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Author Topic: Amanda got the call.. The day before my wedding  (Read 78890 times)
KR Cincy
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Home hemodialysis since May 07

« Reply #375 on: November 13, 2007, 08:04:24 AM »

GREAT numbers!! I hope you're feeling good physically AND emotionally...stay focused on what's important and what you want your future to be and know we're all here for you!
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Not giving up...thanks to Susan.
Amanda From OZ
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« Reply #376 on: December 02, 2007, 04:51:21 AM »

I'm Back alive and well.....!

Thank you everyone who messaged me or called me wondering where i have been. My STUPID DELL laptop was not working for a week and i only got it back on Friday. And then i went away with the girls for the weekend, which i might add was the FANTASTIC.  :) And just got home not to long ago.

My Health has been going pretty good, i have not felt this good in a long time. I have been going to the gym nearly almost everyday and have just been enjoying my time free from dialysis as you never know what the future holds.

Even while i was away from the computer for a week or so, i am always thinking of you all, and hoping everyone is safe and well.

But jezzzz! i have a lot of reading to catching up to do!!  ;D

Amanda
xxoo

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lola
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I can fly!!!

« Reply #377 on: December 02, 2007, 05:29:44 AM »

Mans I'm so glad all is well with you :bandance;
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angela515
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i am awesome.

« Reply #378 on: December 02, 2007, 07:56:35 AM »

So great to hear your doing wonderfully  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
paddbear0000
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« Reply #379 on: December 02, 2007, 09:08:07 AM »

I'm glad to hear from you again and that you're doing so well!  :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
2_DallasCowboys
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« Reply #380 on: December 02, 2007, 10:59:47 AM »

So happy to read you are doing so well,
Amanda!   Keep on keepin' on!!! :clap;

Anne
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okarol
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« Reply #381 on: December 02, 2007, 11:20:02 AM »

Well, I did miss you. But if you're out having fun and feeling good then I am not about to complain!  :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #382 on: December 02, 2007, 12:06:59 PM »

Glad the reason you were away was because you were having fun, and a bloody stupid computer  :banghead;

Keep on having Fun Girl !  :clap;

Take Care Tamara xxx ooo
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Falkenbach
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« Reply #383 on: December 02, 2007, 02:09:52 PM »

Glad you're doing well!

I have been going to the gym nearly almost everyday

What kind of exercises can you do, and what kind of exercise do you have to avoid? Did you have to get advice from your doctors before you went back to gym?
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Amanda From OZ
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« Reply #384 on: December 02, 2007, 03:01:43 PM »

Thanks Everyone.  :cuddle;

Glad you're doing well!

I have been going to the gym nearly almost everyday

What kind of exercises can you do, and what kind of exercise do you have to avoid? Did you have to get advice from your doctors before you went back to gym?

Cycobully i am on a trail with prograf, which investigates the increase of diabetes and prograf. They are seeing that people that combine weight training and low body mass index have a 70 percent less chance to get diabetes. I have been told i am able to do anything.

I do weight training which involves all the major muscles, and then i do 2 hours of cardio, a combination of walking, running, cross trainer, stepper, rower and bike.

You wouldn't start at doing that much, just build it up slowly and listen to your body. I know a few people say that the drugs we are on after transplant make you put on weight, but if you exercise and eat well you shouldn't have a problem with that. I weigh the same as i did before i went in for the operation.

Amanda
xxoo
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goofynina
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He is the love of my life......

« Reply #385 on: December 02, 2007, 05:27:22 PM »

Hi Amanda  :waving;  So glad to see you back and posting again ;)  missed ya girlfriend  :cuddle;
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....and i think to myself, what a wonderful world....

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Falkenbach
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« Reply #386 on: December 02, 2007, 07:13:06 PM »

Thanks for the info Amanda.

I have put on weight since the operation, but I'm still at the lower-end of the healthy weight range, so that's okay. I just hate the flabby belly that I have developed, but I found sit ups uncomfortable and when I mentioned this to my nephrologist he basically said "oh no, don't be doing that yet!", so it just made me wonder if there were any particular wide-ranging restrictions for transplant patients.

I can't do a lot of other exercise because I can't walk properly still. I can do upper body weight training of course, I've just been a bit lazy about it.  :)
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angela515
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i am awesome.

« Reply #387 on: December 02, 2007, 08:31:12 PM »

I know a few people say that the drugs we are on after transplant make you put on weight, but if you exercise and eat well you shouldn't have a problem with that. I weigh the same as i did before i went in for the operation.

