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Joe Paul
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« Reply #350 on: October 29, 2007, 09:52:47 AM » |
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Good to hear from you & glad things are working out  |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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Falkenbach
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« Reply #351 on: October 30, 2007, 02:08:18 AM » |
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Sorry you had a rough time for a few days. Keep getting better! (I'll drink to that  ) |
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tamara
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« Reply #352 on: October 30, 2007, 02:29:01 AM » |
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Yep girlie you need to keep on keepin on! Stay on Track !   |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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Sluff
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« Reply #353 on: October 30, 2007, 04:15:37 AM » |
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Glad you are feeling better.  |
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Amanda From OZ
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« Reply #354 on: November 03, 2007, 01:13:58 AM » |
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Hey Everyone! Hope you are all doing well, i have not been on in the last couple of days because... frankly my computer and internet is RETARDED!!  Anyhow... my Creat. jumps between 70 - 90 lately.. its been going up a bit because I've started going harder at the gym lately. I'm feeling great and back on track! and the doctors are happy with how things are going.. I have a scheduled routine biopsy on Monday to check that all is going well and there is no sign of rejection! (they do these on everyone between 8 - 12 weeks). I also wanted to add to something regardless of my complication and troubles i would not take back me having a transplant for anything. I feel fantastic.. and i believe things happen for a reason...and i was meant to have this kidney.... to anyone who believes a transplant is for them... don't ever give up hope or be scared of the what is to be... its worth every risk that a transplant throws in front of you... and i hope all u waiting get that call in time... Love Amanda xxoo |
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Joe Paul
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« Reply #355 on: November 03, 2007, 01:20:26 AM » |
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Good to hear you are feeling so good. I cant wait till I get my call, I have not been feeling the best as of late.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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Amanda From OZ
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« Reply #356 on: November 03, 2007, 02:05:29 AM » |
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Aw sorry to hear that Joe... I hope you feel better AND will be praying you get that call soon my friend. |
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tamara
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« Reply #357 on: November 03, 2007, 03:37:45 AM » |
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You go girl, so glad to hear of your progress ! Makes me look forward to hopefully how I will be in a couple of weeks ! Take Care P.S Don't work to hard, you will make it hard for all the woman lookin for a man, they will be lookin at you too much !   |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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okarol
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« Reply #358 on: November 03, 2007, 02:03:08 PM » |
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angela515
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« Reply #359 on: November 03, 2007, 04:03:57 PM » |
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Yay Amanda.. Your awesome girl! Keep it up  |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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Chris
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« Reply #360 on: November 03, 2007, 05:26:21 PM » |
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Keep doing what your doing Amanda, just drink more fluidswhile at the gym.
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
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lola
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« Reply #361 on: November 03, 2007, 05:58:01 PM » |
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Mans glad everything is going good and remember if you need me to I'll come kick some butt with you as long as your buying  |
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RichardMEL
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« Reply #362 on: November 04, 2007, 07:13:01 AM » |
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Amanda you and Tamara keep me going lately in my wait for THE CALL. Even though I've only been waiting around 2 years it's still a bit stresfull at times.. half of me imagining how it might be to have a transplant (can you guess how many iced coffees I am going to drink?!! or slurpees... or hell bottles of ice cold water??? )... and then I wonder how long it will be till I get that call.. then I get annoyed with myself for thinking about life WITH a transplant... like teasing myself when it's not happening yet... so sometimes can get a bit disheartening... specially when my sister's donation was knocked back earlier this year... but you two lovely ladies give me faith and I so enjoy reading how well you are both doing and improving every day... (of course I am slightly envious, but not in a bad way!).... so keep up the good work lil donated kidneys may your lovely owners be healthy and happy for years to come (oh did I mention drop dead gorgeous too?  )... xox |
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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vandie
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« Reply #363 on: November 04, 2007, 07:25:06 AM » |
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Amanda, you are truly an inspiration and your attitude is beautiful, positive and makes me smile. Keep it up girl. You are doing great!!
