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Author Topic: you wanted a myricle, here i am!  (Read 6969 times)
myricle child
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« on: November 01, 2007, 10:22:00 AM »
hello world, :welcomesign;
im a 29 year old sexy, crazy, and cool DIALYSIS "PERSON" NOT PATIENT! im a unique person, no doubt.  :pics; they definaltly dont make em like me. lol. i was diagnosed with lupus when i was about 12. my kidneys died  when i was 17. i started dialyzing myself at home (hemo) almost 4 years ago and just started on nxstage fri (october 26, '07). i heard about all the benifits from it iand thought id give it a whirl. :clap; WHY NOT! what more do i have to loose right. the things that i heard about it is so revolutionary and phenominal, i just couldnt resist being a part! :yahoo; they say that its like 2000 ppl on it in the nation. anyway, i have a million and one stories to tell but this is only an intro, right.


EDITED: Changed font color - okarol/moderator
« Last Edit: November 01, 2007, 07:27:58 PM by myricle child » Logged
You lookin 4  myricle? Here I am!
glitter
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« Reply #1 on: November 01, 2007, 10:36:08 AM »
your post is almost impossible to read unless you highlight the whole thing- but welcome anyway!! :welcomesign;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
myricle child
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« Reply #2 on: November 01, 2007, 10:42:23 AM »
thannk you! i wish i could go and change it. its my very first time. lol.
Quote from: glitter on November 01, 2007, 10:36:08 AM
your post is almost impossible to read unless you highlight the whole thing- but welcome anyway!! :welcomesign;
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You lookin 4  myricle? Here I am!
KICKSTART
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In da House.
« Reply #3 on: November 01, 2007, 10:45:01 AM »
 :welcomesign; :ukflag;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
bolta72
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my best friend
« Reply #4 on: November 01, 2007, 11:14:28 AM »
Can't read your intro too well, but welcome to IHD
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gotta do what I gotta do.. 2 yrs in ctr hemo
oswald
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« Reply #5 on: November 01, 2007, 11:37:24 AM »
 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Joe Paul
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« Reply #6 on: November 01, 2007, 12:06:00 PM »
Welcome myricle, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
MyssAnne
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« Reply #7 on: November 01, 2007, 12:10:58 PM »
Welcome! Glad to have you aboard with us!! :welcomesign;
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #8 on: November 01, 2007, 12:37:28 PM »
 :welcomesign;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Aldente
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« Reply #9 on: November 01, 2007, 12:42:19 PM »
Cool, crazy, sexy, AND 29.  I can only deal with one of those qualities at a time so have patience with me  ;D.  Welcome.  I'm a NxStage user also.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: November 01, 2007, 01:16:33 PM »
 :waving; Hi Myricle,
So happy to have you join us. I changed your font color - it was hard to read. If you want to go back and change a previous post just look for the "modify" button. Please keep it simple and try to stick with black text (as mentioned in SITE RULES All Members/New Members MUST read! http://ihatedialysis.com/forum/index.php?topic=540.0) - thanks. I look forward to hearing more about Nxstage and how it works out for you.
Welcome!  :welcomesign;


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #11 on: November 01, 2007, 01:20:31 PM »
Welcome to IHD myricle child,

I love your attitude and I can't wait to hear more about your experiences with Nxstage. Nxstage appears to be one of the best things to come along for the dialysis patient.

Live life to the fullest! Please feel free to read and post often.

Sluff/ Admin
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Romona
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« Reply #12 on: November 01, 2007, 01:21:34 PM »
 :welcomesign;
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goofynina
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He is the love of my life......
« Reply #13 on: November 01, 2007, 01:24:10 PM »
Hi Myricle Child,  Welcome to ihatedialysis.com.  I am so happy to hear that NxStage seems to be working out for you, please do come and share some of your experiences that you have lived while on your journey with "dialysis" :)  Looking forward to hearing more from you soon.   :2thumbsup;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
paris
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« Reply #14 on: November 01, 2007, 01:49:08 PM »
 :welcomesign;  Looking forward to hearing more of your story! Glad you found us!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Hawkeye
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« Reply #15 on: November 01, 2007, 02:37:29 PM »
Hello and  :welcomesign;
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It's not easy being green.
boxman55
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« Reply #16 on: November 01, 2007, 02:43:59 PM »
Glad to have you aboard, Welcome to IHD...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Redbomb
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« Reply #17 on: November 01, 2007, 02:51:02 PM »
 :welcomesign;
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angela515
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i am awesome.
« Reply #18 on: November 01, 2007, 06:54:59 PM »
 :welcomesign;

