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Author Topic: Husband 45 with no dialysis for 6 days-says he's quitting  (Read 98848 times)
jeannea
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« Reply #350 on: December 06, 2012, 10:12:35 AM »

I'm so sorry for your loss. This must be so hard. Do not blame yourself for anything. You loved him and took care of him. His body gave out. I'm sure he felt your love.
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malaka
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« Reply #351 on: December 06, 2012, 11:20:14 AM »

Being on the other side of this (the patient side, that is) all I can tell you (which won't be much comfort now, but I hope you'll understand my message later) is that you did a very brave and kind thing for him by letting him go and not keeping him alive another hour or day.

You miss him, but he is no longer suffering.  Your life and that of your familiy members can now go on.  His time was over, and he knew it.

Whatever comfort it may bring you, please understand that you made the hard choice and did the right thing.

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MaryJoe
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« Reply #352 on: December 06, 2012, 11:21:01 AM »

Lisa, I'm so sorry that you and the girls are in such pain.  I know there is no way to really be prepared to lose someone you love.  Even when the brain knows what is coming the heart still hopes and prays for more time.  John was a strong man and you have both fought a long, hard battle since July.  Maybe he was just ready to rest.  I think the 'what ifs' are a natural part of grieving but you should remember that you did everything John asked of you and more.  John knew he was loved and cherished, and that he would be missed.  please know that we are here for you when you need us. 
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
smokinbeaver
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« Reply #353 on: December 06, 2012, 11:27:27 AM »

He didn't need another day, he went on just like he wanted to. He finally found the way to leave, and was ready to go to the next place. It had to be when he was ready. He hung on for so long. He was home, in his own house with you and the family there. What a blessing, a gift you all gave him! He will come and go in spirit with you, but you may not be aware that he is there, in and out. You and the family will go on, but you have got to know you did the best thing you could ever do for him letting him go slowly like this in his own time, in his own way. Its been months since you have told us all and we have been following your posts. Some are folks on dialysis, others are like me whose husbands just started dialysis last Spring. I want to be a stong lady like you when the time comes for my husband, because everyone on dialysis eventualy gets to the point when its time to quit and say enough and family members have to accept it. Your story through all this has been an inspiration and I have been praying for you and the family all along. Bless you sweet lady as you go through the pain of funeral, and all that comes after our loved ones die. You will go on and think of him and in time will feel blessed hes been in your life and you were there when he passed. Its the best gift you could have given him.  Sorry he has died and left such a void, but glad he has moved on to the next place we all go. Theres no way to know if he has "gone to Heaven", but its comforting to think he could be there with those he loved who has already gone, and waiting for you to come in your time. Death is not the end, just the beginning in another place.

Sharon
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Desert Dancer
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« Reply #354 on: December 06, 2012, 11:28:58 AM »

johnswife, I'm so sorry for your loss.  :cuddle;

Please don't blame yourself. John did exactly what John wanted to do, and allowing his suffering to come to an end was the most loving and unselfish thing you could have done. I so admire your strength and devotion, and I don't know if I could have done what you did for him yesterday.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Fatkidney
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« Reply #355 on: December 06, 2012, 11:43:17 AM »

May John rest in peace. 
You and your family will remain in my prayers. 
To me it sounds like there were some lovely moments in his last days.
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June 2004 diagnosed with PKD
April 2012 Listed for transplant
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billybags
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« Reply #356 on: December 06, 2012, 11:52:12 AM »

I am so sorry for your loss. Words can not say how I feel for you and your family, You have all been so very brave. I have admired your strength and love through the last few months. You and your family will be in my prayers. it is time to take care of your self now.
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big777bill
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« Reply #357 on: December 06, 2012, 02:19:16 PM »

 I'm so sorry to hear of your loss. Don't second guess your decisions. John did what he wanted to and you loved him enough to let him do it. God Bless You! The grieving process is different for each of us and you will go through yours. Jesus knows your pain and will get you through it. He never leaves us or forsakes us. You are a strong woman who has gone through an awful lot. You and your family are in many peoples prayers right now, including mine. :grouphug; :'(
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
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Make me the person my dog thinks I am

« Reply #358 on: December 06, 2012, 03:06:21 PM »

I echo smokinbeaver words.  We all have things we have to deal with not only dialysis (patient or care giver)  I commend you on supporting your hubby during his trials and pains.  As smokinbeaver said he will be with you and your family when you need support some love some caring, you will feel him there with you. Just stop and let his love come to you.   We here all send you our love and support. Please keep coming back and let us know how things are going with you.  Love Grumpy
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Make me the person my dog thinks I am
frankswife
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« Reply #359 on: December 06, 2012, 03:17:11 PM »

 :grouphug; :pray;
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Brightsky69
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« Reply #360 on: December 06, 2012, 05:10:33 PM »

Unable are the loved to die. For love is immortality.     ~Emily Dickinson 

 :'(
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Transplant June 11, 1991 (1st time) my mom's kidney
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boswife
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us and fam easter 2013

« Reply #361 on: December 06, 2012, 05:46:48 PM »

Idont have my own words at this time but would like to borrow some from  bill777bill if i may.  God will get you through this and i offer prayers.  I will tell you too that your thoughts and feelings and fears are all carried in my heart.  I wish you the healing you need and strength to get through this all.  You were a pillar through it all, and now you need some help for you.  Bless your heart, and God bless you for what you did for hub.   :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
The Lady
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« Reply #362 on: December 06, 2012, 07:25:07 PM »

I am so sorry the news was so sad.

