48 AM »
Our board (bored) meeting for tonight was canceled due to snow! Yay! :bandance;

However, the snow hasn't started yet!

Des, I'm so glad you are feeling better. Here is to the resiliency of the human spirit!  :2thumbsup; And that is great news about your daughter, too.

Chris, don't give up on the snow yet!  :rofl;   I'm not! But it will only count if we get a snow day, and I doubt that will happen!

Carl had his monthly clinic this AM and everything looks good. We get to discontinue Epogen again. Yay! One less thing to do.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
looneytunes
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Wishin' I was Fishin'
« Reply #21560 on: January 07, 2010, 09:28:40 AM »
Having a pretty tough week so far this week...so I thought I'd post just to say "I love IHD". 

My SIL was diagnosed with Mantel Cell Lymhoma Sunday and it's not looking too good.  She is caregiver to her husband who is a stroke victim (2008) and now I am going to take on her care as well as her hubby's and my spouse also.  And to top it off, I got home late last night from the hospital (about 100 miles from home and it was snowing hard the whole way) and found a frozen/burst pipe in our garage.  So I got to clean up about 40 gallons of water on the floor, all the PD supplies are wet and the boxes have fallen apart.  Called someone out to fix it today.  Spouse is mad at me because he "might" have felt up to  looking at it this afternoon but he is not feeling good this morning (we have the water to the house turned off as of last night and I had to go outside to get water to make coffee and brush my teeth this morning) and...I'm just ready to scream!  But...I love IHD...it's great to read this thread and find a grin here and there!   ;D
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"The key to being patient is having something to do in the meantime" AU
dwcrawford
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Getting the heck out of town.
« Reply #21561 on: January 07, 2010, 09:41:55 AM »
Oh my Higher Power... It is amazing you haven't lost it.  You must be incredibly strong.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #21562 on: January 07, 2010, 09:48:22 AM »
Oh, Looneytunes. I just can't imagine. And to think I was bemoaning five ruptured bags in our delivery this week.

You must have a huge reserve of inner strength.

 :grouphug; :grouphug;

Thinking of you.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #21563 on: January 07, 2010, 09:57:27 AM »
Looneytunes, I think if you start screaming a lot of us will join in.   AHHHHHRRRRRRRR!!!!   You have too much on your shoulders.   Is there anyone else that can give you a hand?   I would have called someone to fix the pipes also.  Waiting for your husband would just add more stress. Sometimes you just need to pay someone to do it.   When I read about all you are responsible for, I feel humbled.  You are amazing.  I think you win for today!     And I am very sorry about your SIL.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #21564 on: January 07, 2010, 11:59:37 AM »

Winning here for looneytunes!  ;D ;D ;D
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
looneytunes
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Wishin' I was Fishin'
« Reply #21565 on: January 07, 2010, 12:10:20 PM »
You guys are such a hoot!  I already won just by getting to "let it out".  Thanks for letting me
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"The key to being patient is having something to do in the meantime" AU
cariad
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What's past is prologue
« Reply #21566 on: January 07, 2010, 03:20:01 PM »
Wow, Looneytunes, that is a lot. I live with one of those "I might be up to fixing that myself" types, and have learned that you have to give them a good shake once in a while and insist on calling in the pros. It is not a comment on their abilities (well, not always ;D) so much as a comment on the reality that we only have so much time and energy in a day. You did the right thing!

I know you can handle this - but don't forget to ask for help and delegate whenever possible. Good luck.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Chris
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« Reply #21567 on: January 07, 2010, 04:01:06 PM »
We finally got some snow, but not enough. Was  a pain driving on the highway though, some spots where white  out. Should have gotten coffee before physical therapy though!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #21568 on: January 07, 2010, 04:11:51 PM »
Looneytunes I live with "I will get to it, when I get to it man." I love the man but he put a note on the washing machine "Do not put a large load in this machine" instead of getting it fixed! Sigh!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #21569 on: January 07, 2010, 05:00:52 PM »
It's official - snow day tomorrow. We had a heck of a time getting home tonight. Not so bad on the main highway, but after that....well, hard to get up our driveway. Spun the whole way!

 :rofl; :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #21570 on: January 07, 2010, 05:35:39 PM »
   Snow man time......       
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
YLGuy
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« Reply #21571 on: January 07, 2010, 06:53:17 PM »
 :snowman;
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galvo
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« Reply #21572 on: January 07, 2010, 07:02:39 PM »
35c (95f) here to-day. Can't locate a snowflake!
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Galvo
kitkatz
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« Reply #21573 on: January 07, 2010, 07:58:53 PM »
So warm here today I had to call my hubby to bring me another shirt. I was sweating buckets in my sweater by 11:30 this monring!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #21574 on: January 07, 2010, 08:06:44 PM »
Okay, you Southern hemisphere folks and Southern California folks are sucking the warmth out of the rest of the world!

 :Kit n Stik;

We want it baaaack!  :rofl; :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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