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Author Topic: Husband 45 with no dialysis for 6 days-says he's quitting  (Read 98822 times)
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12

« Reply #375 on: December 07, 2012, 02:26:09 PM »

Sending my love and support to you and your family.  Wish I had the perfect words.
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AnnieB
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« Reply #376 on: December 07, 2012, 03:14:30 PM »

Johnswife, I am so so sorry to hear the news. I know you are second-guessing how you handled his passing, but I want to tell you that I think you handled it perfectly. He was suffering so much, that just being there for him and holding him and loving him as he passed was a tremendous gift from you to him. You did exactly the right thing by letting him go, even if it was so painful to you. I've worked in Hospice, and letting someone go, giving them permission to go, is one of the hardest things many people ever have to do. It doesn't mean you failed him, or didn't love him....in fact, it means you loved him enough to let him go on his own terms, in the way he'd chosen. A tremendous thing. You have a tremendous heart. May God be with your family through all of this. I will be keeping you in my prayers. :grouphug;

Anne
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Marsh
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« Reply #377 on: December 07, 2012, 05:57:19 PM »

 :grouphug; :pray;
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AguynamedKim
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« Reply #378 on: December 07, 2012, 10:35:54 PM »

I'm so sorry for your loss, Lisa.  May John rest is peace and may you find solace in know that you were his rock in the most dire situation imaginable.  Honoring his wishes the way you did required tremendous strength and courage.  I believe letting John slip away peacefully was absolutely the right thing to do.  John will always be there in your heart and nothing can take that away from you.
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Relentless
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« Reply #379 on: December 08, 2012, 12:12:14 PM »

Brings tear. Ur journey was amazing and inspirational.
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chiromac
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Dr. Larry (Chiropractor)

« Reply #380 on: December 08, 2012, 04:48:39 PM »

I'm still amazed by your family's strength, it is easy to see how much you loved him.  I got divorced before I went on dialysis and only have my daughter, it is nice to see a marriage as strong as yours, trust me your husband knew he had an amazing family.  RIP  :angel;

Larry
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Dr. Larry (Chiropractor)

My life has been drastically changed and I want to get back to the living my life.

I ♥ have ♥ the ♥ most ♥ beautiful ♥ DAUGHTER ♥ in the ♥ world☆•*¨*•.¸¸❤❤¸.•*¨

Back Surgery
Diabetes
Had reaction to Byetta and my Kidneys shut down
Diabetic retinopathy (Countless shots to both eyes & Laser Treatments)
Cataract Surgery on both eyes
Diagnosed with ESRD
Multiple Heart Bipass Surgery
AV Fistula
Dialysis - In center 3 days a week 4:15 at a time
Neuropathy
On Transplant List and Hoping
Clara
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« Reply #381 on: December 08, 2012, 10:37:17 PM »

My prayers are with you and your family during this time. 

John 14:27-29

Peace I leave with you; my peace I give to you. Not as the world gives do I give to you. Let not your hearts be troubled, neither let them be afraid. You heard me say to you, ‘I am going away, and I will come to you.’ If you loved me, you would have rejoiced, because I am going to the Father, for the Father is greater than I. And now I have told you before it takes place, so that when it does take place you may believe.

Christi
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lmunchkin
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"There Is No Place Like Home!"

« Reply #382 on: December 10, 2012, 06:20:21 PM »

Johnswife, I am so so sorry to hear the news. I know you are second-guessing how you handled his passing, but I want to tell you that I think you handled it perfectly. He was suffering so much, that just being there for him and holding him and loving him as he passed was a tremendous gift from you to him. You did exactly the right thing by letting him go, even if it was so painful to you. I've worked in Hospice, and letting someone go, giving them permission to go, is one of the hardest things many people ever have to do. It doesn't mean you failed him, or didn't love him....in fact, it means you loved him enough to let him go on his own terms, in the way he'd chosen. A tremendous thing. You have a tremendous heart. May God be with your family through all of this. I will be keeping you in my prayers. :grouphug;

Anne

So sorry Johnswife for your loss!  He wouldnt want you to second guess. You were His Angel & a rock for him.  You handled it perfectly.  Know that he was one very Brave man, cause it wouldnt be easy to leave so many behind, but he did it fearlessly.  May he rest in the arms of Jesus Forever!

The post above said it best!

God Bless and please continue to let us know how you are doing.  Some of us here, will have to face what you faced one day!
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
YellowRose
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« Reply #383 on: December 10, 2012, 09:48:58 PM »

Sorry to hearing the news. I know there is no words we can say to make it better. Will continue to keep you and your family in my prayer. Pray God comfort you, give you peace, hold you in His hands and His Love.
- Rose
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Dec 1993 start with CAPD
May 1995 1st transplant
Jan 2007 start with CCPD
April 2011 start with Hemo
Sept 2012 2nd transplant
RichardMEL
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« Reply #384 on: December 17, 2012, 10:04:27 PM »

Such a difficult time for you - as you say you should expect it, you knew it was coming, but each day he held on and seemingly defied the odds probably made it al a bit unreal, despite the obvious signs, specially the longer it went on.

It was his choice and not your fault. Now he's pain and struggle free and I guess that is one way to look a it.

