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Author Topic: Did you accomplish anything today?  (Read 329026 times)
CebuShan
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« Reply #825 on: December 30, 2011, 03:01:22 AM »

Went to D and they used my new fistula. It worked like a charm! The swelling has finally started to go down and if all things go well, I should get my catheter out next week. Yay!   :cheer:
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« Reply #826 on: December 30, 2011, 09:04:24 AM »

I put Christmas to bed for another year.  Cards down, decorations packed away and tree taped up into its box.  Now the house just looks empty.  Unfortunately I still have oodles of food left.  Humpf.  Fatty tum-tum.
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- wife of kidney recepient (10/2011) -
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Everything was beautiful, and nothing hurt.
Katonsdad
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« Reply #827 on: December 30, 2011, 10:00:42 AM »

Finally got my pictures printed for the school yearbook. Have put it off 2 weeks now.
Now need to take to school on monday
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
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jbeany
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« Reply #828 on: December 30, 2011, 04:41:51 PM »

Got up early without an alarm, paid bills, got a haircut, went to laundry mat to wash the over-sized comforter that won't fit in my machine, grocery shopped, picked up prescriptions, went to the post office to mail a book for my swap site, cleaned the kitchen, reorganized my bookshelf to prepare for next semester, and took out the trash.  Enough!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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« Reply #829 on: December 30, 2011, 06:06:21 PM »

I put Christmas to bed for another year.  Cards down, decorations packed away and tree taped up into its box.  Now the house just looks empty.  Unfortunately I still have oodles of food left.  Humpf.  Fatty tum-tum.

You took it down before New Years???  Wow.  Ours will be up till sometime next week

I didn't do much today, except go to dialysis.  The apartment we thought we'd be moving into fell through, but they appear to have found us another place.  We can't move in there till March, though.  I've decided not to get my hopes up on this one either, just in case it falls through as well.  We drove by on the way to dialysis to take a look. It doesn't look like a bad place.  It's on a quiet street, which is different than the apartment we were going to get.  It's still walking distance to everything, so that's a plus.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
KarenInWA
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« Reply #830 on: December 30, 2011, 07:17:33 PM »

I'm thinking I need to start going to a gym to build up my non-existent stamina. Today I woke up, took a shower, watched TV, then my big thing was I drove to the post office to mail a check!!! Whoo hoo!!! Then I drove back home, took a nap, gathered up a load of laundry (so hey, I am doing a chore) and am back to watching tv. I am over 5 weeks post-transplant.

Yesterday, I woke up early to drive to the hospital for my clinic visit. I had my stent removed first, then had the clinic visit. They gave me a shot of Aranesp, so hopefully, that will help. I then drove to a different hospital to meet up with my parents. I accidently brought home Dad's Christmas gift! So returned that to them, then headed towards home. I stopped off and had lunch, then went to visit my neph. He was happy to see me! (I'm not under his care until the transplant people release me). Then I killed time at a bookstore and went home.

I know, not too exciting, huh?

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
jbeany
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« Reply #831 on: December 30, 2011, 07:38:23 PM »


I know, not too exciting, huh?

KarenInWA

Little steps still get you where you are going!  I had to have Aranesp for a while after my transplant, too.  Then, *poof*, it hit 14 and hasn't budged since.  I love it!  Hope your kidney gets there too.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

cariad
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« Reply #832 on: December 30, 2011, 08:25:01 PM »

We got the ornaments off the tree, just have to take the lights off and haul it out to the curb. I am going to miss Fred (L named the tree this year.)