Amanda
xxoo

You are correct. :) With my first transplant, I remained the same weight as before it, and actually ended up losing some because I had so much energy to do so much more. However, this time, it has nothing to do with my transplant as to why I am gaining weight, it's because I can't really do the exercising part right now, however, I *can* watch what I eat.. and I should... it's just so hard to resist what you've been denied for so many years.  :lol;

 :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
George Jung
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« Reply #388 on: December 02, 2007, 08:59:56 PM »

You are awesome Amanda.  Thanks for posting the good happenings.   :waving;
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Romona
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« Reply #389 on: December 02, 2007, 09:38:54 PM »

Amanda you are such a good role model. Keep it up. :cuddle;

I had lost weight after my transplant but put it back on and then some. Some of the meds do mess with hormones and metabolism.
Hopefully I can take the weight back off. I didn't start gaining until about 6 months afterwards.
I still am having pain in my side. That's why I am up late now instead of sleeping. I did exercise tonight which makes it worse.
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Joe Paul
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« Reply #390 on: December 03, 2007, 12:37:30 AM »

Good to hear you are doing so well  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
KR Cincy
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« Reply #391 on: December 03, 2007, 10:46:24 AM »

I was wondering where you wandered off to...but am very happy to hear you are doing well and enjoying life.
Amanda and her girlfriends out for a weekend...it boggles the mind wondering what all happend then!!!  >:D

Welcome back...it's always wonderful to hear from you!!
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okarol
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« Reply #392 on: December 09, 2007, 02:54:19 PM »

Thanks Everyone.  :cuddle;

Glad you're doing well!

I have been going to the gym nearly almost everyday

What kind of exercises can you do, and what kind of exercise do you have to avoid? Did you have to get advice from your doctors before you went back to gym?

Cycobully i am on a trail with prograf, which investigates the increase of diabetes and prograf. They are seeing that people that combine weight training and low body mass index have a 70 percent less chance to get diabetes. I have been told i am able to do anything.

I do weight training which involves all the major muscles, and then i do 2 hours of cardio, a combination of walking, running, cross trainer, stepper, rower and bike.

You wouldn't start at doing that much, just build it up slowly and listen to your body. I know a few people say that the drugs we are on after transplant make you put on weight, but if you exercise and eat well you shouldn't have a problem with that. I weigh the same as i did before i went in for the operation.

Amanda
xxoo

Hi Manda -
How often are you doing cardio? It can't be 2 hours everyday? Are you still doing weight training daily? I bet you're strong and lean!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Amanda From OZ
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« Reply #393 on: December 09, 2007, 03:10:05 PM »

Hey Karol...   :cuddle;

Well i was doing it until a few days ago, my creat. was getting high they said because of too much exercise. So for the last 3 days they told me not to do any exercise and I'm doing a blood test to check the levels tomorrow, just so they can see a baseline without exercise. Ive been still continuing with mt exercise routine, but now i do Pilate's 3 times a week, power walking for an hour 3 times a week, one day off, and weight training 4 days mixed in with the other exercises.  :)

The other good news I'm totally off Prograf!!!

Everything else is going well but the only problem is i CAN;T SLEEP!!  :-\

Amanda
xxoo

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okarol
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« Reply #394 on: December 09, 2007, 04:09:59 PM »

Hi Mighty Manda!  :ausflag;
I don't know how you can stay awake after all that exercise! Makes me want to take a nap just thinking about it!
How long since you last took Prograf? Do they have you on CellCept or any other immuno?
Jenna's creatinine went up to 1.3 this week so they are reducing her Prograf. She isn't going to the gym because her trainer left to have a baby, but she still walks about an hour a day.
Hope things stay good!
Love u!  :cuddle;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #395 on: December 09, 2007, 04:47:42 PM »

You are our IHD poster child. Glad things are going well and I hope the Creat level goes down again.
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RichardMEL
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« Reply #396 on: December 09, 2007, 11:55:05 PM »

Oh Amanda you can't sleep because you've been overworking that bf of yours haven't you?!!?!  >:D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Chicken Little
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« Reply #397 on: December 10, 2007, 12:31:19 PM »

I just read this and I'm stunned and happy that you are doing so well. 

Take care.   :cuddle;
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Amanda From OZ
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« Reply #398 on: December 16, 2007, 01:54:53 AM »

I just want to start off by saying AGAIN..... i hate dell. Anyway...

I have just been able to get on line to a computer tonight....  i have been having a few dramas with my creat. going up, and just in case they did a biopsy on Thursday (the day i saw charee). But the results have been all good. I have been feeling well the last few days, and its finally hitting me that i have not been on dialysis for 3 and a half months...  :)

I got to see charee for a very short time in clinic on Thursday, we were both very busy with appointments, and me going down to do a biopsy. But it was great to see her even if it was just for a short time. She looked beautiful and im glad to hear she is one step closer to a transplant.  :cuddle;

Oh Amanda you can't sleep because you've been overworking that bf of yours haven't you?!!?! >:D
maybe ;)

Thanks again for still thinking of me.

Love you all.

Amanda



« Last Edit: December 16, 2007, 08:28:45 AM by Amanda From OZ » Logged
RichardMEL
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« Reply #399 on: December 16, 2007, 07:17:59 AM »

uh well I don't know about visuals Amanda honey.... that seems a bit wrong somehow... but I like the idea that you're doing well and if that includes doing THAT then... well... WOOHOO!! :)

wow no dialysis for 3 and a half months.. sounds like a dream....

I want in! :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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