I was reading your intro, and it sounded almost identical to mine. I was dx'd with Lupus (SLE) at age 12, but went into kidney failure age 15 and went on chemo (cytoxin) for 18 months, and my failure reversed. They went into complete failure in 1999 and I went on hemo for 8 months when I got a transplant from my mom. Back on dialysis after having 2 kids, in 2004, and got a perfect match cadaver kidney this Jan.

Looking forward to talking to you!  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
myricle child
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« Reply #19 on: November 01, 2007, 07:26:40 PM »

OMG! congrats!
lol. i was on cytoxin too. seems that i only recieved the "toxin" part cause my hair started falling out, i stayed nauseated, and i never had an appitite. all that for NOTHING! the dr.'s thought for some reason that it was gonna work. it just made me sick thats all. i just got on the transplant list. because my antibodies are so high, its gonna be a lil bit harder for them to find me a kidney. im cool though. im just gonna try this nxstage thingy out for awhile. lol. i think i read in one of epomans training documentations that he said it almost feels like hes addicted now. i think thats about how i feel, which is ironic because im on the machine more times a week which means more sticks. but it give more hope and leisure. i think thats the addiction. beeing free again. some ppl eat breakfast every morning, some walk or jog. i do treatments for 2 hours. thats how i see it.
ps. did epoman die? i saw someone wrote r.i.p. epoman. what happened?
Quote from: angela515 on November 01, 2007, 06:54:59 PM
:welcomesign;

I was reading your intro, and it sounded almost identical to mine. I was dx'd with Lupus (SLE) at age 12, but went into kidney failure age 15 and went on chemo (cytoxin) for 18 months, and my failure reversed. They went into complete failure in 1999 and I went on hemo for 8 months when I got a transplant from my mom. Back on dialysis after having 2 kids, in 2004, and got a perfect match cadaver kidney this Jan.

Looking forward to talking to you! :grouphug;
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myricle child
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« Reply #20 on: November 01, 2007, 07:33:23 PM »
ok. ill be easy.lol. how long have you been doing nxstage? do yo like it and have you seen any changes in yourself and labs? its funny cause i exercise alot, so most of the time im energetic. i keep myself up and most ppl dont even know that im have this condition if i dont say anything. if nxstage does all the things it says it does....I MIGHT JUST BOUNCE ALL THE WAY TO MARS OR SOMETHING! lol. see you in outter space kid!

Quote from: Aldente on November 01, 2007, 12:42:19 PM
Cool, crazy, sexy, AND 29.  I can only deal with one of those qualities at a time so have patience with me  ;D.  Welcome.  I'm a NxStage user also.
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #21 on: November 01, 2007, 09:13:42 PM »
 :welcomesign;

Good to see you here !

See you around the forum

Tamara xxx ooo  :grouphug;  :beer1;  :waving;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #22 on: November 01, 2007, 09:49:11 PM »
Welcome to our community!  We are so glad you found us, and joined us.  As you have probably realized already, there is lots going on at this site.  So please take advantage of all we have to offer.  Keep reading and keep posting. :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Krisna
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« Reply #23 on: November 02, 2007, 12:19:39 AM »
 :welcomesign;

I'm a miracle patient too!  http://ihatedialysis.com/forum/index.php?topic=5364.0

You should read it.  Glad to meet you!
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
donnia
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me and my donor Joyce
« Reply #24 on: November 02, 2007, 06:11:21 AM »
Well....  :welcomesign; 

You have stumbled upon the best board on the net!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
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