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Author Topic: The Daily Positives  (Read 214302 times)
Des
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« Reply #1275 on: December 09, 2009, 03:16:57 AM »

jbeany is going home at last. That should be enough for all of us. I am thrilled for her.

Yeah for jbeany
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
monrein
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Might as well smile

« Reply #1276 on: December 09, 2009, 04:47:55 AM »

We have snow.  That's the upside.  Downside is we have rain along with it.  Hmm...how to feel about it all.  OK, I've decided, gonna embrace winter here.  It's white (but a bit slushy) outside.

Enjoy being home Janel.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #1277 on: December 09, 2009, 05:48:15 AM »

This may sound like a negative, but it really isn't. One of my elementary students did not get picked up from school yesterday. There was a mis-communication between the mom and dad about who would be collecting him. When closing time rolled around (well actually a few minutes before) I called the dad, who I discovered was out of town. He called the mom and we agreed that we would take my student home with us so we could go ahead and get the machine ready for our treatment. He watched me get the saline syringes ready and how Carl primed the machine. About 6:00 PM he admitted that he was really hungry (he missed afternoon snack at school since he was waiting to be picked up at regular dismissal time). I fixed him a snack. His mom arrived just before time to stick the needles.

I'm sure he was thrilled to miss that!

But the positive is that this morning his mom told me that he got in the car last night and told her that he had a very pleasant visit! I love it.

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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile

« Reply #1278 on: December 09, 2009, 12:18:29 PM »

And WTW, I think it never hurts for kids to see that people can cope with difficult circumstances while still maintaining considerable grace, dignity and yes indeed, pleasantness.  Great life lesson.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
del
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del and willowtreewren meet

« Reply #1279 on: December 09, 2009, 12:27:57 PM »

A little boy at my school who is severely developmentally delayed and responds to very little (not even mom's voice) laughed for the first time today!!!  He actually had the grin on his face and the vocalized giggle when he was tickled or some of the children spoke to him!!  He screwed up his face when I kissed him on the forehead!!  Guess he didn't like that!!  he spends a lot of time in my classroom and the other children were so excited to see him laugh!! It made everybody's day!!!
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Don't take your organs to heaven.  Heaven knows we need them here.
willowtreewren
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My two beautifull granddaughters

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« Reply #1280 on: December 09, 2009, 12:32:55 PM »

Aww. Del. doesn't that really make your day?
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #1281 on: December 09, 2009, 02:14:57 PM »

I have pretty much finished the dress I'm making for Molly for her Mexican themed party on the weekend.  It's actually a Spanish style, but she said no one would know, and besides she liked it! Will post photos when it's finished - Molly is really surprised at how good it looks, which doesn't say much for her faith in her mother's sewing abilities!!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
paris
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« Reply #1282 on: December 09, 2009, 05:23:18 PM »

One of Beth's good friends keeps telling her that he really wants to give me his kidney.  He is a super guy.    I am still amazed when anyone makes that kind of offer.  So that is my positive - there are wonderful people out there who do care.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willowtreewren
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My two beautifull granddaughters

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« Reply #1283 on: December 09, 2009, 05:55:47 PM »

Yes, Paris, there are. The world is full of wonderful folks.

I would love to see that dress. I made my daughter's wedding dress at her request.  :2thumbsup;

It was not elaborate. Her husband wanted one with a hundred buttons up the back. I told him that he could make it!  :rofl; :rofl; :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
topazbeauty
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« Reply #1284 on: December 09, 2009, 08:04:19 PM »

I got to work form home today because we had 18 inches of snow last night and 3 more today and I was snowed in. And I got to go to dialysis early so I didn't have to be out late.
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Jes 23
MPGN-1 '98
Remission for 10 years!
12/1/2009 - permacath placed and first round of Hemo
12/2/2009 - transplant center recieved all my documents! Waiting for appointment
2/2010 - approved for transplant
3/18/2010 - Dad not approved due to medial reasons
4/28/2010 - Living tranplant from Mom
Des
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« Reply #1285 on: December 09, 2009, 09:40:05 PM »

I went out to supper with my hubby last night and.......... :shy;

Well let us just say the evening was SO much fun.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Jean
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« Reply #1286 on: December 10, 2009, 12:04:16 AM »

Today I balanced my checking account and found I had $200.00 more in it than I thought. Whoopeee!!!
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One day at a time, thats all I can do.
paris
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« Reply #1287 on: December 10, 2009, 07:54:11 AM »

Jean,will you balance mine?  I could use an extra $200!    :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Bub
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« Reply #1288 on: December 10, 2009, 08:32:26 AM »

 :shy; I told my supervisor that I was leaving mid February and she started to cry! Tears of sadness or joy????
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jbeany
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Cattitude

« Reply #1289 on: December 10, 2009, 09:59:53 AM »

I've been home since Tuesday night.  My own bed was fabulous!  I've been snowed in ever since with a storm that started late Tuesday and hasn't stopped since.  Hopefully, tomorrow I get to go grocery shopping for more food, since I've about cleaned out what's left in the freezer.  Doc cleared me for a regular diet, though, so I can eat anything I want as soon as I can get to the store to buy it!  They took out my picc line, so I don't have to mess with flushing that anymore.  The only thing I have left to deal with is the wound from my infected incision.  I got the doc in Ann Arbor to agree to my seeing a plastic surgeon at the local hospital about closing it up, so I don't have to make the 4 and a half hour drive back to Ann Arbor for the consultations and surgery.  My next trip back down isn't until April, as long as I get regular appointments with my docs here in Northern Michigan.  Woooohoooo - no more long drives in the snow!

