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Author Topic: Tell Your Elected Officials to Co-Sponsor the Immunosuppressive Drug Bill!  (Read 5308 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: March 31, 2009, 09:22:16 AM »

Tell Your Elected Officials to Co-Sponsor the Immunosuppressive Drug Bill!

Legislation has been introduced in the U.S. House (H.R. 1458) and Senate (S. 565) to end the 36-month Medicare coverage limit on anti-rejection medications for kidney transplant patients. Tell your elected officials to co-sponsor and support this important legislation to improve the quality of life for PKD patients and everyone who has had a kidney transplant.

Take action: http://www.pkdadvocacy.org/InternalPages/RespondtoLatestActionAlerts/tabid/161/Default.aspx
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."

« Reply #1 on: March 31, 2009, 10:08:16 AM »

 :thumbup;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
paul.karen
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« Reply #2 on: March 31, 2009, 12:25:18 PM »

That was easy enough.
Thx Okarol
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
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