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Author Topic: VITS END  (Read 22963 times)
okarol
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« Reply #25 on: October 19, 2007, 12:32:20 PM »

 :2thumbsup; I am so relieved to hear he's home. Best wishes for a PEACEFUL night!! And for many more good days to come!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MyssAnne
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« Reply #26 on: October 19, 2007, 12:40:49 PM »

He's HOME!!!!!!! :yahoo; :yahoo;  That is WONDERFUL news!!! NOW you can sleep easily, knowing he is THERE beside you!!  That is so wonderful!
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skyedogrocks
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Rob showing off his pot of gold!

« Reply #27 on: October 19, 2007, 02:01:17 PM »

Yeah, that is great news!!!!  I'm sure you both will sleep great tonight knowing that he is home where he belongs.  Have a wonderful dinner and night!!!  So glad he is feeling better!!!!   :2thumbsup;
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
Black
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« Reply #28 on: October 19, 2007, 02:30:52 PM »

:yahoo;  Such good news!!  :clap; Hope Len continues to improve and you get many hours of good sleep.  :2thumbsup;
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
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« Reply #29 on: October 19, 2007, 02:36:26 PM »

Glad Len is home.  :thumbup;
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2_DallasCowboys
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« Reply #30 on: October 19, 2007, 02:51:25 PM »

He is home, that is wonderful news!
Here is to a nice peaceful evenening, and then
a good nite's sleep for both of you, this has to
have been such a nerve racking time! :beer1;

Anne and Les
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goofynina
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« Reply #31 on: October 19, 2007, 03:50:40 PM »

 :yahoo; WELCOME HOME LEN  :yahoo;  So glad he is home and resting now, looking forward to hearing what had happend (when you are up to it of course)  I am just glad he is home  :cuddle;
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Jannie
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« Reply #32 on: October 20, 2007, 10:54:20 AM »

Hope Len's recovery continues. Prayers for both of you.
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okarol
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« Reply #33 on: October 21, 2007, 12:41:58 PM »

 :cuddle; Thinking of you guys!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #34 on: October 21, 2007, 03:26:08 PM »

Thanks Everybody,

Len is at home and trying to catch up on his sleep. He didn't sleep in hospital at all I don't think. Friday night he said our house was too quite and last night he was up all night peeing. I hope it gets better soon. He's bowels seem to be working but he can't eat much at one time. Combination of the plastic surgery to close his belly up and BIG kidney, there doesn't seem to be much room in his stomach until things feel like they are backing up. They took him off some of he's medications. They stopped Cellcept all together (said it causes bowel problems) and he only takes 1 blood pressure pill a day and he's blood pressure was low this morning 95/67.  He only takes 1mg prograf twice a day and I'm a little concerned about that. Maybe I'm just worrying too much. I don't know anymore. I'm the cooking queen. Lots of small meals during the day and now he takes medication with food or with milk. Things have changed so much in our 7 years that I wonder how I've kept it together this long. Well, I'm pooped. To the point of being dizzy. I have been having terrible pain in my right hip for months and now it just burns all the time. I tried everything last night to get comfortable and nothing worked. Tonight I'm taking a sleeping pill and pray if Len needs me, I'll hear him. I need some rest. We are suppose to go back for Clinic on Tuesday, but I'm calling the coordinator tomorrow morning and asking if we can switch to Wednesday or Thursday. Another 5 hours in the car just makes me hurt more. I'm so sorry that this is just rambling and probably not making much sense. I just want this to get easier and maybe I'm just impatient. Imagine that. Take care everyone and I do try to post on other threads as time permits.

Have a nice evening.
Kathy
willieandwinnie
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goofynina
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« Reply #35 on: October 21, 2007, 03:31:22 PM »

Thanks for the update Kathy and i hope your hip is feeling better, remember, you need to take care of yourself too my friend, so make sure you take time out for you and dont over do it (as if it that easy huh) :)   Our prayers, good thoughts and well wishes are with you and Len always,   :grouphug;
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....and i think to myself, what a wonderful world....

