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Author Topic: Immunosuppressive Drug Coverage Legislation Introduced  (Read 7023 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: April 06, 2009, 02:09:59 PM »
Immunosuppressive Drug Coverage Legislation Introduced

Bipartisan legislation was introduced last month in both houses of Congress to improve the quality of life for people with kidney disease. Led by Senators Dick Durbin (D-IL) and Thad Cochran (R-MS) and U.S. Representatives Dave Camp (R-MI) and Ron Kind (D-WI), the Comprehensive Immunosuppressive Drug Coverage for Transplant Patients Act (S. 565 and HR 1458) would assist thousands of Americans under the age of 65 who are being cut off from Medicare payments for drug therapy after 36 months by extending coverage of immunosuppressive drugs for kidney transplant recipients.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #1 on: April 06, 2009, 09:58:42 PM »
I have a feeling this won't be retroactive though as part of a consession of approval. Hopefully it makes it through though so that a transplant will not be wasted due to one not being able to get the meds due to some reason.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
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No two day's are the same, are they?
Rerun
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« Reply #2 on: April 06, 2009, 10:07:07 PM »
I think the drug companies need to have limits on what they charge.  This is extorsion of the ill.

         :twocents;
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