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Author Topic: unexpected call  (Read 22082 times)
paris
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« on: August 31, 2010, 04:54:49 AM »
It is almost 8am.  My transplant co-ordinator just called. They are bringing four of us hard to match patients in for testing for a kidney that is available.   I am heading there now.  She said it will be a long day and no guarentees.  Never thought I would even get the back up call.  So, I am out the door.  Prayers would be welcome for all who are being called in.  And for the family who made the decision that has allowed this call to happen.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
BASSMAN
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« Reply #1 on: August 31, 2010, 05:24:29 AM »
Prayers going out as I type!!  GOOD LUCK TOO!!
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
Des
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« Reply #2 on: August 31, 2010, 05:33:58 AM »
I am really hoping it goes the way you want to......

Praying for you.  With all my heart.
You deserve this.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Dianejt
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« Reply #3 on: August 31, 2010, 06:41:25 AM »
 :bandance; hope it is you Paris Best wishes.
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
Darthvadar
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« Reply #4 on: August 31, 2010, 07:08:15 AM »
Thinking of you, Paris.... I hope today's the day for you!....

Love and hugs!....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Restorer
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« Reply #5 on: August 31, 2010, 07:43:59 AM »
Good luck!  :yahoo;
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
okarol
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« Reply #6 on: August 31, 2010, 07:47:54 AM »
 :pray; Dear paris, sending prayers, will be waiting to hear, if it's meant to be, I hope it's your day!! Love you!!  :-*
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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« Reply #7 on: August 31, 2010, 07:54:27 AM »
Paris, I am FREAKING out for you. Sending prayers and MANY hugs :cuddle; :cuddle;
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www.caringbridge.org/visit/ottomachado
AlohaBeth
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« Reply #8 on: August 31, 2010, 08:14:33 AM »
Hello everyone.  I am sitting here at work going INSANE...  We all don't know what to think -- this is unknown territory for our family.  Sitting with mom this morning -- when she said who was on the phone I couldn't believe it.  It still hasn't sunk in.

She asked that I keep you all posted...

She had the blood drawn about half an hour ago - 15 viles.  She has to get an EKG and a chest X-ray and then just wait. They just said she can't have anything to drink or eat until things are decided...

Dad is up there with her.  This is hard sitting behind my desk just waiting - I am not used to not being with her for all of this...  Waiting is not easy...
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Imagine a world that lived with the Aloha Spirit.
okarol
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« Reply #9 on: August 31, 2010, 08:17:40 AM »
Thanks Beth, I am pacing, it's not helping! I sent you my cell, I will be out today, but call if there's anything I can do!  :cuddle; :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Darthvadar
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« Reply #10 on: August 31, 2010, 08:19:28 AM »
Thanks for the update, Beth....

Fingers crossed!!!!...

Please keep us informed!....

Tell your mum that Mum, 'Dougal', and I are thinking of her....

God bless....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
AlohaBeth
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« Reply #11 on: August 31, 2010, 08:34:02 AM »
Will do Darth!  :) 

Karol - I have your number in my phone - I will call or text with any news.
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Imagine a world that lived with the Aloha Spirit.
Darthvadar
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« Reply #12 on: August 31, 2010, 08:42:03 AM »
REALLY hoping to hear good news!!!!!!....

Hope it all goes well...

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kellyt
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« Reply #13 on: August 31, 2010, 08:47:05 AM »
Exciting news!!!  :cheer:   I am praying for you Paris.  :pray;    You are in my thoughts everyday anyway.   :)

Beth, hang in there.   :cuddle;      God Bless the donor and his/her family.    :thumbup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Zach
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« Reply #14 on: August 31, 2010, 09:06:52 AM »
 :-*
 :wine;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
breezysummerday
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« Reply #15 on: August 31, 2010, 09:30:18 AM »


omg!   :pray; Let this happen , let this be a positive outcome  :pray;
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
Marina
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God Bless my donor family!! :)
« Reply #16 on: August 31, 2010, 09:59:14 AM »
sending  lots of   :pray; :pray; :pray; :pray; :pray; :pray;  both  for  Paris  and  for  Beth's  mom.
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
YLGuy
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« Reply #17 on: August 31, 2010, 10:25:42 AM »
 :2thumbsup;  :)  :pray;  :bandance;  :grouphug;
Thoughts and prayers are with you!
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thegrammalady
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« Reply #18 on: August 31, 2010, 10:29:57 AM »
keeping fingers and toes crossed that this will be paris's day.  it is exciting to think that today someone will get a long awaited kidney. just praying that's it's paris.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
jbeany
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« Reply #19 on: August 31, 2010, 10:43:03 AM »
 More good thoughts from here!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Epofriend
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This is what happens in Vegas!
« Reply #20 on: August 31, 2010, 10:49:37 AM »
This is exciting! Paris, I hope things go your way.

Just spoke to Sluff, he's somewhere in North Dakota headed to Montana, not able to get online right now. Paris, he sends best wishes to you and will be praying for you.
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monrein
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Might as well smile
« Reply #21 on: August 31, 2010, 11:11:17 AM »
 :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Meinuk
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« Reply #22 on: August 31, 2010, 11:25:53 AM »
Prayers being said! (as well as any thing else that might help!!!!)  You my dear Paris will be my obsession for the day!!!  Thinking of you too Beth.  Remember, deep breaths.
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
AlohaBeth
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« Reply #23 on: August 31, 2010, 11:57:09 AM »
Thanks everyone for the well wishes -- I have been keeping her up to date with everyones posts and will let you guys know when I know more!
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AlohaBeth
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« Reply #24 on: August 31, 2010, 12:02:43 PM »
Just got ahold of mom -- She says the way it was explained to the 4 that were called is that this particular kidney was not showing the markers for the antibodies that cause the problems with their high PRA levels...

She's done her blood work and tests - now they are just waiting... 
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Imagine a world that lived with the Aloha Spirit.
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