Ignorant things people have said to you

[rsudock]

Well something totally irratating that Aaron's granny has been constantly keeping me updated on the fact that this neighbor (who they dont like) have had 7 people in their family tested to give the one son who is on dialysis, a kidney. Which I am of course so happy for this man suffering and that he is getting a kidney but what pisses me off is that Aaron's family was SOOO against him donating a kidney to me. They were making up horror stories and continually discouraging him from donating. (You could hear a collective sigh when he wasn't a match) So why does she care so much about this person's situation and could care less about mine??   

whatever! :p

[Riki]

At least they shared an opinion.  The only person in my family who I've asked that's given me an answer was my brother, and he said no.

Then they all promote organ donation on their facebook pages. bunch of hypocrites.

[tbarrett2533]

I think I got you all beat when it comes to dumb (more like hurtful things) family has said re: kidney donation...

I had my only blood brother ready to go be tested as is my half sister... then my father convinced them both not to be tested then said to me and I will quote him, "I don't want Paulie (Brother) to be tested because I do not know what I would do if something were to ever happen to him." 


you can pick your friends not your family!!!

[MooseMom]

Tbarrett, I think you should get some sort of prize for that story.  I'm speechless, and THAT's a rare occurrence.  Unbelievable.

[tbarrett2533]

Tbarrett, I think you should get some sort of prize for that story.  I'm speechless, and THAT's a rare occurrence.  Unbelievable.

 

[rsudock]

At least they shared an opinion.  The only person in my family who I've asked that's given me an answer was my brother, and he said no.

Then they all promote organ donation on their facebook pages. bunch of hypocrites.

hypocrites and jerks!

I think I got you all beat when it comes to dumb (more like hurtful things) family has said re: kidney donation...

I had my only blood brother ready to go be tested as is my half sister... then my father convinced them both not to be tested then said to me and I will quote him, "I don't want Paulie (Brother) to be tested because I do not know what I would do if something were to ever happen to him." 


you can pick your friends not your family!!!

What about if something would happen to you? OMG families are infuriating sometimes!! Aagghh!   


Well ladies at least we have each other! 

xo,
R

[MooseMom]

AT LEAST THEY DON'T WANT THE MONEY YOUR DEAD MOTHER LEFT TO YOU TO HELP PAY YOUR MEDICAL BILLS BECAUSE YOU HAVE A FLIPPING INCURABLE DISEASE!!!!!

[rsudock]

AT LEAST THEY DON'T WANT THE MONEY YOUR DEAD MOTHER LEFT TO YOU TO HELP PAY YOUR MEDICAL BILLS BECAUSE YOU HAVE A FLIPPING INCURABLE DISEASE!!!!!

wow moosema all these threads are coming full circle into each other aren't they? the world makes sense yet again!


xo,
R

[brandi1leigh]

I have a story that left me speechless. A friend of mine, someone I've known for years and who is friends with my mom as well and who has been  "in" on all of my health issues since they started, provided this gem.

So my friend (let's call her Jackie) was pregnant. It's her third child. Every time she's been pregnant, she's failed her first glucose test and her doctor requires her to go through an extended one. So, the day after the extended glucose test, she was describing to me what it was like. She had to drink this awful stuff and then have blood drawn every thirty minutes for 4 hours to see where her glucose levels were. I was very sympathetic and told her so. Her reply...wait for it.."It was awful and you just can't understand what's it like to have sit in a doctor's office and be poked with needles for four hours." My reply, "I think I can imagine it." To which she responded, "NO. YOU CAN'T! Unless you've done it, you just won't understand." This conversation occurred 6 month after I started in-center hemo.

Really? Really? I think if there's one thing I can understand, it's sitting in a chair being poked with needles. Ridiculous.

[MooseMom]

brandi1leigh, surely you are making that up because that is just too bizarre to be true.  Ouch...I just fell out of my chair.

[Chris]

Plus what they don't get is our needles are much bigger!

[jbeany]

I know!  I've had people whine about blood tests to me, until I showed them what a 15 gauge looks like and told them I stuck them in my own arm.  22 gauge butterfly needles are not enough to whine about unless you have an actual needle phobia!

[Dannyboy]

[...shaking my head in amazement.....]

---Dan

[monrein]

I have a story that left me speechless. A friend of mine, someone I've known for years and who is friends with my mom as well and who has been  "in" on all of my health issues since they started, provided this gem.

So my friend (let's call her Jackie) was pregnant. It's her third child. Every time she's been pregnant, she's failed her first glucose test and her doctor requires her to go through an extended one. So, the day after the extended glucose test, she was describing to me what it was like. She had to drink this awful stuff and then have blood drawn every thirty minutes for 4 hours to see where her glucose levels were. I was very sympathetic and told her so. Her reply...wait for it.."It was awful and you just can't understand what's it like to have sit in a doctor's office and be poked with needles for four hours." My reply, "I think I can imagine it." To which she responded, "NO. YOU CAN'T! Unless you've done it, you just won't understand." This conversation occurred 6 month after I started in-center hemo.

Really? Really? I think if there's one thing I can understand, it's sitting in a chair being poked with needles. Ridiculous.

Time to invite "Jackie" sweetie into clinic for a wee visit while you're there..on the other hand you could send her a YouTube video of someone self-cannulating.

[dawn24]

I have a story that left me speechless. A friend of mine, someone I've known for years and who is friends with my mom as well and who has been  "in" on all of my health issues since they started, provided this gem.

