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Author Topic: So what are you up to this weekend?  (Read 25731 times)
Sugarlump
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10 years on and off dialysis

« Reply #25 on: August 23, 2013, 10:46:09 AM »

This weekend we are going to finish decorating our living room. There is a huge crack running from floor to ceiling in the corner (movement crack new property) which we need to fill with filler and then paint in Eygptian Sand colour and then it will be all done. Sadly we have to move a bookcase and about 100 odd books to get to it !!! but be good to get it finished. Weather is looking very unsettled for a bank holiday weekend (storny) ... so out to dinner Saturday night at the pub with a friend, and watch the Belgian Grand Prix on Sunday. Come on Lewis  :ukflag;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #26 on: August 23, 2013, 10:54:53 AM »

Today I am driving from Phoenix to Los Angeles by myself. It's only 5 1/2 hours but is the longest drive I have ever done alone.
My son is happily moved in at Univ. of Arizona in Tucson. Gonna miss that sweet kid!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Riki
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« Reply #27 on: August 23, 2013, 09:08:18 PM »

I don't think anything's been planned, so I'm probably just gonna veg out
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Sugarlump
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10 years on and off dialysis

« Reply #28 on: August 25, 2013, 01:06:38 AM »

ooh ooh ooh Lewis is on pole
Could it be another British win at Belgian GP???   :ukflag;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Krisna
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« Reply #29 on: August 30, 2013, 04:16:47 AM »

Don't really have any plans yet.  Except for a movie or 2 at our local AMC theater.  We picked up a gift card at Safeway yesterday to get the extra fuel rewards.  And if we're up to it tonight we might go after dialysis.  Which wouldn't be till after 10 pm.  If it's nice we might go down to Alki (Seattle beach) and us a Groupon for one of the places you rent bicycles and surreys.  About a month ago we used a Groupon at a Seattle arcade!  They have a bunch of classic arcade games and some pinball machines.  Those were where I pretty much stayed.  lol
« Last Edit: August 30, 2013, 04:18:44 AM by Krisna » Logged

Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
Sugarlump
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10 years on and off dialysis

« Reply #30 on: August 30, 2013, 11:06:08 PM »

This weekend i want to tackle my wardrobe... time for a clear out and reassessment  of my clothes... and throw out stuff I no longer wear or doesn't fir...
I have this theory every time I buy something new I should get rid of an old garment (but it's not working very well!!!)
I need to be ruthless   :Kit n Stik;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Jean
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« Reply #31 on: August 31, 2013, 12:37:02 AM »

Saturday night is our annual Ice Cream Social, Hot dogs, root beer floats, every kind of sundae and banana splits, then a sing along. Sunday is bible Study, just love that and then Monday I think I am just going to watch some kind of marathon on TV. With only one eye closed, LOL
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One day at a time, thats all I can do.
willowtreewren
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« Reply #32 on: August 31, 2013, 09:44:32 AM »

I have most of my laundry done, and this afternoon I need to go see my dad at his assisted living. They want me to talk with him about maintaining better hygiene or letting them help him with it. So far he has been adamant about not letting them help. Sigh.

Then maybe a trip to the mall. I have a pair of jeans that I need to return. They are exactly the same size as two other pair that fit perfectly from the same company. These are waaaay too long and oddly baggy in  spots. I don't like going to the mall. But Carl will like visiting the Apple store, I imagine!  :2thumbsup;

The weather has been warm and sunny, but rain is supposed to move in for the rest of the weekend. I need to squeeze in a refreshing swim before that happens.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Sugarlump
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10 years on and off dialysis

« Reply #33 on: September 02, 2013, 01:23:39 AM »

I didn't get very far with my wardrobe this weekend ... and ended up going shopping and buying a new patterned top, a grey jumper with cat's eyes on it, a new black handbag and black suede chelsea boots ... as well as ordering a black lace topped dress online as they didn't have it in my size. Now I definitely have to make some room somewhere!!!!  :o
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Rerun
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Going through life tied to a chair!

« Reply #34 on: September 02, 2013, 10:49:17 AM »

I went over to the clinic and told them the drains stunk and I was not going to put up with it anymore and would call the health department if something was not done.
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Sugarlump
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10 years on and off dialysis

« Reply #35 on: September 14, 2013, 05:31:00 AM »

Today we are having a lasagne tasting competion. Three of us, me, my partner Drew and friend called Carol are all cooking lasagne for dinner, to have with salad and garlic bread and wine.
We were having a debate as how you cook the best lasagne so tonight we are doing it for real.
My recipe includes mushrooms, red wine and garlic ... and plenty of herbs
Should be fun wonder who will win???   :clap;  :clap;  :clap;

And later on we might wander down to the local pub where the-man-in-the -hat (aka our postman and aka our first responder!!!) is singing tonight!!!!  :guitar:
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
willowtreewren
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My two beautifull granddaughters

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« Reply #36 on: September 14, 2013, 08:13:16 AM »

My big plans for the weekend.....recuperating from gallbladder surgery yesterday.  :2thumbsup;

Doing a bit of laundry and attending a lecture. It's back to work as usual on Monday!
Logged

Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile

« Reply #37 on: September 14, 2013, 12:20:54 PM »

Getting my gardens ready for the winter which feels simply strange since everything still looks beautiful.  However we  are going to France for just over a month at the end of Sept so don't want to return to lots of yard work in November.  Today is work at the lake and tomorrow is more wrk at the house.  Tomorrow afternoon I'm doing a consultation with a neighbour who just had a whole new landscaping thing done but has zero clue about how to care fr any of it.