I hope you can find positives.

best wishes,
richard
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
johnswife
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« Reply #385 on: December 25, 2012, 06:45:22 AM »

Hello to all--Its my first Christmas without my dear John in 24 years so its a hard day but I have all 6 of our children here with me as well as my new grandaughter!! The other grandaughter of course is still in the hospital. I just miss him terribly and would give almost anything to hear his voice just one more time, get one more kiss. Tell him how much I love him and what he means to me and this family. We love him soooo much.
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jeannea
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« Reply #386 on: December 25, 2012, 10:06:14 AM »

It's great your children are there. And a grandchild warms your heart even when you're sad. I'm sure it's hard. It sounds like you're putting one foot in front of the other. Best Christmas wishes to you and your family.
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WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12

« Reply #387 on: December 26, 2012, 05:51:50 PM »

Thinking of you.  I'm glad your family is gathered around.  Be kind to yourself.  Give yourself as much love and patience as you showed to John.  All types of healing take time...
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boswife
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us and fam easter 2013

« Reply #388 on: December 26, 2012, 08:40:27 PM »

It hurts just hearing it :(  Im so glad your family is there to share and comfort.  Good advice already given, i will just share my love and prayers..   :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
jbeany
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Cattitude

« Reply #389 on: December 27, 2012, 08:12:30 AM »

 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

cassandra
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When all else fails run in circles, shout loudly

« Reply #390 on: December 31, 2012, 02:23:49 PM »



            :grouphug;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Riverwhispering
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« Reply #391 on: January 04, 2013, 06:21:13 AM »

Johnswife I haven't been to the IHD site in a long time.  I just read your whole thread here and my heart goes out to you and your family.  Thank you for sharing this end of life story with us.  You are a wonderfully strong woman and  in a strange way it's wonderful you had grandkidlets the day he passed.  RIP John
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It's only one step from the Jungle to the Zoo
kennedy56
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« Reply #392 on: January 04, 2013, 09:25:50 PM »

There is hope. My husband had similar bouts of the same thing.  He is also blind in his left eye due to intercranial pressure.  He has had I know he feels overwhelm but just encouraging him.  He is in alot of pain but life is worth living and there are good things to come.
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MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz

« Reply #393 on: January 08, 2013, 07:56:25 AM »

I haven't been on the site in so long!  I'm so sorry for your loss.  Please don't think you should have woken him up.  I really don't think it would have helped.  That breathing is one of the last signs of dying.  My dad breathed like that for hours the night he died.  He went peacefully in his sleep--is there a better way to go?  Poor John is at rest, and he was alive for the birth of his new grandbabies.  I'm so sorry for your loss, and the toll it took on your family.  I am glad John's no longer suffering, and hope you all can move on to find new joy in your family, and honor John's memory and strength. 

God bless you!  You will still be in our thoughts, I'm sure.  It is hard to lose your lifemate, but you are obviously very tough yourself, and very capable of leading your family.  As my grandma said, some days you feel fine, and others are awful, but over time the grief gets easier to bear.  If it doesn't, please see a psychiatrist!  Sometimes our brains get stuck in a bit of a rut,and needs push out.

Take care!  So sorry, again.

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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12

« Reply #394 on: January 13, 2013, 03:54:55 PM »

You are on y mind and I wanted you to know.  Sending hugs to you.
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M3Riddler
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WWW
« Reply #395 on: January 15, 2013, 12:13:28 AM »

So sorry to hear about this...
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____________________________________
Peritoneal - 13 years
NxStage Since 4/06
3 Transplants
Admin of Dialysis Discussion Uncensored on Facebook  
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johnswife
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« Reply #396 on: January 16, 2013, 11:09:09 PM »

 :grouphug;

Hello to everyone.  Sorry for the long delay. I just wanted to give you guys an update. First I got a great job now, kids are doing pretty good with the exception of Katy who is still struggling but I'm working in getting her help. I am doing much better and while I think of him everyday I now smile when I think of him and have so many good memories. I know he's not hurting anymore and in a much better place. I know he's smiling down and watching over me and our kids.  I hope you are all well and I love you all and wish you all peace, happiness and health in this new year. I'm going to be going for my GED soon so wish me luck. I will check in time to time and think of you all often.

God Bless you all
Lisa -still Johnswife in my heart
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willowtreewren
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My two beautifull granddaughters

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« Reply #397 on: January 17, 2013, 04:34:23 AM »

Thank you for the update.  :cuddle;

Hold onto those happy memories. They do keep John alive in your heart. I'm so glad that you have found a job you like and are healing. It takes time.

 :grouphug; :grouphug;

Aleta
 :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
boswife
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us and fam easter 2013

« Reply #398 on: January 17, 2013, 08:21:23 AM »

Yes, thank you for the update.  Good to hear that things are moving in the right direction and Katy will come around in time.  Bless you and hang on to the smiles.  Time will continue to heal  :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
lmunchkin
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"There Is No Place Like Home!"

« Reply #399 on: January 22, 2013, 06:31:38 PM »

Awe.... thanks for updating Lisa (JW).  You will always have those memories.  They are what will help with the loss. John wants you to go on now.  Be with the one's you love and enjoy their company.  He knows you sacrificed alot, now it is your time to shine!!!!

The new job sounds like a brand new adventure.  Go with it and embrace it.  You have alot to give still.

Love & think of you often.  Hold those kids close & thight!

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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