My cat is thrilled to see me.  She spent the last couple of months eating and sleeping and nothing else.  She got FAT!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

willowtreewren
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My two beautifull granddaughters

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« Reply #1290 on: December 10, 2009, 10:41:45 AM »

I love to read all these positives!

Janel, it would be AWFUL for you to have to go without eating (from the snow) now that you are cleared to eat whatever you want! Get those snow plows out!

Jean, now that you shared that you found an extra $200, anything else you want to share? Hmmmm?

 :clap; :clap;

Bub, I'm sure it was tears of sadness that you are leaving. (or maybe jealousy?)

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
dwcrawford
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Getting the heck out of town.

« Reply #1291 on: December 10, 2009, 11:11:10 AM »

jb, how good to have you back. 
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
fc2821
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Just another hamster on the dialysis W.O.F.

« Reply #1292 on: December 10, 2009, 11:16:30 AM »

 
I've been home since Tuesday night.  My own bed was fabulous!  I've been snowed in ever since with a storm that started late Tuesday and hasn't stopped since.  Hopefully, tomorrow I get to go grocery shopping for more food, since I've about cleaned out what's left in the freezer.  Doc cleared me for a regular diet, though, so I can eat anything I want as soon as I can get to the store to buy it!  They took out my picc line, so I don't have to mess with flushing that anymore.  The only thing I have left to deal with is the wound from my infected incision.  I got the doc in Ann Arbor to agree to my seeing a plastic surgeon at the local hospital about closing it up, so I don't have to make the 4 and a half hour drive back to Ann Arbor for the consultations and surgery.  My next trip back down isn't until April, as long as I get regular appointments with my docs here in Northern Michigan.  Woooohoooo - no more long drives in the snow!

My cat is thrilled to see me.  She spent the last couple of months eating and sleeping and nothing else.  She got FAT!
    :clap; :clap; This was a positive For me today. Hope you got out and had a good meal! :2thumbsup; :2thumbsup; :2thumbsup;
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
fc2821
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Just another hamster on the dialysis W.O.F.

« Reply #1293 on: December 10, 2009, 11:19:44 AM »

:shy; I told my supervisor that I was leaving mid February and she started to cry! Tears of sadness or joy????
   Take it as tears of sadness, costs the same and is more plesant to think about.
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
paris
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« Reply #1294 on: December 10, 2009, 11:35:29 AM »

jbeany,  wish I could run to the store for you!  I am so glad you are home. It has been a long road. It makes us all realize that this is not a routine surgery.  You are amazing and an inspiration to all of us.  There isn't a better daily positive than having you home   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile

« Reply #1295 on: December 10, 2009, 02:51:16 PM »

My nephew and niece are spending Christmas here this year and as I prepare things to surprise and spoil them with I can't help but think about how very very lucky they are to have all the opportunities that they do.  They are also very giving kids who appreciate the value of money and who are responsible about trying not to be wasteful. 

One of the presents they are  getting this year is a card telling them that they have each forfeited a sum of money from their gift budget to feed 10 homeless or otherwise disadvantaged people on Christmas Day.  We will make a point during our own lavish Christmas dinner of acknowledging that having so much when others have so little is a fundamental injustice in the world.
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
dwcrawford
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Posts: 5315


Getting the heck out of town.

« Reply #1296 on: December 10, 2009, 03:09:30 PM »

Thanks you Gail and children.  That's a really, really good thing to do.  I don't have too much money left but I will give as much time as they need me on Christmas day to serve or clean up.  I don't do it so much for them, I really have a good time down there.
Logged

Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #1297 on: December 12, 2009, 01:57:26 PM »

Had a lovely 13th birthday party for Molly yesterday - house looks like a bomb hit it!
Here's Molly in her dress I made for the party - it was a Mexican them.  You will noitce the dress is actually spanish, but Molly reckoned no one would notice.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
jbeany
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Cattitude

« Reply #1298 on: December 12, 2009, 02:07:57 PM »

Ahh, I bet no one noticed at all - she looks just lovely.  Hey, time to change your tag line!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

willowtreewren
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My two beautifull granddaughters

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« Reply #1299 on: December 12, 2009, 02:28:04 PM »

I love the shoes with the dress.  :2thumbsup;

Thirteen. Such an exciting turning point in life. My wish is that Molly makes the most of these important years.

 :flower;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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