Gwyn made breakfast this morning - eggs, cheese, salsa, toast and bacon for them, veggie sausage (that I did not like) for me. We cleaned for a bit, then dropped the boys off at a friends and went to the tea room for a late lunch. Sat for over an hour eating and getting re-infusion after re-infusion, as normal. (Had Iron Goddess of Mercy this time). Gwyn dropped me off, hoovered our beyond-icky kitchen floor, then I got the steam cleaner out while he collected the boys. Our floor looks one million times better, and no revolting crunchy sound when we walk through the kitchen anymore. :yahoo;

Laundry, Aidan made dinner with just a touch of supervision (:yahoo; x2) and we did a lot more of the puzzle of the crowned cranes that Santy gave us. I call Liot 'the puzzle genius' because since he was about 18 months old, he has been a prodigy at them, to the point that his teachers at the childrens centre who see dozens of kids a year for decades once told me they had never seen a child that young able to put a puzzle back together with quite the speed and intuitive sense of shape that he possesses. So, anyway Aidan and I were staring at this 500 piece puzzle, getting nowhere, Liot walks over, picks up a piece, places it immediately, Aidan and I both smack our foreheads, and Liot does it again. Finally all four of us were there, 3 of us shaking our heads in despair every few seconds as we hear Liot exclaiming 'I got a match' over and over and over. Aidan finally turned to Liot and muttered sarcastivally "Puzzle freak!" and Liot has claimed the term with pride. We watched Bug's Life on the video while the boys ate their mac n' cheese and ground beef and peas. Gwyn and I could not eat after the tea room. I finally decided to empty the laundry basket that has had a few items in it for what must have been weeks. Kids drawers are overflowing - time for an end of year charity drop tomorrow to unload all of the clothes that Liot has outgrown. (*blubber* My baby's already five!)
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okarol
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« Reply #833 on: December 31, 2011, 11:04:40 AM »

After being in bed with the flu I am feeling like I might venture toward eating something today.
My sister was here for a week from Wisconsin. I hate that I slept though our last day together, but she understood.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #834 on: December 31, 2011, 02:46:16 PM »

You took it down before New Years???  Wow.  Ours will be up till sometime next week
Yep.  I don't normally, but we're out all day Sunday and both Blokey and I are returning to work post-transplant on Tuesday (and for me it's a brand new job in a brand new place) so I didn't want to be faffing around doing it on Monday ...

Today I walked for a long time, realised I'd forgotten the post (the reason for my long walk) and thus went for another long walk to get it posted before final collection.  Then I slept all afternoon because I have a stinking cold. 

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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« Reply #835 on: December 31, 2011, 02:58:21 PM »

I didn't do a darned thing, and I'm proud of it.. *LOL*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
jbeany
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« Reply #836 on: December 31, 2011, 03:04:48 PM »

I didn't do a darned thing, and I'm proud of it.. *LOL*

Me too!  It's dinner time, and I'm still not even dressed!  I'm not going anywhere except from the computer to the armchair to read another book.  My rockin' New Year's Eve plans include going to bed before the ball drops.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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« Reply #837 on: December 31, 2011, 03:19:11 PM »

I usually watch CNN on NYE.. I like watching Anderson Cooper.. *G*  I stay up till the ball drops usually.  They show people running in Central Park.  There's a NYE run that starts at midnight, I think, and they show the dropping of the transvestite somewhere in Florida, I think. They put her in a giant shoe and they lower it from the top of a hotel.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
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ToddB0130
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« Reply #838 on: December 31, 2011, 05:04:36 PM »

Breakfast with a friend, a three mile walk and a power nap.  Late dinner tonight in town with a friend.  Quiet night at a nice restaurant.  Can't believe this week (and the year) is over.  I was off from work and it went SO FAST.
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« Reply #839 on: December 31, 2011, 05:09:41 PM »

I put the Christmas things away, did the grocery shopping and a couple of loads of laundry. It seems that whenever we go on a trip, there is so much to do when we get home.

We are spending a quiet New Year's Eve. I have been ruminating today about what life was like a year ago.

Things change.  :2thumbsup;

Aleta
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Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
galvo
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« Reply #840 on: December 31, 2011, 07:45:59 PM »

Strike me gently, Riki! Dropping a tranny in a giant shoe for a hotel roof!! What a ripper!!! I can't match that. I've started my 9,874th health kick. Happy 2012 to you.
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« Reply #841 on: December 31, 2011, 10:48:54 PM »

Strike me gently, Riki! Dropping a tranny in a giant shoe for a hotel roof!! What a ripper!!! I can't match that. I've started my 9,874th health kick. Happy 2012 to you.

