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Author Topic: Ignorant things people have said to you  (Read 464247 times)
pureserenity
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« Reply #1075 on: August 05, 2011, 08:40:50 AM »

 :clap;
I especially like the "Cant you just have dialysis?" or " Just get a transplant " and that from family members! :banghead; " ee do you know id never thought of that, cause its THAT easy!!!"
And "you cant have bananas? im sure one or two wont hurt you" " Do you know your right, im sure all those Drs are wrong that if my potassium gets too high it could potentially stop my heart!"  :sarcasm;
You have to laugh but i have sat them down and explained things to them and they still dont get it!  :stressed;

Claire x
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IgA Nepropathy  - May 2010
In-centre Hemodialysis - July 2011
Dannyboy
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« Reply #1076 on: August 05, 2011, 08:44:33 AM »

Tracy:
I feel your pain/irritation.

"Dan you have Kidney problems?..."
1.  "oh man sorry to hear about that.......oh, hey, i gotta new rear bumper for my truck...wanna see it???"
2.  "wow.....did I ever tell you about my root canal??   It was REALLY bad.....I thought i'd never get over it"
3.  "wow.....I think my aunt just died from that last week.......how long do they give you?"

---Dan


« Last Edit: August 05, 2011, 09:39:37 AM by Dannyboy » Logged

ESRD Summer 2011
Started using NxStage September, 2011
"Everything is funny as long as it is happening to Somebody Else"--Will Rogers

Alcoa and Reynolds are in a bidding war to buy my serum Aluminum.
raidym
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« Reply #1077 on: August 05, 2011, 09:10:44 AM »

Wow thanks for this post it really cheered me up and made me laugh. I haven't had any stupid comments but if I do I know were to post them :rofl;
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"Laugh or you might cry"
Desert Dancer
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« Reply #1078 on: August 05, 2011, 10:02:28 AM »

Love them all, especially the replies!!  :rofl; I've got two:

"So are you done with that dialysis thing yet?" (Just as soon as you're done with that whole 'breathing thing'.)

And just last week, in response to my assertion that I was on hemo - not PD - a medical assistant said:

"Are you sure?" (Am I sure I didn't have abdominal surgery? Am I sure I don't have a foot-long catheter hanging out of my stomach? Gee, I don't know. Let me think about it and get back to you.)
Logged

August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
jagermiester
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« Reply #1079 on: August 05, 2011, 10:29:57 AM »

 :rofl; OMG!!! those are great.  I know I probably shouldn't be laughing, but I have grown up with some stupid stuff myself (not kidney related).  I was burned when I was 6 months old with 2nd and 3rd degree burns over 35% of my body.  Then add another 10 - 15% scar tissue from grafts.  The stares and the comments and I'm not talking about the kids either!  People can be so....  I don't know if stupid would be the word but clueless.

I have had people tell me my scars are ugly and asked me to wear long sleeves because it grosses them out. 
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Brightsky69
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« Reply #1080 on: August 05, 2011, 11:08:50 AM »

 :rofl;  Wow...I wouldn't even know where to start here.
Back when i was on dialysis for the 2nd time, my mom (who gave me my 1st kidney transplant) walked into my bedroom and saw all of my PD supplies and said "What's all this stuff for?"     :rofl; I said "Mom, I'll give you one guess." 
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #1081 on: August 05, 2011, 11:42:11 AM »

Love them all, especially the replies!!  :rofl; I've got two:

"So are you done with that dialysis thing yet?" (Just as soon as you're done with that whole 'breathing thing'.)


This one made me laugh so hard that I had to run to the bathroom before I peed my pants!!!! :rofl; :lol;
I love it!!!
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #1082 on: August 05, 2011, 11:46:20 AM »

Tracy:
I feel your pain/irritation.

"Dan you have Kidney problems?..."
1.  "oh man sorry to hear about that.......oh, hey, i gotta new rear bumper for my truck...wanna see it???"
2.  "wow.....did I ever tell you about my root canal??   It was REALLY bad.....I thought i'd never get over it"
3.  "wow.....I think my aunt just died from that last week.......how long do they give you?"

