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Author Topic: Did you accomplish anything today?  (Read 328972 times)
Charlie B53
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« Reply #1750 on: January 06, 2015, 01:56:22 PM »

Well over a year ago the VA gave me a Health Buddy.  My BP cuff is plugged into it so two a day I take pressures sitting and standing.  Also enter morning weight and blood sugar reading.  My BP cuff died so I haven't been reporting.  I did send them an email telling them the cuff died and I needed a new one.

VA Nurse called this morning, asking why I haven't been reporting for the last NINE days.  Told her no new cuff yet.  She said to start reporting, just leave out the BP. 

OK.

Little later the guy called, he had order my cuff early last week, hoped I would have had it by now, if not here in another day or two, call him.

OK.

Looked outside the front door, UPS had left it there.  Who knows when.  We don't use the front door.

I plugged it in and took my pressures, pushed the buttons and reported.

Back to my regular routine.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #1751 on: January 07, 2015, 03:24:26 AM »

   :rofl;

I bet you'll get your second cuff tomorrow (when you use the front door that is)
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #1752 on: January 08, 2015, 12:38:31 PM »

Already have TWO other second cuffs.  One came in the mail, I picked one up while I was at the VA.  BOTH are wrong, no 'port' to plug the Health Buddy into it.   No way to manually enter readings into the Health Buddy, so I didn't bother to take readings.  Probably should have just to keep my PD Log.  I got lazy.

So I have two spare units.

One with a medium cuff.

One with a Large cuff.

Anyone need one?
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kristina
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« Reply #1753 on: January 10, 2015, 04:11:27 AM »
Hello Charlie, thanks for the offer but I don't need any cuffs and I am very sorry
that it has become so complicated.
I send you my best wishes and good luck from
Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kristina
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« Reply #1754 on: January 12, 2015, 09:10:24 AM »
I have been very keen to start with my regular walks again and went for a longer walk today with my husband.
I had a little giggle when we passed by the local butcher just round the corner, who advertises selling grouse, partridges
and pheasants... he certainly "has arrived"...
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Jean
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« Reply #1755 on: January 12, 2015, 01:08:12 PM »
Kristina, congrats!!!! Sugar, you sound like me. It is the beginning of the new year and all messes must be cleaned up. I did my pantry and my sock drawer, but I am afraid that's it for awhile. LOL!!!
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One day at a time, thats all I can do.
kristina
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« Reply #1756 on: January 12, 2015, 02:47:37 PM »
Hello Jean, you have made quite a good start to sort out your pantry and the sock-drawer.
Take great care and best wishes from
Kristina

