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Author Topic: unexpected call  (Read 22090 times)
thegrammalady
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« Reply #75 on: September 01, 2010, 05:31:15 AM »
glad to hear that everything is going well. waiting for  :pics;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
BASSMAN
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« Reply #76 on: September 01, 2010, 06:10:23 AM »
Best wishes for a speedy recovery!!!!
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
RichardMEL
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« Reply #77 on: September 01, 2010, 06:37:15 AM »
I know! No dialysis for paris - at least not anytime soon! Absolutely unreal!!!!  :beer1; :beer1; :beer1; :beer1; :beer1; :beer1;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
ODAT
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« Reply #78 on: September 01, 2010, 07:12:43 AM »
paris, you have received such a blessing. I am so happy things are going well! Keeping you in my prayers.  :yahoo;
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As is your sort of mind, so is your sort of search: you will find what you desire.
Bajanne
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« Reply #79 on: September 01, 2010, 08:36:38 AM »
My lack of electricity due to Hurricane Earl meant that I had absolutely no idea that this drama was taking place, and with one of the dearest people I know.  I had to read the thread from scratch today.  When I got to the place that it was certain that she would get the kidney, I burst into tears of joy!
[IHD has a history of giving me these emotional extremes at very inappropriate times - I am here at work in the Tourist Information Booth!]
I am so happy, overjoyed, elated.  My caring thoughts and prayers are with you all the way.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
YLGuy
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« Reply #80 on: September 01, 2010, 08:41:37 AM »
Hoping for a speedy recovery.  Sending lots of love and good thoughts.  :grouphug;
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kellyt
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« Reply #81 on: September 01, 2010, 09:41:58 AM »
Quote from: Bajanne on September 01, 2010, 08:36:38 AM
My lack of electricity due to Hurricane Earl meant that I had absolutely no idea that this drama was taking place, and with one of the dearest people I know.  I had to read the thread from scratch today.  When I got to the place that it was certain that she would get the kidney, I burst into tears of joy!
[IHD has a history of giving me these emotional extremes at very inappropriate times - I am here at work in the Tourist Information Booth!]
I am so happy, overjoyed, elated.  My caring thoughts and prayers are with you all the way.

It's good to hear from you, Bajanne!  So glad you are okay.   Isn't this wonderful news????    :yahoo;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
lou
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« Reply #82 on: September 01, 2010, 10:05:11 AM »
Such fantastic news!!! :2thumbsup; :yahoo;
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Rerun
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Going through life tied to a chair!
« Reply #83 on: September 01, 2010, 10:10:54 AM »
It's a done deal!  Yippee!

           :yahoo;

Now your job is to heal!    :bandance;
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AlohaBeth
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« Reply #84 on: September 01, 2010, 11:22:23 AM »
Hey all!  Back up at the hospital (after leaving this morning at about 6 for a few hours rest)

Mom (Paris) is doing good -- she is able to have fluids and even eat if she feels up to it.  Her "peebag" is filling up nicely :)

The Dr. said the spike in blood pressure post-op was fairly normal (although it was definitely higher than even the norm) he said the steroroids probably caused it.  Her BP is good now - no worries there.

I still haven't seen her -- Dad has gone home for a few hours - Melissa (my sister) and I are hanging out in the waiting room.  She is still in CCU, with the possibility of moving tonight or early tomorrow.  I will post room info as soon as I have it!


I posted this on facebook - but for those of you who haven't seen it yet - here is Mom getting her last bp and temp before going into surgery.  It still wasn't feeling real at this point!
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Imagine a world that lived with the Aloha Spirit.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #85 on: September 01, 2010, 11:28:40 AM »
I love that photo! Can't wait to see more.  :pics;

You must be so anxious to grab your Mom and hug her Beth! I know I wish I could!  :grouphug;

Bajanne, I am so glad you logged in, I knew you'd be thrilled.  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #86 on: September 01, 2010, 11:56:19 AM »
What a marvellous piccie! 

This is just still so wonderful, so wonderful.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Darthvadar
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« Reply #87 on: September 01, 2010, 12:29:09 PM »
Thanks Beth for keeping us updated!!!!!....

Delighted your mum's doing well...

Keep it up, Paris.....

Told you that shamrock seed would bring you the luck of the Irish!!!!....

God bless...

C....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Poppylicious
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« Reply #88 on: September 01, 2010, 02:14:42 PM »
Fantastic news!  I'm so happy for you all!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
carol1987
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« Reply #89 on: September 01, 2010, 03:32:40 PM »
She looks fantastic!!!  :clap; :clap; :clap;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
AlohaBeth
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« Reply #90 on: September 01, 2010, 03:41:00 PM »
 Just saw Mom - she looks AMAZING! Can't believe how great she looks and feels! She is getting her Arterial Line out at 6 - then later tonight she'll be transfered to a new room. She's in good spirits - but obviously sleepy. Her nurse (Mike - who is amazing!) says she is a model patient - she has only pressed her me...d button 4 times all day! So proud of her!

Here is her first post-op photo!  Pee Bag shot to come later!
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Imagine a world that lived with the Aloha Spirit.
ChickenLittle56
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Chickenlittle and Maria
« Reply #91 on: September 01, 2010, 03:43:15 PM »
Long live Paris' new kidney. :clap; :clap; :clap; :bandance; :bandance; :bandance; :grouphug; Paris you look terrific in the picture. Hope for a speedy recovery.
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
kellyt
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« Reply #92 on: September 01, 2010, 04:23:06 PM »
Dahhhling, you...look...MARVELOUS!!!   :2thumbsup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
del
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del and willowtreewren meet
« Reply #93 on: September 01, 2010, 05:09:42 PM »
You look wonderful Paris!!  :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #94 on: September 01, 2010, 05:24:41 PM »
Beautiful!  :flower;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bill Peckham
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« Reply #95 on: September 01, 2010, 07:15:51 PM »
Awesome! :clap;
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
jbrock
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« Reply #96 on: September 01, 2010, 08:44:33 PM »
such great news!!!!   :bandance;

 :cheer:
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Save A Life....Be A Donor!
Liver Transplant Recipient ~ 5 Years Ago ~ Blessed :)
Diagnosed in Kidney Failure ~ March 2009
Fistula Placement ~ Upper left Arm ~ Aug. 17th 2010
PD Cath placement - 5 months ago
D started 3 months ago - Manual's 3x a day. Going to try the cycler in a couple of weeks :)
glitter
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« Reply #97 on: September 01, 2010, 10:44:44 PM »
Awesome news- just awesome!!! Things like this give me some hope that good things can still happen in the world!!! :flower;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
jdwills83
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LOVE will fix ANYTHING.
« Reply #98 on: September 01, 2010, 10:56:30 PM »
Paris,

I read your story about your plasmapheresis treatments and it scared me to death. I need the treatments and I hope it will enable me to receive a transplant again. I was giving up hope when I read that your treatments didn't work for you and now here you are.... HERE YOU ARE with a new kidney... you have really inspired me to keep on going and it is truly amazing. The tears in my eyes right now represent new hope...

new hope for  a new beginning. 
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Darthvadar
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« Reply #99 on: September 02, 2010, 04:49:38 AM »
Wow!!!!....

What a great pic!!!!!!....

Great to see Liz looking so well....

Keep it going!!!!....

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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