---Dan

I did not even go onto to mention these... I get this ALL the time.... people find out (or already know) that I have kidney failure and go on and on about their back aches and tooth aches and all other minor health probelms and yet they legit try to make it seem that it is worst than kidney failure."
I would like to just punch them in the face!!   
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #1083 on: August 05, 2011, 11:50:19 AM »



I have had people tell me my scars are ugly and asked me to wear long sleeves because it grosses them out.

Next time just for sh*t's and giggles say, "your face is ugly and its grossing me out so why don't you cover that up."   :lol;

People are such friggin as*holes!!!!!!!

Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
texasstyle
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« Reply #1084 on: August 05, 2011, 12:09:56 PM »

i love your responses! And aww.. that's makes me sad when I saw "....oh, you are the girl with......"  Some people don't know how to think before they open their mouth. I'm a caregiver to my husband but sometimes the rwxtion to "my husband's on dialysis" is "oh, (quiet enought to her a pin)- "sorry. God, that makes me feel horrible like he died. So me in my way, I use that opproyunity to explain to them some informaion about dialysis and how you live life to a great ability.  He always gets the 'you look good". No one ever says anything to me. Your post really made my day and I'll be laughing about them for the rest of it.    It's the way you came back to them that's great.
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caregiver to husband using in-center dialysis 4 years
jbeany
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Cattitude

« Reply #1085 on: August 05, 2011, 12:22:21 PM »

"You don't look sick."  Sorry, I forgot my "deathly ill" uniform today.

Sometimes the medical staff comments are even scarier.  "Which kidney did they take out to put the new one in?" 

Right now, I'm grinding my teeth over the same comment from the same ding-bat transplant nurse over and over.  "Do you know you're supposed to stay hydrated?"  Well, no shit, Sherlock.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

The Noob
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« Reply #1086 on: August 05, 2011, 12:59:12 PM »

 :rofl; :rofl; :rofl;

when dh first got dx and started dialysis, i told a friend, and reply was "oh gee thats almost as bad as my wife, she just had her gall bladder removed"..

went to Amish friend for coal way back when this started, reply was "my brother had that and now he's dead"
went back 8 months later, got "oh is your husband still alive?"..
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jagermiester
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« Reply #1087 on: August 05, 2011, 02:36:12 PM »

 :rofl; :rofl;

Next time just for sh*t's and giggles say, "your face is ugly and its grossing me out so why don't you cover that up."   :lol;

People are such friggin as*holes!!!!!!!
[/quote]
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #1088 on: August 05, 2011, 02:42:31 PM »

:rofl; :rofl; :rofl;

when dh first got dx and started dialysis, i told a friend, and reply was "oh gee thats almost as bad as my wife, she just had her gall bladder removed"..

went to Amish friend for coal way back when this started, reply was "my brother had that and now he's dead"
went back 8 months later, got "oh is your husband still alive?"..

All I have to say to this is WTF???
and I hear you with the dumb medical providers saying stupid things here's a good one
me to my PCP re: a new medication, "Does this filter through the kidneys?
PCP, "Does it matter your kidneys are shot." 
Oh and my all time favorite from the same PCP in response to me telling her that I was switching from Hemo to PD, "What is PD?"  the kicker her husband is the over seeing dr. at my unit......... YIKES!
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
AlasdairUK
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« Reply #1089 on: August 05, 2011, 02:50:26 PM »


Sometimes the medical staff comments are even scarier.  "Which kidney did they take out to put the new one in?" 


After my transplant I had my fistula removed as it was too large. Pre-op with the surgeon consultation "when did you last have dialyses?" I responded "about a year ago"...you sure you want to remove it and not go for dialyses today? Awesome...so you have read my chart??
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94 - PD for 3 months
94 - HD Permcath for 3 months
95 - RLD Transplant 10 years
2005 - HD Permcath 6 months
2006 - 2008 HDF Fistula
2008 - 2nd Transplant
Desert Dancer
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« Reply #1090 on: August 05, 2011, 02:56:38 PM »


When people hear that Jenna has kidney failure and needs a transplant they ask, of course. "Is she on the list?"

I look at them and ask, "List?"

I love watching them try to explain it.