P.S. I better get my "tin-hat" first thing tomorrow morning, because I practically live in the French-quarter of London
and they are "at it" with "Je suis Charlie" and there might be a predictable back-lash from the "others" coming along ...
... I just don't understand why they can't just get on with each other and get on with their life instead of all this ?
« Last Edit: January 12, 2015, 03:40:28 PM by kristina » Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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10 years on and off dialysis
« Reply #1757 on: January 13, 2015, 12:59:04 AM »
Quote from: Jean on January 12, 2015, 01:08:12 PM
Kristina, congrats!!!! Sugar, you sound like me. It is the beginning of the new year and all messes must be cleaned up. I did my pantry and my sock drawer, but I am afraid that's it for awhile. LOL!!!
i have done my cutlery drawer (bought a new inset) and its all straight.
Getting there, the dialysis patient way, one drawer at a time!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #1758 on: January 13, 2015, 02:57:35 AM »
Well done Sugarlump!
You do sound as if you have a little more energy these days?
Good luck wishes from Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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10 years on and off dialysis
« Reply #1759 on: January 13, 2015, 05:35:43 AM »
Today the plumbers and the electrician came round to alter plumbing and electrics for home dialysis machine in spare room.
Time to go :2 weeks and counting!!!! :bandance;  :bandance;  :bandance;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #1760 on: January 13, 2015, 09:48:37 AM »
Really exiting!!!
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis
« Reply #1761 on: January 14, 2015, 09:18:43 AM »
I can't wait!!!!
All we need now is delivery of machine, water softener, chair and a trolley (bet it's not the tea trolley variety with tea and buttered crumpets!!!!)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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Posts: 5530
« Reply #1762 on: January 14, 2015, 10:18:23 AM »
Quote from: Sugarlump on January 13, 2015, 05:35:43 AM
Today the plumbers and the electrician came round to alter plumbing and electrics for home dialysis machine in spare room.
Time to go :2 weeks and counting!!!! :bandance;  :bandance;  :bandance;
I am very happy for you, Sugarlump!
... And I do remember how very much you had hoped for a chance to do home-dialysis !
I keep my fingers crossed and send you my good luck wishes,
Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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10 years on and off dialysis
« Reply #1763 on: January 15, 2015, 01:23:40 AM »
Not having to go to hospital at least three times a week or be fussed about with by nurses....and all that stuff.
TBH I didn't mind the first few years, as I was still passing a fair amount of urine and a lot fitter. I could take it in my stride but after two failed transplants,
going back on dialysis a third time was hard. I was poorly, I had poor access that was a major problem and I seriously considered stopping.
To go home finally, and do dialysis in our time, in my own house with someone I trust ... is a relief.
I am very lucky to have a partner prepared to train and very able with machines and needling... I think it will make a big difference to how I view my dialysis.
I am in control of all that happens now, and that's a good feeling!  :bandance;

How's your dialysis sessions going Kristina? What's your centre like?
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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Posts: 5530
« Reply #1764 on: January 15, 2015, 06:42:03 AM »
.
« Last Edit: January 15, 2015, 06:45:29 AM by kristina » Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kristina
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« Reply #1765 on: January 15, 2015, 06:44:03 AM »
Well done Sugarlump, I am very happy for you that things have now sorted themselves out so well...
... and I do hope, that everything keeps just like that and that you won't have problems again... fingers crossed!
... To answer your question: I am pleasantly surprised about my d.......-centre...
... and I have no problems with the nurses, as I feel well looked after. All the nurses are careful and hygienic...
(they always disinfect their hands and they always take new gloves from the disinfectant package and wear them),
whenever they "touch" my catheter (which they disinfect as well) ... and because of all these precautions,
I feel quite save about things as they present themselves at the moment...
...Of course, I would be so much happier if I would not need any d......., but as things are right now,
I do need d....... as it is my new life-line and the nurses assist me
as much as they possibly can to make this whole new experience more "endurable"...
Thanks again and best wishes from Kristina.
« Last Edit: January 15, 2015, 06:59:47 AM by kristina » Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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10 years on and off dialysis
« Reply #1766 on: January 17, 2015, 01:13:48 AM »
Today I had a bath!!!
Might not sound like much of an accomplishment but I have a kranky left knee at the moment
that really hurts like hell when I bend it. So getting in and out or bath is a feat in itself (but worth it)  ::)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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Posts: 5530
« Reply #1767 on: January 17, 2015, 07:04:16 AM »
Quote from: Sugarlump on January 17, 2015, 01:13:48 AM
Today I had a bath!!!
Might not sound like much of an accomplishment but I have a kranky left knee at the moment
that really hurts like hell when I bend it. So getting in and out or bath is a feat in itself (but worth it)  ::)
Since starting with d......., I am regularly dreaming of having a nice bath again...
with beautiful classical music ... and nice refreshing herbal bath-salts...
Hopefully there might be a chance in the future... Whilst hoping for the future,
I try not to think about it too much at the present...
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #1768 on: January 17, 2015, 10:30:14 AM »
Quote from: kristina on January 17, 2015, 07:04:16 AM
Quote from: Sugarlump on January 17, 2015, 01:13:48 AM
Today I had a bath!!!
Might not sound like much of an accomplishment but I have a kranky left knee at the moment
that really hurts like hell when I bend it. So getting in and out or bath is a feat in itself (but worth it)  ::)
Since starting with d......., I am regularly dreaming of having a nice bath again...
with beautiful classical music ... and nice refreshing herbal bath-salts...
Hopefully there might be a chance in the future... Whilst hoping for the future,
I try not to think about it too much at the present...