xoxo
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
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Falkenbach
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« Reply #364 on: November 04, 2007, 06:40:54 PM » |
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I also wanted to add to something regardless of my complication and troubles i would not take back me having a transplant for anything. I feel fantastic.. and i believe things happen for a reason...and i was meant to have this kidney.... to anyone who believes a transplant is for them... don't ever give up hope or be scared of the what is to be... its worth every risk that a transplant throws in front of you... and i hope all u waiting get that call in time... This is how I feel too, Amanda, although my complications have been much simpler than yours, so it was great to read your post. You mentioned the gym also. What advice, if any, have the renal docs given regarding excerise? I've had problems trying to get back to exercise due to not being able to use my legs/feet properly, but I really want to start toning up again, etc. I was told it's too early to do things like sit ups, but haven't had much other advice. Thought I might at least start on some arm weights. |
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« Last Edit: November 04, 2007, 06:42:55 PM by cycobully »
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Amanda From OZ
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« Reply #365 on: November 07, 2007, 02:22:37 AM » |
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Thanks everyone once again for the nice thoughts and comments.
Well my creat. has been around 80 the last week which is good number because ive started going to the gym everyday.
I will be getting my biopsy results tomorrow, but seeing i have not heard back from them no news is good news.
Here is a list of my drugs to date 9 weeks post transplant!
Cellcept 750mg twice a Day
Tacrolimus (prograf) 2.5 mg Twice a Day
Prednisolone 5mg Once a Day (going back to 2.5 tomorrow!)
Valcyte 450mg Once a Day
Calcitriol .25mg Once a Day
Amanda
xxoo
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« Last Edit: November 07, 2007, 06:15:26 AM by Amanda From OZ »
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tamara
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« Reply #366 on: November 07, 2007, 02:40:59 AM » |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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KR Cincy
Sr. Member
 Offline
Gender: 
Posts: 930
Home hemodialysis since May 07
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« Reply #367 on: November 07, 2007, 06:04:18 AM » |
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YAYYYY Amanda...great creat number...and especially happy that you'll be reducing that prednisone dosage tomorrow (that's such nasty stuff)...and I'll assume, since you're back to the gym, that overall you are feeling OK...how's everything in your head though? Your posts sound great, but just wanted to check |
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Not giving up...thanks to Susan.
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Amanda From OZ
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« Reply #368 on: November 07, 2007, 06:34:10 AM » |
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YAYYYY Amanda...great creat number...and especially happy that you'll be reducing that prednisone dosage tomorrow (that's such nasty stuff)...and I'll assume, since you're back to the gym, that overall you are feeling OK...how's everything in your head though? Your posts sound great, but just wanted to check
KR Cincy... you must be good at reading peoples mind I've had a few dramas at the hospital with some health stuff (unrelated to the kidney) but I'm hoping it will turn out to be nothing. And yes i will be taken off the prednisone all together... but i have not had any dramatic side effects because I'm such small dosage... so i can't complain. Thanks again. Amanda xxoo |
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Romona
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« Reply #369 on: November 07, 2007, 02:43:27 PM » |
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Glad you are doing so very well. From reading other posts and from personal experience, we all have had some drama post transplant. Like you it is unrelated. I wonder if after transplant we all are more cautious and try to take better care of ourselves than the average person. |
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Amanda From OZ
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« Reply #370 on: November 12, 2007, 11:47:50 PM » |
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Here is another quick update-
My creat. today was 67 and all my other results are pretty good! I've been going to the gym atleast 6 days a week, and ive decided to defer university (college) until next year.
Amanda
xxoo
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Joe Paul
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« Reply #371 on: November 12, 2007, 11:57:50 PM » |
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Sounds great Amanda |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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tamara
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« Reply #372 on: November 13, 2007, 12:15:12 AM » |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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Sluff
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« Reply #373 on: November 13, 2007, 04:20:28 AM » |
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Here is another quick update-
My creat. today was 67 and all my other results are pretty good! I've been going to the gym at least 6 days a week, and Ive decided to defer university (college) until next year.
Amanda
xxoo
Well at least you won't have that extra stress right now, besides at least I can stay smarter than you for another year.. |
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angela515
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« Reply #374 on: November 13, 2007, 06:07:00 AM » |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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I Hate Dialysis Message Board
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