Yep, it was done.. Watched it on CNN... it was Key West, and the transvestite's name is Sushi.  They dropped a music note in Nashville too.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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« Reply #842 on: January 01, 2012, 11:02:12 AM »

I'm surprised we actually stayed up until midnight (will have to curb this trend before we go back to school on Wednesday!  :rofl;)

It has been a lazy day. I took a nice long pampering shower, had bacon and eggs for breakfast (a real treat!) and put a pot of bean soup on the stove to cook all day. My the house smells nice. I did my shoulder therapy exercises and s bit of cleaning. But mostly just enjoying the sense of having nothing pressing that HAS to be done.

Happy New Year!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
ToddB0130
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« Reply #843 on: January 01, 2012, 11:51:09 AM »

Oy .......... I was out SOOOOOOOOOO LATE .....but it was a nice night.  So, thus far ..........NO,  I've accomplished nothing (except reading this board !).   It's now approaching 3PM,  so it's time to do some laundry, go take my walk (minimum 1 and 1/2 miles), do a little grocery shopping ..........and then MOURN that I have only one day left until I have to go back to work Tuesday !!  Actually,  it's been nice and relaxing being off .... but going back to work is actually a really good thing in itself to be accomplishing !!
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Cordelia
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« Reply #844 on: January 01, 2012, 04:41:14 PM »

LOTS!  Took Christmas down in my house, organized my two freezers and did a load of laundry. Not your everyday typical kind of stuff, but I feel as though I accomplished lots bigtime!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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« Reply #845 on: January 01, 2012, 04:49:58 PM »

Yay for me.  Got everything done I wanted to today and it's not yet 8PM ........ now I may tackle cleaning up my place a little bit and then settle in for a relaxing bath.  I need to write a letter to a friend and get that into the mail as well, so perhaps I'll try to tackle that tonight too.
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« Reply #846 on: January 01, 2012, 04:59:16 PM »

I got a 3+ mile walk in this afternoon while the sun was still shining. Todd, you inspired me! Tomorrow it is going to be cold again.  :thumbdown;

Cordelia, I can hardly imagine organizing 2 freezers! Good for you!

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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Cordelia
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« Reply #847 on: January 01, 2012, 05:41:44 PM »

I got a 3+ mile walk in this afternoon while the sun was still shining. Todd, you inspired me! Tomorrow it is going to be cold again.  :thumbdown;

Cordelia, I can hardly imagine organizing 2 freezers! Good for you!

Thanks, WT, oh, it was such a good feeling to get things done      :rofl;

It's great to hear everybody's accomplishments!! They can really be inspiring and give ideas too!

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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
cariad
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What's past is prologue

« Reply #848 on: January 02, 2012, 05:21:27 PM »

Not much today. Slept a bit late, we had breakfast (crepes) and I did some very light cleaning while Gwyn finished his packing. Drove Gwyn to the airport, took the kids to the co-op for a few essentials, had leftover pizza for dinner and finished the last of the second apple pie for dessert. Read a bit with the boys, going to give the little guy a shower and prep them for school tomorrow. Everyone will be surprised to see us as we did say we were going to all return to California together. We will follow G to California in a few days, so I have to pack up everything he forgot (first have to determine what those things are). The boys have decided that they would rather have an extra three days with their dad instead of returning home for the school-closing day where they would get to spend all day at the childrens center. This is the highest compliment that they can pay him. :laugh:
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
CebuShan
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« Reply #849 on: January 02, 2012, 08:28:01 PM »

Jim had the day off today so we tackled the Christmas decorations, turned the mattress, and did some general cleaning before settling in to watch "The Lake House" It was nice having my husband all to myself today.   :2thumbsup;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
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