Husband 45 with no dialysis for 6 days-says he's quitting

[lmunchkin]

All this is very very sad, but so glad that Hospice is there.  They will help tremendously.  Keeping you in my prayers, JW, always.

lmunchkin

[okarol]

 

[olivia]

So so sorry for all of your suffering and pain......
I will keep all of you in my prayers.

Olivia

[natnnnat]

  Big love to you Johnswife and your beautiful daughter and strong as an ox husband.  It's such a sad time, and hard to have nothing but hugs to offer.   

[lola]

 

[Lillupie]

Johnswife,
 Im thinking about you everyday. Im really sorry about your husband still suffering. Im surprised that he is alive with those numbers and the potassium. Look how far he has gone if you say his numbers are this bad. This has been going on since July.

Please keep us posted.
And we will keep you in our thoughts and prayers.

Lisa

[willowtreewren]

Sending loving thoughts your way....

 

[lmunchkin]

 
lmunchkin

[Joe]

Johnswife, keeping you in our thoughts and prayers for all that is needed at this time.

[RichardMEL]

heavens - those numbers are(were) pretty scary in a number of areas - but I agree with all those weeks and weeks and weeks without D things like the potassium are actually probably pretty good.

John is a fighter - with all the pain and struggle he has.

my best wishes go out to you both

[johnswife]

Hello everyone. First he is still with us. It's now been well over 3 months. Sleep is almost non-exhistant at this point. The only real pains are the extreme itching(constant!!), he lays down and within 30 minutes fluid makes it where he can't breathe so then he sits up and his legs and feet feel like they are going to bust open. He has horrible headaches from the high blood pressure as well. I just don't know what keeps him going or how!! If I'm ever not on here for a few days please don't think the worse. If and when John does go I will for sure make a point to update you all as I feel you have went through this long journey with us.

Hugs and best wishes to you all!!!

[brenda seal]

God be with you both xxx

[Rerun]

Can Hospice come in and administer comfort drugs? 

         

[boswife]

God bless you all and bring peace. 

[ceb3370]

you know I've tried to take absence on my treatment schedule,,, i last 2 weeks without dialysis, but the result was worse,

From that time we are really low at money, being guilty for myself, I decide not to take dialysis, and it did last for 2 weeks, after that at night

i was admitted to the hospital by ambulance. I stay at the hospital for 2 weeks, and we have this huge bill.

that was stupid of me. i almost died on that moment as the doctor said. i can't move my body, i can recognize around me,

and they told me i keep saying my mothers name, can't really remember what happen at that time when i arrive at the ER.

so convince your patient to take his treatment so he/she wont suffer just what i suffer before.

[okarol]

ceb3370 - Her husband John made the decision to quit dialysis completely, and expected to pass away by now. He has not and it's been a tough 3 months for him and his family.

I wish he would do a couple of dialysis treatments, not for survival by removing toxins, but for fluid removal to give him comfort.

Take care johnswife. 

[chiromac]

You have an amazingly strong husband & you have the same strength in you.  A hope for a speed out come   

[AnnieB]

Every time I come on here, I check to see how you and John are doing. I am amazed at how strong he is, you both are. God bless you both. You're never far from my thoughts and good wishes. 

Anne

[raidym]

I always check this post when I log in and am amazed and thrilled to read that John is still with us. My thoughts and prayers are with you and your family as always.What a strong brave man he  is. Love all the way from Ireland.xxx

[Jean]

You are all such amazing people. God Bless you both and keep you at least comfortable.

[jcoluccio]

 

My thoughts and prayers are with you and your family.

[johnswife]

Hello everyone. Sorry for taking so long. First off Hospice is great!! They are keeping him conforatable and not in much pain. He is finally getting some sleep at night which is great and they have him on something for the itching. They are also helping us get some other things in order and even helping with getting my daughter someone to talk with. They have gotten him a hospital bed, oxygen, walker, and a side table. I just cant say enough about how good they have been to us. Now as for john both hospice nurses said when they go this chart to come out they could not beleive that he could still stand, walk, or was even alert for that matter. The one lady said she has been a nurse for over 20 years and while she has seen worse labs -- never with a patient that was still up moving around and alert. They dont think he will make it until christmas though but as you all know its been since july and he is still here so I think he will go when he is ready or gives up.

I also would like to say thank you thank you thank you to those of you who sent cards!!! I greatly appreciate it and love you all. 

I will keep you updated on his progress. He is sleeping comforatable at the moment so that is a blessing.

[MaryD]

I am so glad you are getting some support.  I think of you every day.

 

[willowtreewren]

I, too, am glad that Hospice is now helping. John is amazing. Hugs to all of your family.

 

Aleta

[amanda100wilson]

glad to hear this news in spite of the circumstances.