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Author Topic: Husband 45 with no dialysis for 6 days-says he's quitting  (Read 98840 times)
brenda seal
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« Reply #400 on: January 22, 2013, 07:31:16 PM »
Hi Lisa , Happy to hear you are doing OK and Good Luck with the new job .
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christijo
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« Reply #401 on: January 27, 2013, 01:26:06 PM »
HOw is JOhn doing? Please let us know. I am in similar situation with my husband.
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MaryD
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« Reply #402 on: January 27, 2013, 01:30:30 PM »
christijo

John died quite a few weeks ago.
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« Reply #403 on: January 27, 2013, 08:24:46 PM »
Johnswife

I just finished reading through this thread from first to last (and went through several tissues in the process  ;) ).  My heart goes out to you and your family.  This may Asbe an insensitive thing to ask, I'm not sure, but have you thought of putting down your experiences with John in his last few months on paper?  I think it would be a great story, and would be inspirational to those who are in your shoes, and must cope with the decision that a loved one has made to stop treatment.  As a writer (though all I've written lately is half a poem and a synopsis for a short story that will most likely never see the light of day), I see stories, and this looks like one that would do good for a lot of people.  This story is yours to tell, if you choose to.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
mikey07840
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« Reply #404 on: January 27, 2013, 10:49:54 PM »
Thinking of you
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
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« Reply #405 on: January 28, 2013, 03:45:52 AM »
 :waving; Hi Lisa,
Glad you're working and the family is doing ok.
Best wishes always!
 :flower;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #406 on: March 02, 2013, 08:17:56 AM »
I havent been on this in sooo long. How is John?
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kitkatz
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« Reply #407 on: March 02, 2013, 08:48:54 PM »
John passed away a few months ago.   


Go back and read the thread.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
CW
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Yeah .............That's me!
« Reply #408 on: March 27, 2013, 11:04:27 AM »
Quote from: johnswife on January 16, 2013, 11:09:09 PM
:grouphug;

Hello to everyone.  Sorry for the long delay. I just wanted to give you guys an update. First I got a great job now, kids are doing pretty good with the exception of Katy who is still struggling but I'm working in getting her help. I am doing much better and while I think of him everyday I now smile when I think of him and have so many good memories. I know he's not hurting anymore and in a much better place. I know he's smiling down and watching over me and our kids.  I hope you are all well and I love you all and wish you all peace, happiness and health in this new year. I'm going to be going for my GED soon so wish me luck. I will check in time to time and think of you all often.

God Bless you all
Lisa -still Johnswife in my heart

Johnswife I hope you are still reading the posts here .... I want to express my sincerest condolences to you, your daughters and your entire family. I want to tell you that you are incredible! You stuck by John till he left this world for the next and that took guts, strength, bravery and love. We know John's strength and perseverance is legendary but you have proven yourself an incredible person also. I will pray for John, you and your family and i want you to know I feel your pain and shed tears for you all right now. Stay strong, be well and take care  :grouphug;
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20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
johnswife
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« Reply #409 on: July 21, 2013, 02:02:58 PM »
 :flower;

Hello to all of you!!  I just wanted to give you all the updates in my life in the past 5-6 months. First off I love all of you and I appreciate that you were all there for me in my time of need. I am happy to say I am remarried to a wonderful amazing man of God who I adore and has made my life so wonderful. My children love him as well. I just had another grandchild born last week. A little boy names Jordan glen turner. I know John is in a better place and so happy and healthy at last. I am thankful God gave me the most wonderful loving man that I could ever imagine. So life is very good these days and I praise God for all of his goodness!!  I love you all and hope you are all well.

Thank you again
Lisa ---now Marty's loving wife but will always be johns wife as I was there till the end.
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My two beautifull granddaughters

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« Reply #410 on: July 21, 2013, 02:05:54 PM »
Oh, Lisa,

This was a wonderful post to read. I am filled with gladness that you have found love and life again. And John would have wanted you to continue living this full and happy life. In a way, you honor him by bringing love into your life again. And there is nothing better than grandbabies!  :2thumbsup;

 :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #411 on: July 21, 2013, 02:15:10 PM »
Congrats!  This is wonderful news!
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« Reply #412 on: July 21, 2013, 03:58:51 PM »
Wonderful news indeed!     :grouphug;
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« Reply #413 on: July 21, 2013, 04:05:03 PM »
 :flower; Best wishes to you and your family - you deserve some joy!  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #414 on: July 21, 2013, 05:03:08 PM »
Ahhhhh, this has made my day.  Thanks so much for sharing this with us!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #415 on: July 21, 2013, 11:03:44 PM »
All happiness to you! :flower;
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Galvo
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« Reply #416 on: July 21, 2013, 11:07:25 PM »
 :cheer:  :flower; That's great to hear Lisa!  So happy to hear of your happiness. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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« Reply #417 on: July 27, 2013, 04:05:24 PM »
God bless you as you continue on your path in life.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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us and fam easter 2013
« Reply #418 on: July 27, 2013, 06:38:05 PM »
inspiring to hear :)  So happy for your happiness, and wish you all the best  :flower;   :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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« Reply #419 on: July 28, 2013, 02:09:34 AM »
So happy for you and wishing you peace, joy, happiness and tranquility. You deserve it.
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One day at a time, thats all I can do.
BattleScars
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« Reply #420 on: July 30, 2013, 10:38:27 AM »
I read through this entire thread for the first time today and all I have to say is I'm so sorry for your loss. I'm actually crying as I write this. You remind me so much of my wife, she never gives up on me and supports all my decisions and I know she would be there until the very end if I were going through what John went through. I was amazed he held on for so long and my heart broke when you posted he died but I was so happy his suffering is over. The nights always seem to be the worst for me with this disease and just last night my wife offered to rub my back when I was up with anxiety and couldn't sleep. My wife is so selfless she will wake up in the middle of the night to take care of me even when she has to get up at 6am to get ready for work. I'll admit sometimes I take all that for granted, not because I don't appreciate what she does, but because sometimes I just get too caught up and forget to tell her how much she means to me and all she does. I will be giving her a huge hug tonight, maybe even try to do something nice for her like make her dinner and clean the house. All the dialysis wives out there, you are God's angels sent from heaven.
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johnswife
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« Reply #421 on: August 22, 2013, 04:35:09 AM »
I just read your post about appreciating your wife. I think it would be awesome if you did something for her but as wives we are honored to care for our spouses in sickness and health! You husbands are a part of us and when you hurt we hurt. John went the way he wanted to go and it was very peacefull. I know he was not in any pain and just went in his sleep because I watched him drift away. I still wonder sometimes if I should have made him fight harder but John did what he wanted and as his wife I always stood by his decisions. I hope and pray you and your wife have many many more years to share on this earth and just know you are both blessed to have each other! God bless you both!!!
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BattleScars
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« Reply #422 on: August 22, 2013, 04:54:30 AM »
Thank you so much for your kind words. Your husband sounded like a really good man and I admire him for standing up for himself and hanging on so long. I wish you and your family the best. I know John will remain in your hearts forever.
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willowtreewren
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My two beautifull granddaughters

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« Reply #423 on: August 22, 2013, 04:55:57 AM »
 :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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My son Roddy McSleepy at 6 months! sry pic sidewz
« Reply #424 on: October 19, 2013, 06:32:29 AM »
Congratulations on your recent marriage!  Such good news to hear!  God bless you and your family :)
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
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