What feels so terrific about this is having the energy to work steadily for hours on end and I take so much pleasure from any sore muscles or achy joints since when I'm on D work happens in half-hearted half-hour spurts and there is very little pleasure.  I never take my body for granted and this weekend is a good example of why.  This evening I'll do a two mile walk to sort out the stress of bending and pulling all day.
« Last Edit: September 14, 2013, 06:24:55 PM by monrein » Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Henry P Snicklesnorter
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« Reply #38 on: September 14, 2013, 02:29:33 PM »

.
« Last Edit: October 20, 2013, 09:16:30 AM by Henry P Snicklesnorter » Logged
MooseMom
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« Reply #39 on: September 14, 2013, 02:55:42 PM »

Henry P, that's a stunning piece of woodworking you have there!  It's truly beautiful.  I'm really impressed.
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"Empathy is the soul of democracy."  Jeremy Rifkin
monrein
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Might as well smile

« Reply #40 on: September 14, 2013, 02:59:17 PM »

Absolutely gorgeous wood and workmanship H P S.  :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #41 on: September 14, 2013, 03:05:41 PM »

What feels so terrific about this is having the energy to work steadily for hours on end and I take so much pleasure from any sore muscles or achy joints since when I'm on D work happens in half-hearted half-hour spurts and there is very little pleasure.  I never take my body for granted and this weekend is a good example of why.  This evening I'll do a two mile walk to sort it the stress of bedding and pulling all day.

And this kind of work leads to really good sleep, too! 

My years of being pre-D meant that, well, I pretty much left my back garden to do it's own thing.  My front garden gets full sun all day, but the back is heavily shaded AND it slopes downward.  I just didn't have the energy to tackle it.  But now I've redesigned it, creating "rooms" with benches and paving that I've been gradually putting down as I get a more concise idea of what I want to achieve (which is a more English country garden look than a more landscaped look).  So today I created my last "room".  We bought offcuts of Cherokee paving stone, and I created a small patio in front of my newest bench.  I created a new bed, using logs from several trees we had to either cut down or just trim.  At the entrance to this "room", I place a stepping stone that my mother had given me, hauling it in her suitcase all the way to London, and now it is back in the US.  What's nice about my new garden "room" is that I can see it from the bedroom.  Because of the way our property slopes downward in the back, our bedroom looks into the trees, so I have to look downward into the back garden, if that makes any sense.
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monrein
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Might as well smile

« Reply #42 on: September 14, 2013, 03:11:55 PM »

It sounds so lovely  MM...like something I really want to see...and I still have the plan to visit you.  I'd love to catch up ith you in person.
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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Posts: 9762


« Reply #43 on: September 14, 2013, 03:20:11 PM »

Well, it is still very much a work in progress.

I was thinking the other day that it's getting close to October which is "monrien in France" month!  I'm hoping to go to London in November; I haven't been back since this whole kidney circus started. ::)

Like you, I enjoy the feeling of sore muscles due to playing in the dirt.  But I simply can't stand working in the sun.  Prednisone had made me truly hate the heat, and sunscreen makes me sweat even more.  I have to plan my gardening activities according to the temperature.

I hope you have a lovely time in France!  Don't forget to post pictures again!  I wait all year for those photos!
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"Empathy is the soul of democracy."  Jeremy Rifkin
willowtreewren
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« Reply #44 on: September 14, 2013, 06:21:37 PM »

Beautiful, beautiful woodworking!

The gardening sounds lovely, MM! As does your trip to France, Monrien.  :2thumbsup;

I'm feeling a bit bruised and sore from yesterday's surgery, but I've already been able to cut way back on the pain meds.  :clap;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
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« Reply #45 on: September 14, 2013, 09:39:08 PM »

I'm feeling a bit bruised and sore from yesterday's surgery, but I've already been able to cut way back on the pain meds.  :clap;

Did they remove it laparoscopically?  That's what it sounds like.  Believe me, you'll feel SOOOO much better! :2thumbsup;
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"Empathy is the soul of democracy."  Jeremy Rifkin
Riki
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« Reply #46 on: September 14, 2013, 10:26:28 PM »

My big plans for the weekend.....recuperating from gallbladder surgery yesterday.  :2thumbsup;

Doing a bit of laundry and attending a lecture. It's back to work as usual on Monday!

it seems like a lot of us have had that done lately...
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Jean
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« Reply #47 on: September 16, 2013, 01:12:47 AM »

This weekend was our annual yard sale here at the Meadows. I only stayed out about an hour. It was 100 degrees here and that is a little too toasty for me. But, I got some good bargains and I was happy with that. Then today just a little more laundry and ironing and our wonderful Bible Study, then out for dinner. Just had a salad and one chicken breast. I think today I finally made my 8 oz of protein.
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One day at a time, thats all I can do.
Krisna
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« Reply #48 on: September 19, 2013, 09:47:08 PM »

Well this coming weekend we may go to the Washington State Fair, former named The Puyallup Fair.  It's the last weekend of it!  I told John it depends on how I feel!  John needs to fix his car too!  He's been taking mine to work for the past 2 wks and I'm tired of being stuck at home during the day!   :banghead;

Last Saturday night we went to The Point Casino in Kingston, WA to an MMA fight.  My second cousin, Frankie Orr is a pro fighter and was fighting in the main event.   Frankie Orr wins his fight at 3:36 in the first round via TKO.  It was very exciting!   :yahoo; :yahoo;   I only got into MMA because of him! 
Logged

Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
Jean
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« Reply #49 on: September 20, 2013, 01:20:19 AM »

Nothing, absolutely nothing!!!!!
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One day at a time, thats all I can do.
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