Kristina have they spoke about a fistula? Is this an option
You generally get a much better dialysis and you can have a bath again!!! ::)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
JW77
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WWW
« Reply #1769 on: January 17, 2015, 11:34:11 AM »
First day back at class, for Chi Kung, and walked back through the park..  Hb has dropped to 10 so not feeling as bouncy as I should. Its freezing, with snow in the north, here in the UK:)
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Creator of London Kidney Social: https://www.facebook.com/groups/LondonKidneySocial/

Medical stuff, includes 3 kidneys, cancer, meningitis, 1 heart attack and its long and not that interesting! Maybe one day I'll write a book.! `

I have an eclectic taste in music, I fly kites, I read, write, tog, blog and have a bit of a passion for multicellular eukaryotes, and kites.

Founder of Kites4Kidneys - Start making your kites for WKD 2015..
https://www.facebook.com/kites4kidneys
Sugarlump
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10 years on and off dialysis
« Reply #1770 on: January 18, 2015, 05:54:11 AM »
No snow here but freezing too!
Low hb makes you feel the cold more (I was 10.3 last week) bbbrrrrrrrr
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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Posts: 5530
« Reply #1771 on: January 18, 2015, 06:32:27 AM »
Quote from: Sugarlump on January 17, 2015, 10:30:14 AM
Quote from: kristina on January 17, 2015, 07:04:16 AM
Quote from: Sugarlump on January 17, 2015, 01:13:48 AM
Today I had a bath!!!
Might not sound like much of an accomplishment but I have a kranky left knee at the moment
that really hurts like hell when I bend it. So getting in and out or bath is a feat in itself (but worth it)  ::)
Since starting with d......., I am regularly dreaming of having a nice bath again...
with beautiful classical music ... and nice refreshing herbal bath-salts...
Hopefully there might be a chance in the future... Whilst hoping for the future,
I try not to think about it too much at the present...

Kristina have they spoke about a fistula? Is this an option
You generally get a much better dialysis and you can have a bath again!!! ::)

Hello Sugarlump, the doctors and nurses have not mentioned that I should have a fistula,
because my current dialysis-sessions are "only" meant to make me much stronger for my transplant ...
... I was told that with "the utmost strict hygienic measures being in place", my chest-catheter should be adequate...
I have also noticed that all the nurses and doctors at my dialysis-centre are extremely hygienic and their medical care is very impressive.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Jean
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« Reply #1772 on: January 18, 2015, 01:22:34 PM »
Somehow the "cold" I have had since Mid November has managed to plug my ears up. So far I have tried everything I know, including wax removal kits and flushing and flushing with warm water. So far, no results. Anyone have any ideas? So, it's kind of slowing me down, but I am still doing things the dialysis way, one at a time, so, on to the silverware drawer. You all have a good Sunday.
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One day at a time, thats all I can do.
kristina
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« Reply #1773 on: January 18, 2015, 02:26:35 PM »
Hello Jean,
I don't know if that could help you in any way,
but in the few months before I finally started with dialysis,
I had constant flu-symptoms and as soon as I started with dialysis
all these strange symptoms suddenly vanished...
I do hope you are feeling better soon and I send you my
kindest regards, Kristina.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Jean
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Posts: 6114
« Reply #1774 on: January 19, 2015, 12:59:44 AM »
Oh, Kristina, I sure hope not. I get to see the neph in about 3 weeks, and other than this terrible fatigue, the running nose and the ache all over, I feel pretty good. Thanks for your input tho. I remember when my GFR went down to 16, I felt really bad and was vomiting once a day. Now that it came up to 27, those symptoms went away. This is so darned scary.
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One day at a time, thats all I can do.
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