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2_DallasCowboys
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« Reply #36 on: October 21, 2007, 06:00:12 PM »

Kathy,

I hope your hip will stop hurting and you can
get some much needed rest.  Have you tried
Tylenol PM?  I sometimes get bad hip and knee
pain at nite, this does seem to give me some
relief.
Hope you and Len have a much needed and
peaceful sleep

Anne
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willieandwinnie
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« Reply #37 on: October 24, 2007, 05:00:12 AM »

:banghead;

I took Len to Washington Hospital Center for his clinic appointment yesterday. We ate and started home. By 4:30 is said he was having stomach pains. He went and laid down and by 8:30 I was calling the ambulance. They couldn't get a blood pressure on him so they called advance life support. He was taken to local hospital and at 1:30am this morning after having to come back home and get his medications because the local hospital doesn't carry them, Washington hospital center accepted him back. I have no idea what time this morning they came and got him. I did get a call back from the trauma surgeon that told me not to worry that he would be treated by they best they have. This is just breaking my heart, yesterday afternoon he said he would rather be back on dialysis then going through this. The transplant doctor said yesterday that we had to get a GI doctor to have a look at Len's stomach, so I called them yesterday and they said next Wednesday they would do the scope to see what was going on. I'm not driving to DC today, Len will be upset, but I only got about 3 hours of sleep and the weather here today isn't the greatest and we have the corner on the market for stupid drivers. I'm sure they will be doing lots of tests and I would just be pacing around. The transplant doctor took him off all rejection medications except for 1 mg prograf twice a day. He said Len's kidney is working great and Cellcept is known to cause intestinal problems. Len Creat was 0.9 and his BUN was 22. He has lost so much weight again and muscle mass is just gone. I don't know what the next few days will bring but please say a prayer they can find out what is wrong. I just want my husband back. I'll post when I can. Thank You for listening to me.

Kathy
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MyssAnne
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« Reply #38 on: October 24, 2007, 05:31:01 AM »

Oh honey. We're here for you. Go get some sleep now. We'll be praying for both of you, Les has had such a horrible time of it, but then, so have you.  :grouphug;
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kitkatz
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« Reply #39 on: October 24, 2007, 06:31:01 AM »

God speed on his recovery. 
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #40 on: October 24, 2007, 06:58:09 AM »

Saying prayers for Len, and for you, too
that all will be well for both of you :grouphug;

Anne
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okarol
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« Reply #41 on: October 24, 2007, 07:51:29 AM »

Is it possible for you to stay nearer to him? All that driving is so stressful, and you need more rest.
I hope Len gets some solutions quickly. I am so sorry for you both.
Take care.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #42 on: October 24, 2007, 08:28:26 AM »

I am so sorry for all you are going through.  Len has had so much going on and you are so exhusted.  I hope things take a turn for the better soon. :grouphug;
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skyedogrocks
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Rob showing off his pot of gold!

« Reply #43 on: October 24, 2007, 08:53:06 AM »

Oh, I am so sorry about Len.  I hope they figure it out quickly.  I agree, is there a way you can stay closer to the hospital?  Does the hospital offer special rates on hotels for family members?  You are both in my thoughts and prayers!   :cuddle;
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
Joe Paul
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« Reply #44 on: October 24, 2007, 11:25:11 AM »

Sorry Len is having so much trouble. I hope you can get rested up, and the hip pain stops soon too, will keep you both in thought and prayer.
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goofynina
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« Reply #45 on: October 24, 2007, 06:24:22 PM »

Sending positive thoughts and prayers your way, I hope your getting some sleep and we look forward to you coming back and telling us some Good news ;)  God Bless you both.  :cuddle;
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« Reply #46 on: October 24, 2007, 06:29:32 PM »

What a roller coaster ride you have been on. Please get some rest for yours and Lens sake. My thoughts and prayers are with you both.
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willieandwinnie
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« Reply #47 on: October 26, 2007, 02:25:03 PM »

I did not go to Washington Hospital Center today. I went yesterday in the horrible rain and traffic, then I sat most of the time alone. Len went for endoscope, NG tube, x-rays and with the pain medication he hardly knows I'm there. They also found gallstones. Today they moved him to a private room, put in a central line so they can start TPN. He has lost so much weight and they said he needs some calories. The transplant doctor and the trauma surgeon will probably both be in on the operation for blockage since it is behind the new kidney. I am just so numb that I am going through the motions. I try to stay upbeat when with him and keep telling him he has been through much worse and came out of it. I doing all my crying when I'm alone. I'm praying for the best but preparing for the worst. If that makes any sense. I'm guessing that they will operate on him sometime Monday. He just wants to get it over with. I'll try to post when I get time or have something more to say. Keep praying that he is strong enough to go through another round of this.

Kathy

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angela515
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« Reply #48 on: October 26, 2007, 02:30:45 PM »

I am so sorry to hear this hun. My prayers are with you both, and I pray for his strength to help him get through this.  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
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kidney4traci
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« Reply #49 on: October 26, 2007, 02:38:20 PM »

Please know you are not alone.  Prayers to you!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
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