You did everything you could to support your husband but take no blame for any of this. You did not want him to choose death...that was his decision and you honored it and him every step of the way. That is the epitome of a good spouse. If you had awoken him from his gentle slumber which eased him into death...what would that have accomplished? More suffering and more pain and he wouldn't even have thanked you for it as he wanted to pass on.

Much of him will live on in your children and grandchildren...cherish them and your memories and he will never be far from you.
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kitkatz
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« Reply #363 on: December 06, 2012, 08:07:30 PM »

 :grouphug; :grouphug; :grouphug;
All can give you besides my tears.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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« Reply #364 on: December 06, 2012, 08:32:17 PM »

 :'( He must have known how hard it would be to leave, because he lasted 4 months longer than anyone expected. That is amazing to me. You honored his wishes and I truly believe you'll have more days in heaven. Sending lots of love and hugs.  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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Jean
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« Reply #365 on: December 07, 2012, 12:33:59 AM »

Even tho we all knew his time was growing short, it is still a shock to know he is gone. I am sorry for your loss. I know how you feel, I was a widow too and you think you did things wrong. You did not, and have no regrets for being human either. I had some regrets because at times I felt he was a burden to me, and I am sure you did too. That is only natural and normal, you cant change it, dont worry about it. Down deep you know how much he appreciated you and you know he knew how much you loved him. God bless you and your family, you have a few tough days ahead of you.
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One day at a time, thats all I can do.
Darthvadar
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« Reply #366 on: December 07, 2012, 01:01:17 AM »

Thinking of you...

May John Rest In Peace...

May God bless and protect you and your family as you grieve!...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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« Reply #367 on: December 07, 2012, 02:28:34 AM »

I have been thinking of you both a lot lately and its sad to hear this news but he isn't suffering any more now.   :'(  :grouphug; :grouphug; You did everything that needed to be done, hope the funeral was okay.  Get some rest now, you need it. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
cariad
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« Reply #368 on: December 07, 2012, 02:50:32 AM »

So sorry.  :'( I wish peace for you and yours and I hope that the two new little souls that have just entered your lives ease the sorrow a bit.
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johnswife
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« Reply #369 on: December 07, 2012, 03:01:16 AM »

Thank you all for your kind words and support. It does help and I greatly appreciate it. Its the 7th at 5:53 am and I have to go for his funeral at 10:00. Me and the children and some other family went yesterday and dug his grave by hand. He would have wanted it that way. It was a good day at the cemetery. We all shared great stories of the strongest man I ever knew. Our 2 little girls just jumped right in and wanted to help the whole time. Our oldest daughter is having such a hard time having her new baby and her daddy dying on the same day. She didnt get to say her goodbyes and I am very worried about her for today. Ive been up pretty much since 5:30 when he passed on the 5th. I just cannot sleep or eat. If I close my eyes there are just so many images racing and such pain. I know I have to be strong for these kids and in my heart I know john will help me. But he was our rock and our anchor. How do you live without your best friend you have had for 25 years. I hope he knew how much I really loved him. He was one of the most honest and greatest men I have ever known and ever will know.

It was an honor to be his wife. John I love you soooo much and always will. No matter what I hope you knw that and I would give anything I had just to hear you say LIIIIISA--He would say it in such a way to aggrevate me and laugh. Well gotta get these girls up and head out. Its a 2 hour drive and no sleep for over 30 hours so gotta geta few things done.

thanks and god bless johnswife
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willowtreewren
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« Reply #370 on: December 07, 2012, 04:19:54 AM »

 :cuddle;

I can only echo the words of wisdom from others here. You will always miss him, but it is important for you realize that John made this important choice about how he wanted to live his last months. You supported and honored that choice. He left this life the way he wanted to and you were there with him right to the end. I can think of no better way for you to have shown your love for him.

 :grouphug;

He will live on in your sweet memories.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lola
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« Reply #371 on: December 07, 2012, 04:56:08 AM »

I am so sorry, please remember to take care of YOU!!!! We are here for you :grouphug;
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Rain
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« Reply #372 on: December 07, 2012, 07:38:23 AM »

So sorry for your loss.  I lost my mother in october.  Her body gave out after years of dialysis and complications with diabetes. 
It does get easier but there isn't a day that goes by that I don't think of her.  Last night I attended the christmas lights ceremony in town and they kept bringing up spending the holiday with your loved ones.  Every time they mentioned it, it pulled on my heart strings and i had to hold back tears. Don't be afraid to show emotion at the funeral, you have family there to care for you.
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
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« Reply #373 on: December 07, 2012, 09:03:32 AM »

Johnwife,

My condolences!  May God see you and your family through this difficult time. 

Please do not be hard on yourself.  You were just honoring his wishes.  I personally was praying that he would change his mind.  I’m so sorry it did not go that way as I feel so sad and have got emotionally involved.  :'(  As there were some days I’ve got so mad at John (although I didn’t exist to him) and wanted to get your address and go talk to him and kind of make him go back on D.  However, I do understand because D can be hard on a person, physically, mentally and emotionally. 

Nevertheless, at least he is not in anymore pain and he is no longer suffering.  I’m glad he prayed with the priest and hope that he repented so he will be saved.  Only God knows.  Anyhoo, Johnwife, take it one day at a time as you move forward in life.  John will be truly missed talking about.     
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
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« Reply #374 on: December 07, 2012, 01:29:22 PM »

I wish I had the words to ease your pain. All I can say is take comfort in knowing you respected his wishes and I know what courage that took and what sacrifices you made . I pray the funeral was a beautiful service so you can remember that  and not focus on the horrors of the last few months . Remember his spirit and sense of humour and all the other qualities that you loved in him and encourage your children to do the same . Of course you will miss him but now he is not suffering . I am so sorry for your great loss .
Brenda
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