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Author Topic: Last Post Loves IHD The Most!  (Read 1839321 times)
dwcrawford
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Getting the heck out of town.
« Reply #21500 on: January 04, 2010, 03:59:54 PM »
Mandy, What are you doing here? 
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Chris
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« Reply #21501 on: January 04, 2010, 05:31:14 PM »
Well found out about guide dog today and I do not qualify yet by just a small percentage, so that was bad news when I cam home from getting labs done. Then later in the day I find out my MRI of my knee comes back and doc wants me to see orthopedics s soon as posible. The found four things wrong besides another miniscus tare.

Can handle knee problem, but had my hopes for getting a dog to help get around the city. I do have 2 years to be able to reapply by just having the doctor submit a vision field exam form again.. :(
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #21502 on: January 04, 2010, 05:33:46 PM »
Awww, Chris, don't give up on the dog.  :'(

 :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
dwcrawford
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Getting the heck out of town.
« Reply #21503 on: January 04, 2010, 05:34:32 PM »
What a bummer.  I really wanted a dog...uh, I  mean I wanted you to have a dog.  Any other options?
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Chris
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« Reply #21504 on: January 04, 2010, 05:48:36 PM »
Other option is try to find another guide dog agency, but each is run differently and cost can be astounding. I haven't loked for any locations in Illinois.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #21505 on: January 04, 2010, 07:25:37 PM »
I'm not sure whether I think it's a shame or not - given that 'not' means your sight is better than their cut off point.  But I know you were looking forward to it - don't give up hope.
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Chris
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« Reply #21506 on: January 04, 2010, 07:44:23 PM »
Hanify, each center is different on qualifications. One center I had to be totally blind. But now I'm thinking I should have went to my low vision doctor and paid an exam fee to fill out the form hat included all the devices I have to see and use to get around and to go into detail about my right eye on how I can't see. I will save money and go there later I am thinking, especially when I am denied by just a small percentage point in the vision field exam (can't help but look for the light dots and not just look straight)
« Last Edit: January 05, 2010, 03:48:48 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #21507 on: January 05, 2010, 06:39:38 AM »
Sorry to hear Chris.
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cariad
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What's past is prologue
« Reply #21508 on: January 05, 2010, 10:00:51 AM »
So sorry, Chris. Good luck with the dog and your knee. It sounds like you have some good options to investigate. Let me know if I can help....
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Slywalker
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« Reply #21509 on: January 05, 2010, 10:23:41 AM »
Good afternoon IHD

Chris sorry to hear about the denial for the dog.  rats.

Manda - nice to see you checking in.  How are things up North?

have a fun day....
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Chris
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« Reply #21510 on: January 05, 2010, 03:49:56 PM »
Not much going on in here is there? :waiting;
« Last Edit: January 05, 2010, 08:31:57 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #21511 on: January 05, 2010, 03:58:49 PM »
I am home from work! Geez it was minimum day but I got home at 4pm. Funny huh!   :rofl;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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« Reply #21512 on: January 05, 2010, 08:23:34 PM »
 :shy; Sneaking in here to WIN!!

Hey Chris, sorry about the news, but maybe you should appeal. Don't give up!  :boxing;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #21513 on: January 05, 2010, 08:31:34 PM »
There is no appeal process, just need vision to get worse for them. I want to stay with this organization so I will just get rechecked later this year by going to my low vision doctor this time and pay the big bucks.

Other centers are not as helpful with lodging and transportation issues.Some of the guide dg programs I found online require you to be a resident of that state (California and New Jersey  so far).

I will have to remember to email my low vision center or another center to see if they know more of other places to look at.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #21514 on: January 05, 2010, 09:23:32 PM »
Hey tyefly & Chris.  Good morning Des.  I hope today is a happier day.
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #21515 on: January 05, 2010, 09:34:46 PM »
Hey YLGuy.....Chris and everyone else.......    Good Morning Des......  I know today will be much better......  Happy Wednesday.........
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Chris
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« Reply #21516 on: January 05, 2010, 09:50:51 PM »
Hi Marc and Tyefly  :waving; anyone else who comes in too.
Morning Des
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Des
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« Reply #21517 on: January 05, 2010, 10:04:47 PM »
I really REALLY REALLY love IHD the most.! :bandance;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
YLGuy
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« Reply #21518 on: January 05, 2010, 10:14:00 PM »
Hey Des.  We watched District 9 last night.  Do you guys drive on the wrong side of the road (left)?
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #21519 on: January 06, 2010, 12:20:47 AM »
 :waving; I am still awake!  :yahoo;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #21520 on: January 06, 2010, 02:15:41 AM »
Hi Okarol,,,,,,,,,

Ylguy, no, You drive on the wrong side of the road  :rofl; :rofl; :rofl;
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
willowtreewren
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My two beautifull granddaughters

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« Reply #21521 on: January 06, 2010, 04:44:19 AM »
Good morning everyone!

Still cold as blazes here in Tennessee. I think we snagged the cold weather on our bumper as we drove away from Massachusetts over the holidays!  :rofl;

I'll be back in my own classroom today AND, we have music today. I love our music teacher and it lifts my heart when she is here. We go back many years (same vintage so to speak) and we have a special bond.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Slywalker
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« Reply #21522 on: January 06, 2010, 05:46:39 AM »
Morning IHD - just stopping by to WIN for today!!!

Have a good one.   :flower;
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YLGuy
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« Reply #21523 on: January 06, 2010, 06:09:45 AM »
Good morning.
Des, we drive on the right side of the road which must mean you drive on the wrong side.   :rofl;
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dwcrawford
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Getting the heck out of town.
« Reply #21524 on: January 06, 2010, 06:14:40 AM »
I've been trying to tell you all for ages now that Right is Wrong.

But then, if you are going in reverse is the right side of the road really the left side or....?

Damn, that "other" thread really got me depressed.  I have a lot of work to do on that today.  Better pack computers, etc. to take to Dialysis.
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
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