 :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :clap;
Logged

August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #1091 on: August 05, 2011, 03:25:21 PM »


When people hear that Jenna has kidney failure and needs a transplant they ask, of course. "Is she on the list?"

I look at them and ask, "List?"

I love watching them try to explain it.

 :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :clap;

I totally am going to do this the next time someone asks me b/c that is the number one dumb question I get.... I am going to act like I don't know what "the list" is and watch them squirm  ;D
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Cordelia
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Posts: 2012


« Reply #1092 on: August 05, 2011, 03:43:24 PM »

Well, quite honestly, I get tired of the constant, "Oh, you're so young to have this happen to," comment. I'm so sick and tired of it.   :Kit n Stik;   ::)     Renal failure can happen at any age!!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #1093 on: August 05, 2011, 03:48:12 PM »

Well, quite honestly, I get tired of the constant, "Oh, you're so young to have this happen to," comment. I'm so sick and tired of it.   :Kit n Stik;   ::)     Renal failure can happen at any age!!

I get this one too....... with the sad face, head slightly tilted to the one side....... I wanna scream SHUT UP!!!
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
KarenInWA
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Posts: 1041


« Reply #1094 on: August 05, 2011, 04:11:21 PM »

My favorite response when I tell someone I have kidney failure is "both kidneys?" or "which one?".  I especially love it when I hear my parents tell me a story of them telling one of their dr's or nurses and they say this.  If it was only *one* kidney that failed, I'd be fine!  Why do you think they let healthy people donate on of theirs?  :stressed;

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
raidym
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« Reply #1095 on: August 05, 2011, 04:33:53 PM »

I use a wheechair too I haven't had any stupid comments about diaysis or kidney but many about my disability and the nasties ones usually come for elderly ladies or strangers they feel like they can ask you anything the worst I've had is "So can you have kids then?"
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"Laugh or you might cry"
Cordelia
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« Reply #1096 on: August 05, 2011, 05:24:32 PM »

I can relate, Tbarrett!

Oh, I also get, "here let me help you with that, you're the invalid," 

WTF!?    :Kit n Stik;    ::)     >:(
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Willis
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« Reply #1097 on: August 05, 2011, 05:27:21 PM »

Yesterday afternoon I was a passenger in a car that got rear-ended VERY HARD and it felt like I'd been hit in the back by a sledgehammer. I was stunned and out of breath and wondering if I'd broken my back or not. I didn't want to move so just waited for the EMTs who applied a collar and taped me down to a board until I could get xrayed at the ER.

I was concerned about the EMTs poking around my belly and doing something stupid so I made sure to tell them that I was a dialysis patient and had a PD cath. One EMT came over to take my BP and at least had the sense to ask "Sir, which arm has the fistula?" (I do have a fistula even though I'm on PD right now.) I tried to explain that I was on PERITONEAL dialysis and both EMTs didn't even know what that was. "When do you have your next dialysis?" "Uhhh, I have a belly-full right now....and I do my own dialysis at home while I'm asleep." "Oh...I've never heard of that before! Most of the dialysis patients we deal with are almost dead and we have to rush them down to the center..."

Fortunately nothing was broken and I was released. Now another stupid thing is that the hospital ER I went to is LITERALLY across the street from my PD center. Before I was released I had notified my PD nurse of my injuries and she said that if I had to be admitted they'd have to transfer me to another hospital 20 miles away because the local hospital doesn't "DO" pd on patients.  :banghead;

Well, I'm very sore but at least I think I'm going to be OK.  :clap;

 
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #1098 on: August 05, 2011, 06:27:29 PM »

I can relate, Tbarrett!

Oh, I also get, "here let me help you with that, you're the invalid," 

WTF!?    :Kit n Stik;    ::)     >:(

My response would be, "Here come over here so I can make you invalid by punching you in the face."   ;D :Kit n Stik;
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
galvo
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« Reply #1099 on: August 05, 2011, 07:00:56 PM »

Oh! tb, I can sure relate to a lot of these wacko comments. But, for some perverse reason, your post has got me laughing madly. I had a lousy night after D and you have now brightened my day. I like your style, lady, I like your style!
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Galvo
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