So my friend (let's call her Jackie) was pregnant. It's her third child. Every time she's been pregnant, she's failed her first glucose test and her doctor requires her to go through an extended one. So, the day after the extended glucose test, she was describing to me what it was like. She had to drink this awful stuff and then have blood drawn every thirty minutes for 4 hours to see where her glucose levels were. I was very sympathetic and told her so. Her reply...wait for it.."It was awful and you just can't understand what's it like to have sit in a doctor's office and be poked with needles for four hours." My reply, "I think I can imagine it." To which she responded, "NO. YOU CAN'T! Unless you've done it, you just won't understand." This conversation occurred 6 month after I started in-center hemo.

Really? Really? I think if there's one thing I can understand, it's sitting in a chair being poked with needles. Ridiculous.

Wow.  Just WOW

[brandi1leigh]

I wish I was making it up. She's said some other gems but that one's my favorite. Sometimes you just have to laugh at that kind of thing.

[gothiclovemonkey]

 i think its interesting that some people think a grain of sand is a huge problem, versus their neighbors sandcastle.
One person may handle a situation like ours alot better than another.

[YLGuy]

I have a story that left me speechless. A friend of mine, someone I've known for years and who is friends with my mom as well and who has been  "in" on all of my health issues since they started, provided this gem.

So my friend (let's call her Jackie) was pregnant. It's her third child. Every time she's been pregnant, she's failed her first glucose test and her doctor requires her to go through an extended one. So, the day after the extended glucose test, she was describing to me what it was like. She had to drink this awful stuff and then have blood drawn every thirty minutes for 4 hours to see where her glucose levels were. I was very sympathetic and told her so. Her reply...wait for it.."It was awful and you just can't understand what's it like to have sit in a doctor's office and be poked with needles for four hours." My reply, "I think I can imagine it." To which she responded, "NO. YOU CAN'T! Unless you've done it, you just won't understand." This conversation occurred 6 month after I started in-center hemo.

Really? Really? I think if there's one thing I can understand, it's sitting in a chair being poked with needles. Ridiculous.

Time to invite "Jackie" sweetie into clinic for a wee visit while you're there..on the other hand you could send her a YouTube video of someone self-cannulating.

Here...send her mine. 

http://www.youtube.com/watch?v=g4-u04Jh3XM

[Desert Dancer]

My reply, "I think I can imagine it." To which she responded, "NO. YOU CAN'T! Unless you've done it, you just won't understand." This conversation occurred 6 month after I started in-center hemo.
Really? Really? I think if there's one thing I can understand, it's sitting in a chair being poked with needles. Ridiculous.

That's when I'd've whipped out the 15 gauges, shoved them under her nose and said, "Three times a week, BAYBEE, for the rest of my life. Wanna trade places?"

The freakin' nerve of some people. 

[MooseMom]

I wish I was making it up. She's said some other gems but that one's my favorite. Sometimes you just have to laugh at that kind of thing.

That's true.  And after you finish laughing, you come to IHD and tell us all about it so that we can get a good giggle out of it, too.

[MooseMom]

I had to come find this thread because I have a corker of a story...

I had to go to the transplant center over in Chicago today for my cardiac consult.  Took two hours in the morning traffic, and it was bucketing down with rain.  Last year, they let me have my consult with a local cardiologist but this year, they wanted me to go to a guy at the transplant hospital.  God forbid anyone think of the convenience of the patient...

So since the center is a training hospital, I had to first be examined and then questioned by a student resident.  OK, fiine.  This is part of that scintillating conversation (paraphrased):

(resident) So, you're on the which list?

(me)  Kidney.

(him) And what's wrong with your kidneys?

(me)  I have fsgs.

(him)  Why do you have that?

(me) I got nothing.  I'm not even sure I heard the question right.  Uh, hm.. I JUST DON'T KNOW!  Hey, you haven't done your nephrology rotation yet, have you.

It was a long day.

[monrein]

....continuation

(you)  it was my turn, you never know, you could be next....just my luck, and now I have you, another case of FSGS...f****** strange goofy student.

[MooseMom]

OR

(me)  Yeah, I should have chosen some other horrible disease. 


He seemed really out of his depth.  He was either nervous, or else I bored him, because he kept asking me the same questions and I had to keep repeating myself.  I cannot IMAGINE that I could BORE him, though!   I have whining down to a fine art!

[jbeany]

My latest wasn't the comment - it was the tone of surprise that went with it.

I just had my last follow-up with the surgeon who did my abdominal repair.  I was asking questions about specific exercises and activities I was going to be allowed to do, both now and in the future.  He demonstrated a few, and said that an upright posture was really, really important to help restrengthen the damaged abdominal muscles.  He told me that back pain was one of the most common complaints from patients recovering from similar surgeries.
 
I said I'd already figured that out - and I'd spent about a week while I was still housebound walking around with a book on my head (just like Grandma told us to do when we were dumb enough to think being in a beauty pageant would be cool!) because I had realized I was getting back pain from hunching to protect my guts and from the stress of the shortened muscles that had been forcibly pulled back into place in the center.
 
"You are really self-aware with your health issues!" 

Well, duh.  I've been seeing this guy on a regular basis since January - and it took him this long to figure that out?

[MooseMom]

Well, someone has to be aware of our health issues because doctors often aren't.

Good for you!